r/G6PD

▲ 6 r/G6PD

Almost zero G6PD

I everyone, good day.

I have been diagnosed with low G6PD (0.66). My age is 24.

Yesterday I have been to doctor. He told me there is no treatment. He also told me that I should be very careful with Malaria. If by chance I get it, within 2 days with excessive bleeding, I will be gone forever.

My mother was sitting beside me. I looked at her and couldn't hold my emotions. Due to this my bilirubin level is always high. It's been 2 days and I have completely depressed with this thought.

Is there any treatment for this condition?

When I was born, I underwent 2 times blood transfer due to hemolysis.

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u/phantom_0025 — 3 days ago
▲ 20 r/G6PD

My G6PD caused me to have incorrect A1c test results.

Your G6PD can cause your A1C results to be artificially low. A1C is a measure of the accumulated sugar in your red blood cell over time. High red blood cell turnover and make your blood cell population young and lower the amount of accumulated sugar in it that is detectable by the test.

This happened to me and my Dr missed it except I was taking my blood sugar manually. He thought I was cured and that my high glucose in the test results was because I did not fast. But I did and I showed him the numbers I have seen tracking. Also I have had unusually low A1C's in the past. Diabetes doesn't magically go away. Took him a bit to see what I was talking about. American Dr don't know shit about G6PD.

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u/tdhftw — 4 days ago
▲ 2 r/G6PD

Anybody else feel unwell after having edamame?

Is edamame supposed to affect someone with g6pd deficiency? I read that it doesn't.

But for me, soy beans or tofu can make me feel sick.

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u/sogon — 7 days ago
▲ 0 r/G6PD

Menthol mouthwash, is it safe for severe defficiency?

The AI tools say to avoid it, but most mouthwashes contain menthol. I'm confused I hear mixed opinions, what do you think?

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u/Traditional_Chard274 — 11 days ago