r/CUTI

I had an awful UTI, high white blood cell blood count, starting to get a fever, passing clots of blood. It was terrifying. Wound up at the ER, and yes it has since gone away, but I’m still having cystitis symptoms. So how am I supposed to know when one is coming back? This paat one went from 0-1000 very fast, within 12 hours. I can’t keep running to the ER. And how am I supposed to just pray that the empiric antibiotic they choose works and I won’t be headed towards sepsis while the culture grows? I know EVERYONE who has UTIs deals with this, but am I thinking about this wrong? I’ve dealt with many UTIs in the past but none like that one and it’s like I have PTSD. I feel like it’s looming over me, but surely tons of people aren’t dropping dead from UTIs… anyone here have any sage wisdom?

As we speak my antibiotics were finished 8/8, infection confirmed cleared through MANY U/As and cultures and yet I am still having on/off cystitis symptoms. And the UTI that landed me in the ER was VERY subtle until it wasn’t. Genuinely am scared to death y’all.

Apologies if this isn’t the right place to ask or if this isn’t a uti issue at all but I think I have one? I’m unsure. I’m a 20 year old male in the uk for reference.

I feel like I am constantly peeing, I’m not feeling anything in my bladder and it’s not sore or burning, I just constantly have to pee, the feeling of which it’s solely felt in the head of my privates. When I’m laying down with nothing on it’s barely noticeable but when I put clothes on or walk about I feel like I’m actively peeing. I have never had this before and it’s only started about two weeks ago.

I’m getting a uti test soon but I’m worried nothing will come back as I’m scared to go outside as I’m constantly worried I’m going to have an incident or something. Any advice is greatly appreciated or if this sounds like a different condition all together any pointers is appreciated

Hi all, as proven recently in studies, vaginal estrogen cream can reduce the risk and severity of rUTIs even in young people (link to study) https://www.sciencedirect.com/science/article/pii/S0090429526003584

It can be hard to access however, often needing approval from a GP, or risking going to a pharmacy and having the staff not believe you or needing to jump through hoops by telling them it's for an older family member who can't pick it up.

Recently I was able to order some online through https://www.chemist-4-u.com/ and only had to fill in a short online questionnaire (you can fill in the details however you see fit to acquire the cream). I got Ovesse 1mg/g cream.

Hope this helps someone! Please use responsibly and if you have cancer/endometriosis please be careful using estrogen cream - discuss with a doctor first.

They're saying that having a positive culture for an infection I've had show up multiple times and as multi drug resistant is not actually indication of an infection. This one was detected as multi drug resistant as well and only susceptible to a few antibiotics. But they are saying despite a sensitivity panel and culture growth, that it's "asymptomatic presence of bacteria" and it doesn't matter if the culture showed a growth. But I'm having a lot of symptoms. I guess I just don't understand how this works and understanding would help me brave through whatever this is. Do we just come up positive even when not having an infection anymore? I wasn't having positive cultures for awhile so I'm especially confused.

They had me cease antibiotics this morning to "see what happens and give it a chance to resolve itself" and my symptoms have rapidly become aggressive, this is the only word I can think of for it. I'm hoping urology calls back today but it's probably not happening at this point in the day.

The only real change I see on the clinic dip results today is a much higher protein level. The culture came back for enterococcus faecalis.

Hi all,

I'm on day five/seven of nitro for a UTI and I still have some lingering symptoms. I remember having one a few years ago and feeling completely fine after the first day of treating it. Has this happened to anyone?

So I have had UTI in the past and I have treated it with antibiotics. I think It never really went away but recently I have done urinoculture test 3 times to see if I still have bacteria and It came out negative each time. I was shocked!

What I have been witnessing for about 7 to 8 months is that even when I pee I still feel like my bladder is not fully empty and It kinda irritates me. Also when I wake up, I wake up tired and with a heavy bladder. All day long It feels like I almost haven’t slept at all. I’ve done pee-gasm when I was younger because It felt nice and I think all of that caused this problem of mine that I have today.

I have been to some urologists but they didn’t really understand my preoccupation I think. I am so drained from this and I really wanna know if someone else has had this exact problem ever and do you know what could help in this case?

I am worried about my urethra and my bladder.

I would love to receive some helpful suggestions from you because I am starting to think I’m crazy for experiencing this lol..

Hi everyone, I am desperately looking for a doctor in Mexico that will prescribe your the uromune vaccine. I am willing to spend a pretty penny on it and the doctors mentioned in previous posts are not responding.

Any lead is helpful 🙏🏻

I've been having a burning sensation, particularly when I urinate so I went to Urgent Care & was given a Urine Culture to check for a UTI, and another swab to again check for BV, Yeast Infections, STDs, Ureplasma, & mycoplasma but all came back negative. I was sure it could be BV again.

I started taking vaginal probiotics to build my good bacteria back up since they informed me in the past it was missing due to all of my antibiotics for past UTIs. Could the vaginal suppository probiotics have caused this? I was off of them 48 hours prior to testing.

I was initially happy until I realized that I didn't know what the burning could be from & I started getting paranoid they could've made a mistake- they said it was normal but it's burning continuously when I pee. I've spent so much money on Urgent Cares & specialists (my insurance co-pays are VERY HIGH) so I don't know what to do. I looked at the online portal from Urgent Care & it said the below- I can't help but wonder if I have a UTI? =/

The results: Non-uropathogenic Gram positive organism. May represent colonizers from external and internal genitalia

My bf and I of 3 years have never had any issues we’ve done very spontaneous things etc no issues and all of a sudden I got a UTI once and now everytime we get freaky I think I get a uti etc wtf is going on

And no he’s not cheating I’m sure

He said he was diagnosed w gingivitis 3 weeks ago at the dentist and the first time he gave me oral months ago this came up is this soemtjing idk

Could use some help.

Went to the doctor last friday thinking I had an ovarian cyst did a urine dipstick it was clean. The culture done over the weekend came back with "10,000-50,000 cfu/mL Acinetobacter baumannii complexThe following organisms are included in the Acinetobacter baumannii complex: A. calcoaceticus, A. lactucae, A. pittii, A. baumannii/nosocomialis group."

They called me yesterday to come in ASAP for a shot of rocephin. Its worth mentioning i dont have access to a susceptibility report so idk if one was done. Since then, 26 hours ago, ive had an increase in urethra pain which started about 2 days ago and some pressure on my side now. On top of those the symptoms I already had were feeling like my bladder was full and urgently having to go often and pressure near my ovary which is gone now.

Does anyone have experience with this weird bacteria idk how I got it unless I picked it up during my pt sessions or its been sitting and waiting since I had surgery in May. From what im seeing the shot I got is probably useless. Im currently waiting for a call back from my doctor since when I called earlier the front desk couldn't get in touch with her. Hoping I dont need to go to the er and sit there for 10 hours but also maybe they'll separate patient zero? 😭

Prior to this i never had uti symptoms they usually fester until they hit my kidneys then I have problems. Ive only actually been treated once for a uti the rest have been kidney infections so im so worried im about to randomly get hit with that pain.

so i was prescribed a 3mg fosfomycin 3 days ago. symptoms improved about 60-70% since then but it has been more than 72 hours (fosfomycin max effect) and i still feel like peeing more frequently. during this whole uti thing i never really felt pain during urination, mostly just the sensation after peeing that i still need to pee again (and when i do its always a significant amount). is it possible that the bacteria is gone but i have residual irritation? or is it more likely that the bacteria just wasnt fully eliminated? this is the second time ive had UTI this year, the first one solved by the same medicine and dosage.

the feeling is manageable/bearable but super annoying. it makes me think about my bladder the whole day (unless im out walking and busy doing something).

I've now started taking Canephron (doc suggested to take it in case i still dont feel 100% after fosfomycin) and hoping this kinda helps resolve it fully.

i know it’s strongly advisable to not vape at all with a kidney infection, but i haven’t vaped all day and i have a addiction so it’s hard not to, do yall think a few puffs will do damage? cause i don’t wanna fuck up my kidneys even more but it’s killing me and i wanna hit nicotine atleast just 3 puffs.

I can’t tell if I’m having kidney pain or back pain. I’m feeling it just to the right of my spine, kind of mid back. Maybe 6 inches from my tailbone? It gets worse after I run and if I push along the muscle that runs vertical next to my spine, I feel it more. But almost just feels like I’ve been overextending my back? No fever or chills, no blood in my urine, or burning when I pee. Dropped off a urine sample today to see if the antibiotics cleared my UTI and I have a video visit with my PCP Wednesday morning. Just wondering if I need to head to urgent care at all tomorrow or if I should wait until I get the urine sample results.

I went into the walk in clinic with uti symptoms a little over a month ago now. The doctor said that I was positive for leukocytes and nitrites in my urine and prescribed me 7 days of macrobid. I had a uti 6 months before this in which I was prescribed macrobid and it did not treat the infection. I ended up getting a rocephin injection which cured the infection.
I checked my portal a few days later to see if I was getting a culture result in which it showed that there was some error with my urine sample and a culture was not performed. I finish the 7 days with no improvement in symptoms. I contact my gynecologist and she tells me to come leave another sample. The urinalysis of that sample comes back normal other than some white blood cells and micro blood in urine. I request a culture again because i’ve been waiting several weeks with a uti at this point and i am having to fight to have a culture done and my doctor said that nothing “screams uti” to her. Once I finally get the culture back it shows no sign of bacteria although I have daily burning and urgency. Holding my pee makes it so much worse, and I drink a lot of water every day to mask the symptoms and dilute my urine. I am trying to see a urologist but all of them near me have bad reviews and my doctor is trying to make me get a 700 dollar out of pocket ct urogram which is insane. I feel lost.

Hi. A friend suggested I come on Reddit for some advice. I am a 38/f and since I was 9 I’ve had off and on uti’s / kidney infections. Due to all the infections I have lost some function in both kidneys , become resistant to a lot of antibiotics and need iv meds just to get better. I am so tired of being sick I need help. I have seen dozens of specialists and no one can figure out the triggers. It’s all kinds of bacteria not just one. Sometimes I have a year long break sometimes it’s back to back . Right now it is back to back and the kidney pain will not go away. My creatine levels are normal and ct/ ultrasounds just show that my right kidney is larger then the left which it always has been. For some reason it is also always my left kidney but my right it taken a hit to as it tried to make up for what the left one lacks. Any advice would be helpful!! Thank you