r/CKD

Got a blood test recently and EGFR is > 60 and Creatinine is 62.

On the report it says normal but I have seen people with CKD with higher so I am not sure really.

I had about 12% kidney function left when I started dialysis in July. I still make pee, although my output has decreased but that could be explained by me restricting fluids consistently. Over the last two weeks, I've been urinating pretty regularly and twice now I've been awoken in the middle of the night with the desperate need to pee and I've dumped a lot of fluid both times. Both incidents happened after I'd had a day where I got more ohysical exercise in than usual. The last two weeks, I've only gained minimal weight between sessions. Between Thursday and Saturday, I only gained 0.2 kg and I ate breakfast in the parking lot right before walking in to be weighed so the food in my stomach would account for some of the weight gain. The previous day, I'd had roughly 64 oz to drink. On Saturday, they drew a bunch of labs and said they're testing kidney function. They told me, and I understand that this doesn't mean I'm cured obviously. It's just weird. Have any of you ever experienced this?

​

I’m 33 years old and have Stage 3A CKD. My creatinine fluctuates between 1.5 and 1.7.

As per my nephrologist’s advice and the usual guidelines, I’m currently taking around 0.8 g/kg of protein per day. Sometimes I go slightly above that, which my nephrologist has allowed.

I’m trying to lose some fat while also building muscle, but I’m struggling with the muscle-building part. I’m not really seeing much progress.

I feel there are probably two main factors here: one is the relatively low protein intake, and the other is that I don’t train very intensely. And obviously, these two things are somewhat related as well.

So I wanted to ask the community—has anyone with CKD experienced something similar? If you’ve managed to build muscle while keeping your protein intake restricted, I’d really appreciate hearing about your experience, advice, or any suggestions that worked for you.

Please share your experiences if you’re comfortable doing so.

Thanks

hi guys. i’m 27 years old and was diagnosed with kidney disease when i was 10 from a rare autoimmune issue called henoch-schonlein pupura. my kidneys failed beginning of last year and i commenced peritoneal dialysis. pd was very painful for me as i had drain pain everytime. lucky for me i got the call in september last year and got a transplant. my new kidney was thriving at the beginning, gfr in the 60-70 range. it’s been a year now and my kidney function has rapidly declined and is continuing too, with a current gfr of 28. i was recently diagnosed with diabetes and have gained 30kg since the transplant. i have been in and out of hospital many times since the transplant. with sepsis, severe dehydration and unexplained blood in stool.
i have a list of issues already:
IBS
DIABETES TYPE 2
CKD
TACHYCARDIA
MAJOR DEPRESSIVE DISORDER
ANXIETY
ADENOMYOSIS
MIGRAINE ATTACKS
CHRONIC PAIN

and i’m just about tired of my life. i was promised a new life and a thriving kidney which has not been the case. no matter how hard i try i don’t feel like im getting anywhere.
if my kidneys go into failure within the next year or 2 i am thinking about letting life take its natural course. i’ve spoken to my sisters about it and they said they are very upset that i feel this way but ultimately if it’s that bad for me then they don’t want me to suffer.
i’m very young and wish i had more motivation to stay. but i do not want a life surrounded by treatment, doctors, medications and poor health. i’m very tired and had enough. and i can only imagine that it’s gonna get worse for me. this is hard for me to talk about but i’m going to bring it up to my specialist at my next appointment to get his perspective. i’d love to hear other people’s thoughts on the matter.

Last week, my 74 y/o parent ended up in the hospital. Potassium was at 9, creatinine was above 7 and eGFR was 7 (forgive me if the name is incorrect). They were in the hospital for4.5 days. Left with a catheter due to an obstructed urethra. I believe the numbers at the time of discharge were 3.8 for potassium, 5+ for creatinine and 11 on the eGFR. Obviously they are in very rough shape and very weak.

Some other information that we gleaned (getting any is a nightmare) is that in June (?) they had an eGFR of 40.

So, what can we expect? I’m assuming the kidney function is forever going to be low. Is there a chance it can ever get to levels where dialysis is off the table?

Any other advice/info would be great.

My father was just diagnosed with CKD stage 3a. What are questions we should ask the nephrologist on his first appointment? What are good websites or books for kidney friendly recipes? Any other advice or information you all deem helpful would be greatly appreciated. Thank you. <3