r/Copper_deficiency

My son has had fatigue and orthostatic hypotension for years but over the past year he has become much worse with constant flairs of muscle pain and weakness, blood pressure drops, heat and cold intolerance, and near fainting episodes. He has terrible brain fog and is mostly house bound having to lay down or recline most of the time. His Tilt table test had to be stopped early because his blood pressure dropped too low to safely continue. The only thing abnormal on his blood tests is low copper and low Ceruloplasm. Six months of copper supplements have done nothing. His levels just dropped more. He has not ever taken zinc supplements. He has an appointment with genetics next week. I’m curious if anyone else had autonomic symptoms like this with a copper deficiency and if so, how did you recover?

Hi everyone,

I’ve been following a protocol to optimize my iron and ferritin levels. I realized my ferritin was increasing but my hemoglobin was stuck, so I started taking between 0,5 to 2mg of copper biglyscinate daily, and it provided a very clear, consistent metabolic boost (increased energy and mental clarity).

Six days ago, I accidentally missed my copper dose for 24 hours (I had beef liver that day instead). Since then, I haven't been able to regain that same positive effect, even after resuming my regular copper dose. I’ve noticed a return of mild anxiety and a lack of the "repair/energy" feeling I had before. I was sleeping way better when I got the first boost.

Now I only take 84mg of iron every other day and 1,5mg of copper everyday.

Note : I didn't make a blood test to see if I had copper deficiency (but I had been forever anemic with a high ferritin but an hemoglobin stuck at 10,8, and everytime I tried increase it, it was stuck at 11,5) because my doctor didn't want to. But I made a lot of researches to figured out that I was deficient in copper and from the day I started copper tablets, I saw a huge difference, I was feeling my the increase of my hemoglobin, I don't feel that anymore.

Has anyone experienced this kind of "metabolic decoupling" after a brief interruption of a cofactor? How did you manage to get back on track and resynchronize the protocol? Thanks for any insights.

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Hi all,

For many months I have been dealing with this troublesome trifecta. My ferritin has luckily been responding to iron supplements.

But my Zinc and copper/ceruloplasm levels haven't moved from deficient levels, even with daily supplementation of 25mg of zinc biglycinate and 2mg of copper.

I supplement correctly, take everything 4 hours apart from each other, on an empty stomach, etc. My diet is 100% whole foods based, no junk, and lots of soaked beans, seeds, nuts, cacao powder, enough protein, etc. No lower digestion problems (but I do experience LPR/acid reflux occasionally (mostly from coffee))

Anyone else experienced this or have thoughts to share?! I'm at my wits end and my doctor thus far doesn't have an answer either.

My zinc is 74

my copper is 63 and my ceruloplasmin is 16

Could my low zinc be causing low vitamin A activation which is then causing my ceruloplasmin to not go up?

if so - how long did it take for you to recover upon taking copper supplements? (10 mg per day in my case, started yesterday.)

So I used to take iron for years without any problems, then stopped for year and half. Started to take them again and started to have shutdown fatigue on day 5 of taking them. Stopped supplements, had iron infusion and that messed me up badly with extreme fatigue and balance issues for weeks. Now anytime I take iron on day 5-6 I started to experience balance issues again with fatigue. Found out before my infusion that my zinc was 212(60-120) and copper 73 (80-155). Started to take copper and my zinc came down to 105 after 4 months of supplementing but my copper is still 70-73, ceruloplasmin is 0.22 (0.2-0.6). Can my sudden iron intolerance be because of the copper deficiency? I also experienced burning nerves episode for 5 weeks but that was before I started supplementing iron.

Hi there, I am looking to see if anyone knows of an infusion center in Connecticut that offers IV copper infusions. My wife has had a chronic copper deficiency for the last year that has not responded to oral copper. We are moving to Connecticut for family support but are having difficulty finding an infusion center that offers IV copper. Thank you!