r/clubfoot

 

My 18-month old was born with left clubfoot. Her feet are perfect, she tolerates bracing well, and is the busiest, most active toddler and I’m having a hard time visualizing what the future looks like. For the parents of kids who graduated from boots-and-bar, what did the toddler years look like? Did they stay in a crib a bit longer because climbing out in BnB is nearly impossible? Did they learn to unbuckle their boots so they can come and snuggle with parents on weekends? Is there any advice you’d tell your past self? Her clubfoot was a birth day surprise and every subsequent phase has had a fair amount of unknowns, but for some reason the clubfoot toddler phase feels so mysterious. Any insight/advice is much appreciated!

Hi everyone,

I am looking for a new shoe buddy to swap pairs with. I live in Canada and wear a Size 9 on my Left foot and a Size 11 on my Right foot.

I am looking for an exact opposite match: someone who needs a Size 11 for their Left foot and a Size 9 for their Right foot.

Ideally, we can pick out styles we both like (casual, sneakers, boots), split the costs, and ship the matching halves to each other. If this matches your feet or you know someone who fits this description, please send me a message!

Bilateral clubbed foot from birth-many surgeries, PT, etc. in my mid 30s and the pain is unbearable if I walk or stand for too long (which is not long/far at ALL). As a new parent, just the general tasks of the day are making the pain excruciating. Has anyone had a fusion and it actually helped? The arthritis in my subtaylor joint just gets worse and worse and I feel stuck.

If I may ask
My son had club foot just on his right foot and now his right calf/leg is visibly skinnier which that’s my baby no shame at all but wondering how we can if we can get muscle bk if anyone experienced this ?

i have a left clubbed foot and currently started running at 29. what’s the best running shoes you’ve tried?

i’m using new balance 530s and have reached 10km already. now i want to start using legit running shoes to possibly help me with my pace. i tried asics novablast 5 but the first time i tried it, it felt heavy and even my right sole hurts when running.

any running shoe recommendation?

So I need some advice on whether to do the ankle fusion surgery or not.

I am 36 y/o and I was born with club foot on both legs. After a series of surgeries during childhood, my left recovered while my right stayed in a club foot shape. I did not do any physiotherapy or anything while growing up and I just wore heeled shoes to make up for the difference between my feet.

The right is around 1.5cm shorter than the other. The thing now is that my left knee is affected due to having carried all my weight throughout the years. I went to a surgeon and they said they can operate my right foot by fusing the ankle in a 90° angle. However they would have to shorten my leg with 2cm which can be covered by customised shoes or high insoles (I did mention that it is already shorted by 1,5cm, but I cannot recall for sure whether they confirmed that it will including this difference or be on top of it..)

They also said that they estimate a 70-80% improvement of my current lifestyle.

However what worries me is that my walking will be so affected by this surgery that I will not be able to enjoy anything barefoot indoors or at the beach. While I am not a sporty person, I consider myself pretty active as I enjoy long walks, going on trails, dancing and swimming in the sea.

I am unsure whether it is worth to do the surgery and whether there is any alternative to improve my current experience without resorting to yet another surgery.

Any thoughts or suggestions are appreciated 🤍

Hi everyone. I’m hoping to find anyone who has had a similar prenatal diagnosis because my husband and I haven’t been able to find much information.

I’m currently 29 weeks pregnant with our second child.

At our anatomy scan, they noticed an abnormal position of her right foot. Initially there was concern for clubfoot, but my MFM now thinks it may actually be talipes calcaneovalgus or another atypical foot deformity rather than a classic clubfoot.

The bigger concern is that over multiple ultrasounds, the right knee has remained bent the entire time. They have never seen baby extend the knee.

The confusing part is:
Moves hip normally.
Moves ankle normally.
Moves toes normally.
Long bones measure normal.
Spine, hips, hands, fingers, brain, heart, and the rest of the anatomy all look normal.
Growth is 74th percentile (3 lb 9 oz at 29w4d).
Amniotic fluid is normal (AFI 14.3).

They’ve told us that ultrasound can’t predict how well baby will use the leg after birth. We’re getting a second opinion with another MFM and meeting with pediatric orthopedics. They also want my husband to have genetic testing because there’s some family history of musculoskeletal differences.

Family history:
My husband has severe pectus excavatum and had an umbilical hernia at birth.
His father also has pectus excavatum, a bicuspid aortic valve, long wingspan, and significant arthritis.
Our older daughter has pectus excavatum, right hip dysplasia, and is very flexible.
There are a few relatives on my side with clubfoot.

My questions are:
Did anyone have a baby who never extended one knee on ultrasound?
Was there also a foot deformity?
What was the diagnosis after birth?
Did your child need casting, surgery, or physical therapy?
If genetics was involved, what diagnosis did you end up with?
How is your child doing now?

I’ve searched the medical literature and found information on congenital knee dislocation and arthrogryposis, but I haven’t found many cases where the only prenatal findings were a persistent unilateral flexed knee and a foot deformity with otherwise normal anatomy and growth.

I’d really appreciate hearing from anyone who’s been through something similar. Even if the diagnosis was different, I’d love to know how things turned out.