r/TS_Withdrawal

i genuinely don't know how i'll continue to work like this. this has heavily impacted my ability to work and live. antihistamines like Claritin don't seem to do much for this bone deep itch , and the swelling and redness is insane. how do you guys do it? around what month did the itch become less intense? it seems to just be getting worse 🫠

For example look up ctrl.skin(Jordan) on Tiktok, why do his skin remains the same for 5 years without any improvement? Isn't tsw take 3-5 years to heal from? I think it's safe to say that not everyone gets to healed completely from this. There are so many living proofs.

Hey everyone! I’ve been following this community ever since the beginning of my TSW journey. It’s been an agonizing journey, to say the least, but this group has given me so many resources, support, and helpful information along the way. Now, here I am, 3½ years in, and I’ve seen so much improvement. I used to have TSW all over my body, and thankfully, I’m now mainly dealing with it on my face and neck.

Lately, I’ve been trying to figure out what’s causing my flares because they seem to follow a pretty consistent pattern. My face becomes very red and inflamed, then I’ll have some oozing, followed by flaking, and it just seems to go back and forth.

I’ve cut out dairy and sugary drinks and have also cut back on processed foods. I bought an air purifier, and I take supplements such as magnesium, vitamin D, L-histidine, and collagen. At this point, I’m honestly not sure what could be triggering these flares other than my environment, which is really the one thing I haven’t changed.

One thing I’ve noticed is that whenever I travel somewhere warmer, my skin looks AMAZING. I can have little to no flaring, and then as soon as I come back home, the symptoms seem to start up again. I’m wondering if this could be a clue as to what might be affecting my skin.
I’m also doing NMW and only using Avène Thermal Spring Water. I tried hypochlorous spray as well, but unfortunately it burns my face, so I decided to discontinue it.
I’m wondering if anyone else has experienced something similar, especially with their skin improving when traveling to a different climate or environment. I’d really appreciate hearing your experiences or any thoughts on what I could possibly look into.

Thank you all for continuing to share your experiences and support each other. This community has genuinely helped me so much throughout this journey. ❤️

I have been in a bad flare since downing my dose of cyclosporine from 200 to 150 in 8 weeks. I became stiff again and got a mini comeback version of the TSW month 1 greatest hits. Luckily no bleeding / general weeping or return of the bandages.

My dermatologist won the bet that I would flare without any back up options and I've accepted dupixent as the next best step.

I was watching some stuff about MCAS on Instagram and how someone managed their symptoms with glutamine. I have been taking quercitin regularly alongside D / other vitamins including magnesium taurate.

I had a bag of glutamine I barely used. I had ten grams / two scoops about two hours after my evening meal.

Within half hour the hot feeling in my skin disappeared. I've rapidly entered into flakey phase , healing first time in 4 wks. I thought it was placebo but read other people on Reddit saying that rapid shifts can happen if you take high doses.

I read about glutamine and how it helps right junctions in the gut and heal the lining, shifting from th2 to more th1 state.

I'm now on day 2 on oh my third dose. I have felt more mobile and comfortable in my skin...

Tl:Dr , have tsw 13 months, tapering off cyclo had a bad flare, getting Dupixent on Sunday but thought I'd try glutamine now trying to figure out if progress is placebo or not in such a short amount of time .

It's been six years since i've used steroids and i'm incredibly bothered by environmental irritants. I live in minnesota, and there's wildfires here, and up in canada, and i've just had to stay inside to start recovering. But I can't just stay inside for months at a time till they go away... Is there anything I can do to make my body less reactive? The only thing I can find is healing at a cellular level and reducing oxidative stress/load

Ok so I’ve been on cyclosporine for 7 months my red ness pretty much all went away my issue now is inflammation around hair folicals also I am getting multiple hairs growing out of one follicle has any one eles experience anything similar ??