F22, unsure if this is ibs or something more?
Hi, I'm 22 with lifelong bowel issues. Recently I've been wondering if this is simple ibs or something more?
History:
When i was a child I was born with an overly elasticated bowel which caused severe incontinence, constipation, overflow and diarrhoea. Whilst this progressed into my early 20's other symptoms developed along the way.
I have always got an urgent bowel, despite where it'll sit on the Bristol stool chart. There will always be no warning and just sudden 'i need to go right now' or there'll be an accident.
My symptoms do also severely worsen with fibre filled foods and foods with high fructans. I've found that eating less of this does help my looser stools, however doesn't really help my pain or urgency.
The pain i get before, during and after a bowel movement is extreme. I get severe pain of a 9/10, needing to rock back and forth or hunch over. This pain is deep in my left side usually, and then spreads to my whole lower abdomen during and after a bowel movement.
My bowel movements can change from anywhere between 6 to 1 on Bristol stool chart. Sometimes my stools are thin, 6cm long and sometimes its like mush is evacuating me at speed of light. I also never feel empty, and will often need to go back to the toilet within an hour.
I've tried low fodmap, it does nothing for me. I've tried cbt for gut-brain connection, and again it does nothing for me. I am exhausted, my bowels control my whole life at this point and I genuinely don't have any idea what's going on for them.
I have had previous investigations which showed inflammation on my colon but my stool test came back normal so i was discharged. And then a recent laprascopy showed my bowel distended and irritated. I also had a gp recently say how she thinks I have laxity in my bowel and pelvic floor dysfunction which I know could be playing apart..
I'm genuinely stuck on how to get better, what helps, where to go with any of this. I am so stuck, I can't function like a normal person with the way my bowel is.