r/KPRubraFaceii

Sirolimus increased sensitivity?

Has anyone else experienced this, to the touch it is almost a stinging sensation. I also just went to Florida for a week(applied sirolimus every night) but I did get sun burnt even after using sunscreen maybe that’s why.

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u/Cute-Lead2133 — 2 days ago

Siroskin is the best answer

here’s progress from siroskin I got off of IndiaMart I have hovered around this forum for a few years now and struggled pretty badly with KPRF I’ve done everything from compounded Sirolimus to Vbeam laser nothing has showed me consistent results like the siro skin gel has the compounded sirolimus showed some help for a bit but I think once I got a new prescription it wasn’t properly compounded leading to very inconsistent results vbeam showed signs of helping for about a week and then skin returned to inflamed state. I have not had a severe flush starting it and acne showed up for the first week and has been fine since really happy with the reduction in redness, texture, and the overall calmness feeling of my skin

u/MacaroonStrange152 — 4 days ago

I'm having a dermatologist Appointment tommorow..

I really want to get my hands on sirolimus.
Does anyone have tips on how to convince my dermatologist? I live in Europe
I'm also scared she will misdiagnose me, as I am certain I have KPRF/UO.

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u/Reasonable_Record705 — 3 days ago

Wake up with less flares

I’m assuming we all have fans blasting all the time, I still do, but I ordered this cooling blanket from Amazon for $20 and I have seen massive improvement and just thought I would share. I’m not sure if I can link it, but just look up cooling blanket.

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u/Cute-Lead2133 — 12 days ago

Advice pls

Hi everyone this is the only 2 products I use for my kprf and I use this azealiac acid 10% every night and it makes my kprf flair up a little show I carry on using it I put it on first then over the top with b5 citrplast and advice would be great thanks

u/AbilityAutomatic5982 — 12 days ago