r/Lichenplanus

Image 1 — posted this on a diff subreddit and someone replied it might be LP
Image 2 — posted this on a diff subreddit and someone replied it might be LP
Image 3 — posted this on a diff subreddit and someone replied it might be LP
Image 4 — posted this on a diff subreddit and someone replied it might be LP

posted this on a diff subreddit and someone replied it might be LP

these bumps appeared out of nowhere (appearing chronologically as per pics) and stayed red and raised for more than a week now, though not as itchy as before.
last picture is the latest blotch i got that is actively itchy and redder.
is it correct? im a bit scared, thanks in advance..

u/No-Succotash-3825 — 6 hours ago

No biopsy - so far received medical opinions of either OLP or mucositis

Hi! I’ve had an issue for two months, and a string of doctors still don’t know. A dentist suggested OLP and to visit an ENT for a biopsy. My PC leaned OLP (but tbf that’s what I reported it as being) and gave the referral to the ENT. Today the ENT declined to biopsy; her opinion is mucositis. I’d love thoughts on whether this immediately rings OLP bells for anyone. I have had not had chemo treatment, I DO have Hashimoto’s and have just hit the mid-life mark (fingers crossed). I did realize today that I got a new bite guard and don’t know the materials used, but will stop using it. I have been getting blisters of all sizes, both hard and flat/soft. OLP or allergic reaction or mucositis?

u/Junebuff77 — 2 days ago

how do i stop feeling so insecure

So back in March of this year i was diagnosed with skin LP. It initially began on my wrists, a small spot on my butt and one on my lower back. now it’s spread soooo much. i’ve been on methotrexate and triaminicolone since march. some spots have stopped itching and began fading some but my butt, upper legs and back are so bad . it’s even spread to my underarms, feet and knees and it looks like it’s moving to my breasts. 😩😩 anyway im going on a cruise next month and im scared. scared to wear shorts or a bathing suit, post my pictures and just relax. i feel like everyone will be staring at me, especially with how much skin it covers. how did yall get past being scared to show skin. i want to have fun but i dont feel like ill be able to relax

u/SwordfishBeginning46 — 4 days ago

food advice

Hello! My mom recently had a tongue biopsy for lichen planus suspicion (biopsy was done from the side of her tongue) and she still has a lot of pain. Can someone who had this kind of biopsy give me some advice for food that would be better options for her? I know that she should avoid spicy/hot/salty and stuff like that.

Thank you so much!

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u/crazy_for_donuts — 4 days ago

Lichens sclerosis

I cannot use clobetasol because of allergy so they put me on tacrolimus will this help and is anybody use this medication? Did it help them?

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u/ls1700 — 3 days ago

Need help

I am at the end of my rope. A couple months ago I developed a painful patch of skin on my vulva. Only one patch and nothing else. I went to the doctor she prescribed me topical steroids and it didn’t help. She prescribed me a different steroid and still nothing. I recently had a biopsy done and that gave me some relief from the pain for about two weeks until it started to grow back. After a month a finally got the results back bc they had to send them to John Hopkins for a better look at it. My doctor said it’s Lichen Planus. She prescribed me Tacrolimus ointment and that did nothing but make the burning pain worse. I have tried salt water baths, castor oil, coconut oil, a and d ointment, oral steroids, and nothing will take this away. It’s very painful
Bc of the spot it is in. Does anyone have any input? Could the biopsy be wrong? I got back in a few weeks for a follow up, I just want this gone it’s ruining my life bc it is so painful.

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u/Ok_Dragonfruit3601 — 5 days ago

Title: 4+ week OLP flare not settling despite diet changes and meds — looking for management tips while I wait 16 weeks for specialist review

Hi all,
32M, UK. Biopsy-confirmed (Nov 2025) lichenoid inflammation on right lower lip, specialist called it a mild case of OLP. Looking for some real-world management tips from people who’ve dealt with longer flares, because my next specialist appointment is a 16 week wait and I want to do this properly in the meantime.
Background:
• Quit vaping (2.5 years, daily) in August 2025. First ever flare started ~10 days after quitting.
• Biopsy in Nov 2025 confirmed hyperkeratosis with lichenoid inflammation, no dysplasia, immunofluorescence ruled out pemphigus/pemphigoid.
• Had a good 6 month clear stretch after that (Dec–May/June).
• Current flare started after a trip to London where I ate a bunch of obvious triggers in one day (burger with sauce, chips, fresh juice, sushi with soy sauce). Lesson learned there.
• 4+ weeks in now, new spots/cluster forming on the inner lip in the last week, on top of the original area.
What I’ve been doing:
• Steroid mouthwash (prescribed) — using as directed
• Kenacort (Triamcinolone Acetonide 0.1%) buccal paste on individual spots, 2–3x daily
• Cut out citrus, spicy food, soy sauce, vinegar, mint (toothpaste included — switched off mint flavoured paste), alcohol, very hot drinks
• Switched to a soft-bristle toothbrush
• Eating bland — rice, poached chicken, soft fruit (banana, melon, peach), plain yogurt, plain dosa
• Stopped salt water rinses for now — it was burning significantly (8/10 pain) on the newer, more raw spots rather than feeling soothing, so I backed off it and I’m just doing plain lukewarm water rinses instead until things calm down
Where I’m stuck:
Despite all of the above, new spots are still appearing roughly every 1-2 weeks even though I’ve genuinely cut every trigger I can think of. Individual lesions seem to heal in about 2 weeks (redness → ulcer → white striae → resolution) but new ones keep starting before the last one’s fully done, so the overall flare just keeps rolling on.
I’ve called my GP and I’m getting an in-person look this week to rule out thrush (aware that 4 weeks of mouthwash + paste together raises that risk), but wanted to ask here too:
• For those with similar overlapping/migratory flare patterns — what actually helped you break the cycle?
• Anyone find a point where dual topical steroids stopped being enough and needed something else (tacrolimus, systemic, etc.)?
• Any non-food triggers people found later on (sleep, stress, supplements, specific toothpaste ingredients) that weren’t obvious at first?
Not looking for diagnosis, just real experience from people managing this long term. Thanks in advance.

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u/This_Treat_7216 — 6 days ago

I'm having a horrible flare

I have vulvar lichen planus and I'm having a wicked flare. I used to be able to take hydroxychloroquine but I've become sensitive to it. I get horrible anxiety and gastro issues, and my hair falls out (thins/sheds)

Has anyone tried anything else that helps tame the flares? Has anyone tried methotrexate?

Thank you

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u/CulturalStranger999 — 5 days ago

lichen planus on the anus

Anyone with lichen planus in the anal area? Could you tell me a bit about your experience, how it first presented, what your symptoms were and what treatment(s) you found to be of most help? Appreciate any insights from this community.

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u/baptistvegas — 8 days ago

Hii guys is it lichen planus please help

This rash has been there for around 6 months it didn't look like this in the starting its super itchy sometimes and sometimes barely noticeable pls tell

u/Fantastic-Frame4628 — 9 days ago

It has returned after 5years again

I am 18yrs old now and I have light marks of previous now it has on my inner thigh region like I don't wanna visit doc this time give suggestions in diet and any other

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u/Ok-Manufacturer-6142 — 11 days ago
▲ 4 r/Lichenplanus+1 crossposts

Lichen planopilarius on face- any success stories in get rid of it.

I was recently diagnosed with LPP on my scalp and my face. It looks like the above pic. I have tiny bumps on my face and was just curious if anyone out there in the world has had the same. Curious if anything worked to get rid of the bumps on their face. My scalp has improved with Clobetasol. I’m currently taking plaquenil. Just Feel so insecure with the bumps even though they are flesh colored. Thank you🙏🏾

u/Kaiwahine18 — 12 days ago
▲ 4 r/Lichenplanus+1 crossposts

Low iron but normal ferritin levels

Hi all, I'm wondering if lower levels of iron but normal levels of ferritin in the body is common for people with LP/LS? And no, without anemia. CBC test is normal. Also, anyone noticed higher CRP levels for long times?

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LP could be/is an autoimmune condition and that itself could increase ferritin levels according to my search. Also CRP.

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I'm a bit worried so I'm trying to explain my lab results before my appointment next month with a specialist.

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u/UnlikelyCycle2447 — 14 days ago