u/Admirable_Ad8485

hey everyone! i'm a student passionate about health equity and recently learned about the horrors rampant in the dialysis industry (from market manipulation to the prioritization of profit over patients). it's become abundantly clear to me that in many cases, patients in dialysis facilities feel like they're treated as objects on an assembly line rather than people who deserve dignity.

to dialysis patients and/or caregivers, i was wondering:

1. i heard some patients say that sitting on the dialysis chair for multiple hours every week can feel like prison and be psychologically challenging, despite the necessity of the procedure. do any of you relate? what are the most exhausting aspects?
2. how do you navigate meals and diet? how about meals during family gatherings/holidays/cultural events?
3. what is the relationship dynamic like with your care team? are you treated as an equal partner or do you feel like your voice is limited?
4. what moments make you feel supported during dialysis treatment and outside the dialysis facility?
5. what effect, if any, do interactions with patients sitting next to you in the dialysis facilities have on your experience?
6. what inconveniences, if solved, would enhance your quality of life? what positive experiences, if amplified, would enhance your quality of life?

i'm deeply grateful for any and all reflections that you all would be willing to share.