Omg! How do I stop and prevent hair loss???? I take KISQALI ( currently we are on a break), letrozole( also on a break), lupron, and zometa. The shedding is so bad! I’m going to find a good vitamin B , but what else can I do?
This will be going on my 3rd week of letrozole. I only noticed mild night sweats the first few weeks. No big deal I’ve had those since I was 25. I’m 39 and recently diagnosed. Treatments all started just a month ago, so I’m super fresh! lol! Meds are Lupron, kisqali, and letrozole. I did fine with the first two, adding letrozole was fine until a few days ago. I can handle to crying outbursts and nights sweats, but the anxiety, agitation, and anger, no! I’m becoming borderline panic again. Panic attacks and anxiety is only brought on by meds. I’m not sleeping at night because I’m waking up with extreme anxiety borderline panic attack, and it’s miserable. I had an awful experience to a medication 9 years ago which the side effects were mental side effects. I had a panic attack for 6-8 hours a night for 8 months. I don’t like taking Xanax bc I cannot function so I held on tight for a terrible mental ride every night! I don’t wish for that to ever come back, but I’m getting very close to experiencing all of that again. I have terrible ptsd from all of that. And now I have a whole new ptsd.😫 anyways what did you all do to help or what meds did you find to help better? Do you think I even need this med? Waiting to hear back from MO sometime today, but I’m now all a mess of worry with this. I’m picking fights with my husband, snapping on my kids and random people. Don’t get me wrong, I don’t mind the snapping part only when I need it, it’s somewhat helpful since I’m a people pleaser trying to stop. lol. I’m trying to find the bright side of all of this. Ive been on lexapro for 17 years for depression, and since added busparione. I have propanol for anxiety, but don’t like to take that too much bc I already have a low bp, and Xanax when things are bad, but that literally makes me unstable, and can’t live like that! I need your help, advice , comfort, other meds that worked for you. Does this last forever on this med or does it get better. I’m on 2.5mg.
Ok all. So I was diagnosed in late June. I haven’t been on treatment for two weeks. I have a college student and a first year high schooler. I am currently taking letrozole, lupron, and kisqali. Since my white blood count has dropped I have been masking, my family have had a relearning of hand washing, bc high schoolers and college kids are more gross than littles.🤦🏽♀️ I ask the doctor, but she said do everything as I did before. No restrictions.🤨 with that said I am worried about getting a virus or anything else. I also am not sure what to do? Any advice would be so helpful!
So I work at a middle school 3 days a week. I was diagnosed and started treatment a little over two weeks ago. Lupron shot, letrozole, and kisqali . I feel really well and the pain in my bones has significantly improved and are less. But I worry so much about planning for the future. I just keep worrying I will get sick, or I will start to have terrible side effects. I’m also going back to school. I just don’t want to over due it and push myself so bad that I regret it. But from what the dr has said I have had this close to a year without knowing, so that gives me some perspective. How do you amazing women handle this?
So I work at a middle school 3 days a week. I was diagnosed and started treatment a little over two weeks ago. Lupron shot, letrozole, and kisqali . I feel really well and the pain in my bones has significantly improved and are less. But I worry so much about planning for the future. I just keep worrying I will get sick, or I will start to have terrible side effects. I’m also going back to school. I just don’t want to over due it and push myself so bad that I regret it. But from what the dr has said I have had this close to a year without knowing, so that gives me some perspective. How do you amazing women handle this?
I was just given my treatment plan. Hormone blocking shots, hormone pill and cancer pill. I have stage 4 breast cancer fueled by estrogen and progesterone only, the cancer has spread to my bones and lymph nodes. Radiation if the bone pain continues and bone infusions. I know my time is limited and I just don’t want to feel like complete garbage. I also don’t want to die in 5 years! I feel like I was just given my life expectancy and I’m not ok with that! I want to see my son graduate, my daughter get married, dance with my son during his wedding and meet my grandchildren and watch them grow. Please tell me I will live longer and then 6 years! My heart is shattering.
Just got my results from my PET scan. Stage 4 breast cancer multiple lymph nodes involved and has spread to my bones. I’m really struggling with this one and need support, positive outcomes and just people who have been in my place or are in my place.
The drs did not like that I asked questions and had concerns. I guess they are used to people who come in and say ok do whatever and I have no questions! There is only one treatment protocol for me and that’s surgery, chemo, radiation, and hormone blocker for 5 years, more than likely it will come back. And I’m a stage 2 or 3. I saw the surgeon today which , she doesn’t have a sense of humor.😫 and she said chemo first then surgery, then left quickly bc she couldn’t answer my questions, and got the medical oncologist. The doctor answered some questions but she told me if I cannot tolerate the treatment plans then there is nothing she can do for me. A little background of me, 9 years ago o was given Otezla for psoriasis and psoriatic arthritis, that medication destroyed my biology and caused symptoms of severe side panic attacks and anxiety. Never had before. That lasted 8 months, and I had to learn to be confident in medication again. The dr did not want to believe that sometimes when I take a new medication it can cause a panic attack. She tried telling me it’s in my head and anxiety. To me I’m like after everything I’ve been going through the past few weeks I would have been having multiple panic attacks, but I’m not and my anxiety isn’t too bad either except before an appointment. Please tell me that all drs are not like this? I am trying to find humor behind all of this and stay positive, but I get looked at with disgust from the drs. I’m so lost and feel worse than I did finding out I have breast cancer . I am double negative carcinoma and in lymph node’s. I’m so dense they cannot even tell me a for sure stage until I get the mri of the breast. I need reassurance and support the most. Talking about my son’s graduation in 4 years, made me cry bc from what the dr is saying I could be dead by then.
The drs did not like that I asked questions and had concerns. I guess they are used to people who come in and say ok do whatever and I have no questions! There is only one treatment protocol for me and that’s surgery, chemo, radiation, and hormone blocker for 5 years, more than likely it will come back. And I’m a stage 2 or 3. I saw the surgeon today which , she doesn’t have a sense of humor.😫 and she said chemo first then surgery, then left quickly bc she couldn’t answer my questions, and got the medical oncologist. The doctor answered some questions but she told me if I cannot tolerate the treatment plans then there is nothing she can do for me. A little background of me, 9 years ago o was given Otezla for psoriasis and psoriatic arthritis, that medication destroyed my biology and caused symptoms of severe side panic attacks and anxiety. Never had before. That lasted 8 months, and I had to learn to be confident in medication again. The dr did not want to believe that sometimes when I take a new medication it can cause a panic attack. She tried telling me it’s in my head and anxiety. To me I’m like after everything I’ve been going through the past few weeks I would have been having multiple panic attacks, but I’m not and my anxiety isn’t too bad either except before an appointment. Please tell me that all drs are not like this? I am trying to find humor behind all of this and stay positive, but I get looked at with disgust from the drs. I’m so lost and feel worse than I did finding out I have breast cancer . I am double negative carcinoma and in lymph node’s. I’m so dense they cannot even tell me a for sure stage until I get the mri of the breast. I need reassurance and support the most. Talking about my son’s graduation in 4 years, made me cry bc from what the dr is saying I could be dead by then.
I was just diagnosed with breast cancer of the right breast on Monday. Two small tumors and a itty bitty lymph node tumor all in my right breast. I see the breast team on Tuesday, so I am in the dark right now for my treatment options. I am 39, and completely lost. I think it is all hitting me now that the phone calls and texts are done. Idk what to think or how to wrap my head around this. On top of that I have hashimotos and a lovely blood clot from a blood draw on the same side as my cancer. Do I get a second and third opinion? I’m going to the University of Chicago, a very highly recommended hospital. I like to have a game plan going into this, but I cannot, it helps my anxiety, which I’m sure will come back with panic attacks, which will only make this worse. I need advice kind of words. I already have body image insecurities so I’m not ready for this, but I have no choice . Also did anyone notice a different smell from the armpit of the breast with cancer, before any treatments? I need advice, kind words, what worked for you and what didn’t, anything helpful. My husband is worried on missing work, he has two vacation days left, both of my teens have autoimmune diseases, so this is a hell of a time to get cancer.
Anyone with hashimotos get breast lumps and have to go through the whole process of mammo, ultrasound, and biopsy? Going through it now and wondering if there was any relation.
Idk what is going on but 8 years ago I suffered from severe panic attacks every night for at least 5 hours. It would come in waves. I am not one to hurry and take medications as I am extremely sensitive to any and all medications. I currently take lexapro, busparione, np thyroid, iron, Xyzal, semiglutide super microdose, and multiple vitamins. I have propanol and Xanax incase the panic attacks are too much for me to tolerate. Then I have terrible side effects from the meds.😩 I can’t win! Idk if I took a tad too much semiglutide as I have to draw my own dosage, but the panic attacks started again last night and I am feeling it come on again as I lay in bed for the night. I don’t know if it is hashimotos or semiglutide. Last month during my cycle, I was experiencing burn out and depression so bad, I was just surviving. After my period ended by the third day I was back to myself. I am wondering what does everyone do to get through the anxiety/panic and depression? I do see a psychiatrist and therapist and I have been stressed lately. But I need advice big time. I’ve only had hashimotos two years.
What does everyone experience with this disease. The good( if any) and the bad. During a flare or everyday.
What does everyone experience with hashimotos? Anything and everything.
Long story short, I have numerous autoimmune diseases going on. I take a ton of meds. Dr prescribed me liquid LDN so I can start super low and slow, but I just can’t seem to take it. I have ptsd with taking medication, thanks to a horrific medication side effect. I am also on having a horrible period and depressed and anxious from that and having a mild flare from it. I have crying all day, so I’m not sure if it’s a good idea to even start today. Just looking for some advice and maybe some positive thoughts.