My child has class 2 variant, I think it's the severe type. But I heard jaundice might not show up. How do I know when it's an emergency situation (hemolytic anemia crisis)? And if ER docs have no idea, what specifics do I need to tell them?
Hi im new to all of this and I just got told my baby has this condition . And im seeing all kinds of things as in what not to eat and im seeing its diffrent variants ? Mediterranean?!? This all confusing but please comment and tell me what everyone is doing as in whats not safe ? Variants all that good stuff . But the real question is has anyone filed for ssi for baby and won ? I need to know what u had to bring etc . THANK YOU
I have G6PD deficiency, specifically the Mediterranean variant, and I’m trying to understand whether coffee/caffeine is safe.
I found a paper saying caffeine showed a reduction of G6PD activity in vitro, but I’m not sure how relevant that is to normal coffee intake in real life.
Has anyone with the Mediterranean variant had issues with coffee, or has a doctor/hematologist given you advice about it?
Hello! I have G6PD deficiency and I’ve been wanting to dye my hair because I’m getting bored of my natural black hair. My mom mentioned that I might get reactions from hair dye because of my condition, so I started researching ingredients to avoid.
Based on what I found, some ingredients that may be risky are:
- Henna
- Ammonia
- Hydrogen peroxide
- PPD (p-phenylenediamine)
I’m trying to look for hair dye brands/products that are free from those ingredients, but it’s honestly hard to find reliable information.
I also haven’t asked my pediatrician/doctor about this yet since I haven’t seen her in a while, so I wanted to ask here first:
Does anyone here with G6PD deficiency dye their hair safely? What products or brands worked for you? Did you experience any reactions?
Would appreciate any advice or personal experiences!!