My mother 62, has CKD is on maintenance dialysis with sleep study detected sleep apnea, HT, Sheehans Syndrome since birth of her second child, thyroidism. Currently she had a HD session just 6 days back and is now suffering from pedal edema and nocturnal watery stools.
Got my latest bloodwork back yesterday and my GFR has dropped from a 15 to a 14. I meet with my nephrologist on July 6th and I’m afraid we are going to discuss getting on dialysis or a transplant soon. I had three people that I know of sign up to donate a kidney, but at least 2 of them haven’t heard anything from the transplant team. When I called the transplant team they told me that they can’t tell me anything and I need the donors to contact them. I thought to at was the purpose for them to fill out the link online and then that the transplant team would contact them when I had all my pre things done. I hate to ask the donors to do something else after they already filled out the information online. Also my two support people both work full-time and them or some of my friends will have to take off to stay with me since I have to have 24-7 care for the transplant. A transplant feels like such a burden to my loved ones. I’m 61F and have a retirement plan through work and financially will be fine, not great, but fine. Any others in the position of needing assistance with the care and deciding what to do? I’m feeling tired, stressed and scared.
So, my diagnosis is recent (late April) and i'm still learning and adjusting. Before this diagnosis I had been working on losing weight for the past several years and have been pretty successful (90 lbs down!). My calorie deficit pre-diagnosis was in the 2 lbs/week range. Is there any info about safe deficits to maintain with kidney disease? I imagine that rate of loss might not be advised now. I probably have another 40-50lbs to lose.
I'm a 54-year-old male and have had proteinuria for several years. My kidney function has remained normal, but my urine protein has been increasing.
Here's the trend:
My urine microalbumin/creatinine ratio has also increased from 534 mg/g in Dec 2025 to 997 mg/g in Jun 2026.
The confusing part is that my kidney function is still good:
I also don't fit the typical metabolic profile. I'm 6'4", 158 lb, don't drink alcohol or soda, run a 5K every weekday, ride my Peloton 10 miles every weekday, and my A1C is 5.6%.
I've been taking Jardiance since July 2025 and switched from lisinopril to losartan in December 2025 because I couldn't tolerate lisinopril. My nephrologist said that if my urine protein remained above 500 mg/L, she would recommend a kidney biopsy. With today's results at 779 mg/L, that conversation is now back on the table.
I'm struggling with the decision because the biopsy is invasive and has risks, but I also understand that persistent proteinuria despite treatment may indicate an underlying kidney disease that can't be diagnosed without a biopsy.
For anyone who has been in a similar situation:
I'm not looking for medical advice, just hoping to hear from people who have gone through something similar.
Hello friends, my mother was just diagnosed with stage 3a chronic kidney disease, and is naturally very worried and unhappy. She is otherwise pretty healthy and not overweight. Eats healthy foods. Right now she is most concerned about being able to get the nutrition she needs because she has some dietary restrictions (and is a little orthorexic).
What are the best, reputable, most evidence based sources of information about nutrition and diets that newly diagnosed people can follow?
As an older person she is also worked about muscle wasting. Thank you.
35 m current egfr ranging from 17-22, currently taking filspari atvorstatin and sodium bicarb and in the middle of the pre evaluation for my kidney transplant.Nephro wants me to see iga specialist and start voyxact. Anyone familiar with this or has taken it befor? anything i should know about before hand concerning side effects?
My wife is newly suspected to have CKD (numbers showed consistent with stage 3b, which may change once we get a cystatin C and correct hydration). She's 42 and a BMI of 40.
She also needs to go on a statin. Her LDL came back above 180 despite us eating healthy. For reference, we eat the same things mostly and my LDL is below 100 - so I realize genetics plays a huge role and high cholesterol runs in her family (although cv disease does not).
Considering CKD, which statins have you had luck with? Her family has had horrible luck tolerating statins. Were you on it prior to CKD as well? It was in my head that rosuvastatin would be the best due to its potency and that it may have less myalgia, but I also see that atorvastatin may be marginally safer in CKD. We also probably plan on adding zetia after the initiation of the statin. Thanks
Hello everyone,
I’m a 26-year-old male, about 140 lbs (64 kg), and I’ve been dealing with persistent protein in my urine for several years.
What confuses and worries me is that most of my kidney-related tests have remained normal. My serum creatinine is usually between 0.66 and 0.80 mg/dL, my BUN has been normal, and my estimated GFR is generally reported as normal as well.
Despite this, I continue to have proteinuria/albuminuria. My most recent urine albumin-to-creatinine ratio (ACR) was around 300 mg/g.
I currently take prednisone, empagliflozin, olmesartan, and atorvastatin. Even with treatment, the protein in my urine has never completely gone away.
A few weeks ago, I also had a kidney biopsy and I am currently waiting for the results, which has made me even more anxious about what the future might look like.
My biggest concern is long-term kidney function. Since the proteinuria persists, I keep wondering how much kidney function I could lose over the years, even though my current lab results still look good.
I would really appreciate hearing from people who have been in a similar situation:
Has anyone managed to completely eliminate their proteinuria?
If not, how long have you lived with persistent proteinuria or albuminuria?
How has your kidney function changed over time?
Have your creatinine and eGFR remained stable for years?
Were there any treatments or lifestyle changes that made a significant difference?
I understand that every case is different and nobody can predict the future, but I would be grateful to hear real-life experiences from people who have dealt with persistent proteinuria for many years.
Thank you for taking the time to read and respond
Hello y'all. First time posting here. I've got CKD because of Alport Syndrome. For quite a few years now I've got a feeling of thirst I can't get rid off. Some days more, some days less.
Y'all have some tips to make this a bit less annoying?