Any ideas if it is possible to carry paraffin blocks of tissue samples from a tumor on an airplane? Did anyone here do it? Did you place them in the checked bag or in hand luggage?
It's above 35 degrees hot here, can it melt? It is now stored in room temperature.
I'll bring them from a non-EU to an EU country. It's not mine, but a family member's. Do I need any sort of documents?
Thanks
Hello all,
My aunt, 69yo, got 9 weekly reduced-dose taxol carboplatin infusions and now she's having severe headaches, gums, ears and whole body aches. It started after 5 days from the final infusion and is still ongoing for 4 -5 days now. Normal mild to moderate painkillers are not helping much.
Is this normal? How long could it last? What meds are advised for relief? She's well hydrated.
We're seeing the oncologist in a week but until then I'm a bit worried and want to know if I can help. Any tips is appreciated.
Thanks🤍
Oncologist recommended capecitabine 500mg tablets for 6 months after reduced adjuvant chemo for early stage but multicentric TNBC. Mastectomy came first so there was no way to measure any PCR after chemo.
My aunt, 69, has also diabetes, she received 9 weekly reduced taxol carboplatin infusions. Then she was prescribed capecitabine. All chemo started after mastectomy.
Did anyone have a similar treatment pattern? How serious are the side effects of capecitabine? After being generally very tired from the infusions. Any experiences?
Hi all, I'm wondering if lower levels of iron but normal levels of ferritin in the body is common for people with LP/LS? And no, without anemia. CBC test is normal. Also, anyone noticed higher CRP levels for long times?
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LP could be/is an autoimmune condition and that itself could increase ferritin levels according to my search. Also CRP.
​
I'm a bit worried so I'm trying to explain my lab results before my appointment next month with a specialist.
Hello everyone,
​
I have a question for those who use cold therapy (frozen gloves/socks) during Taxol (paclitaxel) infusions.
​
Today my aunt received Taxol, and we used a frozen gel pack from suzzipads under/around her hand, including the hand with the IV. The infusion room was also quite cold today because the air conditioning was on. Her Taxol infusion usually takes about 1 hour, but today it took about 2 hours.
​
The nurse mentioned that the cold glove under the IV hand may have slowed the infusion because of vasoconstriction from the cold. However, cold therapy is not commonly used in my country, so they were not very familiar with it. The nurse was new too this time.
​
From your experience:
1- Have you ever noticed frozen gloves on the IV hand slowing down a Taxol infusion?
​
2- If an oncologist intends to administer, for example, 150 mg of paclitaxel over 1 hour, can cooling the IV hand make the infusion take longer unless the pump rate is adjusted accordingly to speed things up?
​
3- Could a very cold infusion room contribute to this as well?
​
4- If you use cold therapy during Taxol, do you avoid placing frozen gloves on the IV hand?
​
I would appreciate hearing about your experiences. Thank you!
Hello everyone,
I have a question for those who use cold therapy (frozen gloves/socks) during Taxol (paclitaxel) infusions.
Today my aunt received Taxol, and we used a frozen gel pack from suzzipads under her hand, including the hand with the IV. The infusion room was also quite cold today because the air conditioning was on. Her Taxol infusion usually takes about 1 hour, but today it took about 2 hours.
The nurse mentioned that the cold glove under the IV hand may have slowed the infusion because of vasoconstriction from the cold. However, cold therapy is not commonly used in my country, so they were not very familiar with it. The nurse was new too this time.
From your experience: 1- Have you ever noticed frozen gloves on the IV hand slowing down a Taxol infusion?
2- If an oncologist intends to administer, for example, 150 mg of paclitaxel over 1 hour, can cooling the IV hand make the infusion take longer unless the pump rate is adjusted accordingly to speed things up?
3- Could a very cold infusion room contribute to this as well?
4- If you use cold therapy during Taxol, do you avoid placing frozen gloves on the IV hand?
I would appreciate hearing about your experiences. Thank you!
Hello everyone,
I have a question for those who use cold therapy (frozen gloves/socks) during Taxol (paclitaxel) infusions.
Today my aunt received Taxol, and we used a frozen gel pack from suzzipads under her hand, including the hand with the IV. The infusion room was also quite cold today because the air conditioning was on. Her Taxol infusion usually takes about 1 hour, but today it took about 2 hours.
The nurse mentioned that the cold glove under the IV hand may have slowed the infusion because of vasoconstriction from the cold. However, cold therapy is not commonly used in my country, so they were not very familiar with it. The nurse was new too this time.
From your experience: 1- Have you ever noticed frozen gloves on the IV hand slowing down a Taxol infusion?
2- If an oncologist intends to administer, for example, 150 mg of paclitaxel over 1 hour, can cooling the IV hand make the infusion take longer unless the pump rate is adjusted accordingly to speed things up?
3- Could a very cold infusion room contribute to this as well?
4- If you use cold therapy during Taxol, do you avoid placing frozen gloves on the IV hand?
I would appreciate hearing about your experiences. Thank you!
How can you reduce swelling in a hand after mastectomy and a number of lymph nodes removal? The oncologist prescribed lasix tablets but that didn't help at all. Now I read it can't be a long-term solution anyways.
My aunt is a bit stubborn and she is still doing some 'lighter' house work here and there after surgery (2 months now) and sometimes forgetting that she needs to be gentler with the surgical side arm.
Any tips and tricks to manage reducing the swelling, in addition to the basic hand raising and fist opening/closing exercises, would be appreciated <3
Any ideas whether urtekram find balance sensitive scalp shampoo and its conditioner are good options for TNBC during adjuvant chemotherapy?
I got it for my aunt whose having hair thinning during chemo (she's halfway) as it looked a natural fragrance free option but now I read it has beta-sitosterol and that itself might be problematic 🤦🏻♀️ (?). I'm not sure. Any ideas?
Edit: She's under weekly reduced taxol carboplatin cycles
Hi,
I'm asking about my aunt 69yo, with multicenntric TNBC, stage 1, no node involvement. She had mastectomy and now she's taking adjuvant reduced weekly chemo regimen with taxol carboplatin.
After 4 cycles she is now having severe gum pain that she can't eat or even speak. The pain is reaching her ears. She has whole body aches and feeling very weak. She's also sweating a lot. This started today (last 15 hours).
Is these all normal chemo side effects? Or is she having flu/cold on top? Her blood test on Thursday, a day before week 4 of chemo was good.
I'd appreciate any advice
Hi all,
Did anyone get reduced chemotherapy doses (weekly 150 mg Taxol and 150 mg carboplatin) for early stage multifocal/multicentric TNBC without node involvement as neoadjuvant or adjuvant therapy? I believe this is given for frail patients.
Any experiences how effective it could be to prevent recurrence? My aunt, 69yo with diabetes, is getting these reduced doses for 9 weeks after mastectomy but we can't measure PCR in this situation. Anyone with similar experiences?
Hello,
We've been seeing oncologists for my aunt (69yo, TNBC, stage 1 but multicentric with tumor sizes: 2.3 cm and 1.2cm, no underarm lymph node involvment, treated with surgery then reduced chemo:weekly cycles of reduced taxol carboplatin, has diabetes).
One oncologist suggested to also give her adjuvant immunotherapy (pembrolizumab) after a full cycle of chemotherapy not the reduced one. All this after mastectomy without node involvment. She chose the reduced chemo though. I see pembro is common in neoadjuvant setting (when started before surgery not after).
Does anyone have a similar experience getting immunotherapy after already having surgery followed by chemotherapy in early stage TNBC? Any ideas, suggestions?
Hello,
We've been seeing oncologists for my aunt (69yo, TNBC, stage 1 but multicentric [tumor sizes: 2.3 cm and 1.2cm] , no underarm lymph node involvment, treated with surgery then reduced chemo [weekly cycles of reduced taxol carboplatin], with diabetes).
One oncologist suggested to also give her adjuvant immunotherapy (pembrolizumab) after a full cycle of chemotherapy not the reduced one. All this after mastectomy without node involvment. She chose the reduced chemo though. I see pembro is common in neoadjuvant setting (when started before surgery not after).
Does anyone have a similar experience getting immunotherapy after already having surgery followed by chemotherapy in early stage TNBC? Any ideas, suggestions?
Hi all. I'm wondering whether starting to use cold freezing gloves and footwear after the 4th cycle of adjuvant chemo could still be useful to prevent/reduce chemotheray induced neuropathy?
9-12 weekly cycles of reduced dosage of taxol and carboplatin are planned for my aunt (69yo, TNBC, muticentric stage1, diabetic). The meds are given intravenously via one hand (not mastectomy side). She's already on a daily (higher than drugstore) dosage of neurobion pills (vit B1, B6 and B12) to prevent simple neuropathy.
Any ideas? Thoughts? Similar experiences? Also, would using such gloves while being on IV still be possible?