u/AnnualBoth1818

I've had type 1 diabetes for about six years.

Even though I've explained to my doctor that my blood sugar drops when I lie down, they say the cause is unknown.

Has anyone else had a similar experience?

Pattern: Lying down immediately after eating

My blood sugar rises to around 250 over about an hour, then settles down to between 70 and 150 within three hours of eating, sometimes even dropping below 70.

If I sit up and do some activity in between, my blood sugar starts to rise again.

A pattern of activity, such as sitting in a chair, for 3 to 4 hours after eating:

The blood sugar level rises to around 250-300 within 30 minutes, and then remains within that range.

Afterward, lying down causes the level to drop to between 70 and 150 for about 30 minutes to an hour.

Lying Position

Lying on your left side >> Lying on your back; lying on your left side clearly lowers blood sugar more effectively.

You can play games or do other activities while lying on your left side. Any position that allows you to lie on your left side is fine.

A curious point:

Continuing to lie on your left side for extended periods (more than 4 hours) diminishes the effect.

However, sitting or being active for about an hour and then lying on your left side again restores the blood sugar-lowering effect.

The lower limit of blood sugar levels is around 40 to 50.

Lying on your right side generally doesn't lower blood sugar; it either increases or remains stable.

Additional Information:

Even after drinking an amount equivalent to 50g of carbohydrates, such as Coca-Cola (regular version, not diet cola), lying on your left side immediately after drinking keeps blood sugar levels around 170.

However, even slight standing or sitting activity raises it to around 250. Even at around 250, lying on your left side reduces it to around 200.

*Starting with a blood sugar level of around 100, no additional insulin was administered at this time.

I used a translation tool, so the grammar might be incorrect. I apologize.

I am a 24-year-old Japanese male. I was diagnosed with type 1 diabetes about six years ago.

I have been experiencing IBS-like symptoms for about 15 years. A colonoscopy four years ago showed no abnormalities.

I have a bowel movement at least four times a day.

The symptoms described here predate my type 1 diabetes diagnosis; specifically, they appeared around the time my IBS-like symptoms began.

Nothing has changed since I was diagnosed with type 1 diabetes.

Specific Symptoms

* Gas-related

Frequent gas.

After meals, there's a feeling of bloating, and even when lying down immediately, stomach noises occur.

If I sit in a chair for several hours after eating without lying down, and then lie down, stomach noises always occur, and I almost always pass a lot of gas.

If I'm active for more than 6 hours after eating without lying down, and then sit on a train seat, I always hear a sound like boiling water coming from inside my stomach.

* Abdominal Numbness (Occasionally)

Regardless of the food I eat, my stomach sometimes becomes numb after meals, making it impossible to stand with my back straight. At this time, my stomach feels very bloated.

If I lie down in this state, I always pass a lot of gas. However, the numbness doesn't completely disappear. It only disappears after sleep.

After the numbness starts, within about 10 minutes, the numbness becomes so strong that I can't stand unless I bend my waist to almost 90 degrees. Lying down early can significantly reduce the intensity of the numbness.

- Intermittent bowel movements (occasionally)

Regardless of what I eat, I always experience intermittent bowel movements for about 30 minutes, starting with the second bowel movement.

If I don't flush the toilet midway, the amount of stool will exceed the toilet water level slightly. The amount of stool I pass in 30 minutes is equivalent to 3 to 4 times the amount of my first bowel movement in the morning.

When this symptom occurs, I experience numbness similar to the abdominal numbness mentioned earlier. My anus becomes painful within the first few minutes, and the pain lasts for nearly 30 minutes. Once the pain subsides, the bowel movements stop.

On the day following this symptom, I have at most one bowel movement. The next day, it decreases significantly to about one or two. From the second day onwards, it returns to the normal minimum of four bowel movements.

The stool produced during this symptom is not soft, but firm and solid.

If you have similar experiences or suspect you might have a specific illness, please leave a comment.
I used a translation tool, so the grammar and sentence structure might be awkward. I apologize.

I wear the Dexcom G7 on the back of my arm and have noticed a very specific pattern of bleeding that differs from my previous experience with the FreeStyle Libre. I’m curious if this is a known design-related issue.

1. Bleeding at Insertion (Common to both G7 and Libre)

To be clear, I experience bleeding immediately after insertion with both devices. On average, this happened about 1 in 3 times with the Libre, and it has decreased to about 1 in 5 with the G7. When it happens with the G7, blood often drips steadily from the small circular hole in the center of the sensor for 5 to 10 minutes.

2. Delayed Bleeding during Sleep (Unique to the G7)

The issue that is exclusive to the G7 is delayed bleeding that occurs while I am asleep.

The scenario is as follows: I insert the sensor and see no blood at all. Several hours later, I take a bath. Then, upon waking up the next morning, I find that I have bled during the night. This typically occurs 5+ hours after the initial application.

This specific "nighttime bleed" after a clean insertion never happened once during my time using the FreeStyle Libre. It only started occurring after I switched to the G7.

My Questions:

Is this just "bad luck" hitting a vessel,

How do you handle a sensor that drips for 5-10 minutes? Do you find it still gives accurate readings once the blood dries?

Has anyone else noticed this specific difference between the Libre and the G7?

I’d appreciate any advice on whether I should just accept this or if there's a better way to manage it.

※Since I'm using a translation tool, the nuances and grammar might be off.

On very rare occasions, I experience a sudden sensation that feels exactly like I’ve been struck hard in the back of the head just once. This happens regardless of whether my blood sugar is high or low.

At the exact moment it happens, my head jerks forward significantly. The best way to describe it is that it's similar to the "falling sensation" you sometimes get while drifting off to sleep.

The physical jolt itself happens only once per episode, but I feel "off" or strange for about 30 seconds afterward.

Since these symptoms started appearing after I was diagnosed with Type 1 Diabetes, I consulted my doctor and underwent various tests, including an EEG. However, all the results came back normal, and I was told there are no issues.

Has anyone else experienced similar symptoms or had a similar experience? I would appreciate any insights.

I used a translation tool, so the grammar might be incorrect.

Background & Timeline:

• Demographics: 24-year-old male from Japan.
• Timeline: My GI issues started around age 12. I was later diagnosed with Type 1 Diabetes (T1D) at age 20. The gut issues started 8 years before the diabetes.
• Previous Exams: Had a colonoscopy 3 years ago. The doctor found no issues with my colon and suggested it was likely just IBS.

Bowel Movement (BM) Patterns:

• Frequency: I have at least 4 BMs every day. During flare-ups, this goes up to 8 times a day.
• Pain vs. Volume: During flare-ups, 4 of the BMs have a normal/large volume, but the other 4 are very small. Despite the small volume, the abdominal pain is extremely intense—the pain level doesn't seem to match the actual amount.
• Clustered BMs: Sometimes I have back-to-back BMs continuously for about 30 minutes.

Main Symptoms & Triggers:

• Anxiety/Timing: I always feel sharp pain and need to use the toilet right before leaving the house or during transit (trains/cars).
• Anticipatory Stress: If I have plans at 7:00 PM, I get pain just before then. If the person I'm meeting is late, I immediately get another wave of pain and urgency.
• Postural Trigger: Standing perfectly still for a long time almost always triggers abdominal pain and a BM.
• Post-Meal Urgency: I usually have a BM about one hour after eating.

Physical Sensations:

• Sounds/Rumbling: If I lie down shortly after a meal, my stomach rumbles loudly. If I wait a few hours before lying down, it happens nearly 100% of the time.
• Internal Bubbling: If I stay upright for 6 hours after eating and then sit vertically, I hear/feel "bubbling" sounds inside, like passing gas underwater.
• Abdominal Numbness: Occasionally, my abdomen feels "numb" or "tingly," which only goes away after I sleep.

The "Onion Soup" Exception:

• Around age 14, I had a specific onion soup on two occasions. Within 15 to 30 minutes, everything I had consumed passed straight through and came out as liquid.

My Questions:

1. Could this be SIBO? Does the extreme reaction to onion soup and the constant internal bubbling/gas sounds sound like SIBO to you?
2. Celiac Disease? Since I already have one autoimmune condition (T1D), could this be Celiac, even if my colon looked fine during the colonoscopy?
3. Other possibilities? Could these "IBS-like symptoms" actually be something else, like Bile Acid Malabsorption or autonomic issues, especially given the postural triggers?

I would really appreciate any thoughts or similar experiences.

※I'm using a translation tool.