r/Lichenplanus

Does anyone forgo meds and just let the hyperpigmentation happen?

My dermatologist prescribed the typical Clobetasol and Tacrolimus. I would rather not deal with the switching ointments every 2 weeks, potential side effects, etc. One of the meds is itchy which is awful when the lesions are already itchy. In my experience they don't even do much unless applied to brand new red spots. It's especially uncomfortable applying anything when the weather is humid. I'm just letting nature take its course at this point and will deal with the hyperpigmentation (since there are many approaches to help fade the melanin). Has anyone else taken this approach?

reddit.com
u/AdmirableKiwi5858 — 1 day ago

Dexamethasone 5ml mouthwash questions help

i have been diagnosed with oral lichen planus and just got Dexamethasone 0.5 Mg/5 Ml Liquid as a mouthwash . the directions say 2 or 3 times a day . i dont know which direction to do ?
or how long to take? any one have sleeping issues with the moutwash?

please help

thanks

reddit.com
u/ScratchAny1468 — 1 day ago

One year of misdiagnoses, and now this – Volon A Tinktur N cleared my lichen planus spots in a week

Just wanted to share this in case it helps someone else, because I spent almost a year going in circles.

My lichen planus started in September 2025, right after a COVID infection during a really stressful period. I got a biopsy, and it confirmed LP. But even with that report in hand, doctor after doctor kept telling me it was pityriasis rosea instead – mostly because I don't have any itching.

In December I was put on a plain cortisone cream. It did work, but incredibly slowly: constant application, and it took about three months before the papules finally went away. That was the first time my skin was clear.

Then in February I started going back to the gym, and I had a new flare. Some of the old spots came back and a lot of new ones appeared on top of that. I went back to a dermatologist, and again: "pityriasis rosea, you don't have LP, it doesn't itch." Honestly, that was the most frustrating part of the whole year.

In spring I spent a week on Gran Canaria, and the sun and seawater clearly did something – a lot of spots faded noticeably. But a week was just too short. The remaining ones stayed inflamed and never fully cleared, and eventually new ones joined them.

A week ago I finally saw a different dermatologist. He looked at my skin and diagnosed lichen planus immediately, before he even opened the biopsy report I'd brought along. He also told me I should count myself lucky that mine doesn't itch – apparently I'm one of the few.

He prescribed Volon A Tinktur N. It's a liquid, not an ointment: alcohol-based, with cortisone plus salicylic acid. He warned me it can burn badly on open lesions, but luckily I don't have any.

By day three I could already see a difference. The salicylic acid loosened the scaling and hyperkeratosis on the spots, which apparently lets the cortisone actually get in – and that seems to be exactly what was missing before. One week in: some spots are completely gone, the rest are visibly fading. I've attached photos, and honestly I'm still a bit stunned that this is one week of progress after a year of slow going.

Not medical advice, obviously, and I know LP behaves differently for everyone. But if you're stuck in the same misdiagnosis loop, or a plain cortisone cream isn't cutting it: it might be worth asking about a combination with salicylic acid.

u/Classic_Word4025 — 2 days ago

What has been your journey to diagnosis?

Hey everyone. I’m new here. I have been having oral health issues for 5 years that seem to resemble oral lichen planus. I have an appointment with my family doctor in a couple weeks to facilitate a referral to a specialist.

I am curious about your journeys to diagnosis. Did you suffer for years before diagnosis?

I had a family doctor that told me my mouth sores were just canker sores for the last 5 years. I got a new doctor who sent me to a rheumatologist to rule out Behçet’s disease. Luckily I don’t have Behçet’s disease.

But I do have troublesome mouth symptoms that seem to occur 3 times a year like a “flare up”. My symptoms include mouth pain, sore red, sometimes white spots on my gums. Sometimes sores on the insides of my cheek. Sometimes I have small bumps on my bottom lip that look like clear fluid is in there. Dry mouth. Burning mouth. It feel very hard to eat when these symptoms happen and it takes 2-3 weeks for them to go away. I would have to eat bland foods until things improved. I gargled with salt water. Drank peppermint tea to soothe the mouth pain.

I have told my dentist about this multiple times and he told me it was stress and unfortunately I was never symptomatic during my appointments. I have great oral hygiene so it’s not a hygiene problem.

I also noticed the flare ups were more likely to happen the week before my period.

Also these symptoms coincided with perimenopause so part of me just was dealing with this horrible mouth pain and sores because I just thought perhaps this is my mouth now as a perimenopausal woman.

Another interesting thing to note is I got diagnosed with lichen sclerosis on my vulva in 2021 and I noticed this is when I started to have mouth symptoms and also started to feel perimenopausal.

Just wondering what your diagnosis journeys were and if we have similarities.

reddit.com
u/babygirlmusings — 3 days ago

Lichen planus and tattoo

I am planning to get a tattoo on my forearm. Does anyone have experience with getting a tattoo with lichen planus? Is it a good idea or bad idea?

reddit.com
u/coachkay — 7 days ago

Extremely painful tongue ulcers on both sides of my tongue

So I’ve had these ulcers on the right side and the left side of my tongue for months now. They never go away, but I do have one or two days a week where they’re not hurting me. I am diagnosed with an autoimmune disease, but from what I’ve been told the ulcers that usually accompany my auto immune disease are not symmetrical. I have an appointment with the oral surgeon on Monday to get it biopsied. I can’t live like this anymore. It’s so painful. It hurts to talk, eat and drink. I tried magic mouthwash, prescription pastes, warm salt water, warm water with baking soda, lidocaine gel, etc, and nothing really seems to work. I can maybe get 30 minutes of relief but that’s it. Anybody have anything that resembles this and have any idea what it ? I know I have my biopsy on Monday, but I’m just wondering if I’m alone.
Thanks

u/beachbum191 — 7 days ago

80% Resolution after stopping chewing gum

I had a mint chewing gum habits for hours, everyday, for 2 years

I got a cleaning at Dentist in January, he noticed the webs in my cheeks during a cleaning, i never noticed it myself because it's completely painless

I quit mint chewing gum completely, and started to eat slowly so i don't bite my cheeks while eating

And it's now 80% gone, he said he won't biopsy it, and won't treat it because there is no reason to

u/johanewesome — 7 days ago

Does this look like normal LP presentation/behavior?

It started as one spot on the bottom of my foot earlier this year. Literally an itchy red bump that I thought was a bug bite. Soon turned into a red spot about the size of a nickel, and that when I got it biopsied and the results showed lichen planus. Like right after the biopsy, a few more spots started showing up, and now this is how one of my feet looks after just a few months. The other one’s just as bad. I also have a few small patches on my ankles, and on one palm/both wrists. But my feet are the worst. They basically hurt and itch constantly, like enough to wake me up at night. I like to walk for exercise and this makes it very difficult, not to mention a couple times after kind of a lot of walking, some of the sores have turned into blisters. But at this point it looks like my skin is just peeling off… I moisturize my feet multiple times a day but they always look/feel dry. Just wondering if this is normal for LP, or maybe there isn’t really a normal and it’s different for everyone 🫤

u/kwarn2993 — 9 days ago

Lichen planus its back

I was diagnosed with Lichen planus on 2010 and it was extensive in my legs for almost 4 years. I visited many doctors and no avail and finally it started fading away after 4 years.

Then it was fine for few years. Then again it came back in 2017, same story for 3 years. Then it faded away. Happy that it went away.

Then last week again I am seeing new lesions in my leg. It doesnt end does it? Also when I had it, it was extensive, and even going out in the sun and stress aggrevated it. My both legs and hands had lesions big massive ones.

reddit.com
u/No_Independence8611 — 10 days ago

Oral Lichen Planus?

Hi everyone,

Could this be oral lichen planus?

A bit of background:
Three years ago, I had an insect bite in my groin area. It changed over time, and initially, no one knew what it was. Eventually, a biopsy was performed, and I was diagnosed with lichen planus.

Now, three years later—just under two months ago—I noticed white lines and dots in my mouth after experiencing some mild gum pain. During that time, my dad also passed away quite suddenly. It was—and still is—a very difficult time. I think that also contributes to the possibility that things might have intensified.

My dentist thinks it could very well be lichen planus.
I am currently undergoing treatment and have a follow-up appointment coming up, likely with a dermatologist.

Does anyone have experience with this? Does it look like that to you? It’s scary thinking it could be something serious.

Thanks.

u/gogoz198989 — 10 days ago

Journaling lichen planus journey

I was diagnosed with lichen planus a couple of weeks ago, although my symptoms started around 2 months back. I developed itchy rashes which are leaving black/blue marks.

Initially, I developed around 8 to 10 dark marks across my torso, hands, and legs. New marks stopped appearing for a while, but the itching continued.

Recently, I’ve had another round of around 8 to 10 marks in similar areas, with more appearing on my legs this time.

I’m planning to keep this as an ongoing journal in case it helps anyone else going through something similar, or if someone wants to follow along and compare experiences.

A few things I’m currently wondering about as possible contributors:

  • I had started taking iron supplements because my iron was low and saw somewhere that could be one of the suspects
  • I’ve had insufficient vitamin D levels for several years.

What I’ve done so far to investigate and manage it:

  • I came across some information suggesting vitamin D levels may be associated with lichen planus, so I’ve increased my vitamin D to 5,000 IU/day for now. Interestingly, I’ve noticed that on the days I take vitamin D, the itching seems significantly lower.
  • I started using organic aloe vera gel. It has been very helpful for controlling the itching, which also helps me avoid scratching and creating more marks.
  • I downloaded an app to track when the itching happens, along with what I ate, supplements I took, and other things I did that day, so I can hopefully identify patterns or triggers.

What’s next:

  • Meeting another dermatologist this week to get a biopsy and confirm the diagnosis.
  • Connecting with an anti-inflammatory nutritionist to look for possible dietary or inflammatory triggers.
  • Exploring supportive approaches through TCM and Ayurveda.
  • Trying an anti-inflammatory diet for 10 days and tracking whether anything changes.

My main goal is to understand what is triggering this and how I can manage it long term, ideally while minimizing the need for steroids.

I’ll keep updating this post/journal with what I try, what seems to help, test results, and anything I learn along the way. Would also love to hear from anyone who has dealt with lichen planus and figured out their triggers or what helped reduce the itching and new spots.

reddit.com
u/Adventurous_Tale9430 — 10 days ago

Lichen Planus Pigmentosus (LPP) on Face

In May 2024, I noticed a small, dark brown spot in the middle of my forehead. It gradually became darker and larger. Around the same time, I had used an organic hair oil that caused a rash around my hairline, but the rash disappeared within 2–3 days after I stopped using it.

A few days later, I noticed another unusual ash-blue/greenish spot near my right cheek, close to the earline. Gradually, similar spots appeared on both cheeks.

My first dermatologist diagnosed it as melasma and prescribed SPF, Drone TM, and glutathione tablets. Drone TM helped significantly, but after stopping it, the pigmentation returned darker and more widespread, along with itching.

A second dermatologist diagnosed it as sunburn and recommended PRP instead of chemical peeling. I completed four PRP sessions—three with plasma microneedling and one with plasma injections. The pigmentation faded temporarily, but after stopping PRP, the spots returned larger, darker, and more widespread, with increased itching.

A third dermatologist again diagnosed melasma. Later, I was referred to another dermatologist, who examined my skin with a dermatoscope and diagnosed Lichen Planus Pigmentosus (LPP). Also I had been diagnosed with Hypothyroidism. He told me that complete recovery may be difficult and estimated the recovery chance at around 10%, but said she would try to improve it.

Because my skin condition was not suitable for laser treatment, she first prescribed SPF, moisturizer, ointment, and Roaccutane 20 mg (isotretinoin) for two months to improve my skin barrier. After completing the two months, she has now recommended chemical peeling, around 8–10 sessions, one per month.

I am very scared to proceed because I am worried that chemical peeling may not help and could potentially worsen or spread the pigmentation. I have already tried several treatments with only temporary improvement, followed by worsening after stopping them.

This has also affected me emotionally. My skin used to be very clear and smooth, and I rarely had acne or pigmentation. Now I feel extremely frustrated 😞 and self-conscious, and I am struggling to face people or even look at my own skin😣. I desperately want to know whether chemical peeling is genuinely appropriate for LPP in my case and whether there is a realistic chance of improvement.

u/DuskyDaisy5008 — 11 days ago

Erosive Oral lichen planus.

I think I have this. I have been referred to have my mouth assessed. Those in the uk how long did you wait to be seen and to have a biopsy? Was it urgent or routine. Issues have persisted for nearly two months.

reddit.com
u/ele292 — 13 days ago

Just diagnosed with LPP + atopic dermatitis.

Hi all, I was just diagnosed with lichen planus pigmentosus and atopic dermatitis. The doctor prescribed the topical cream opzelura and the tablet rinvoq 15 mg. (The greyness and splotches have spread to my face.)

I'm very nervous about taking these two since it says online they are JAK inhibitors. I'm otherwise healthy, am not on any medication, etc. just trying to figure out if this is a combination anyone has seen work.

reddit.com
u/Miserable_Raisin998 — 13 days ago