Oxycontin or Methadone? Year 28!
I've had rls for 28 years and been through all the other major meds. My MD is gone until 9/9. He hasn't really been all that much help. The nurse, who can't change a script, has been more help. After months of living hell, I finally got the dosage for Oxycontin right (10 mg at 9pm; 2.5 mg of IR at 10 pm.) That's worked for 5 nights, if you don't count tonight, so my respite might be over. I can hear the torturer at the door.
Anyway, prose aside, and assuming it will start working again; Medicare is denying the Oxy script, even with a Prior Authorization. Does anyone know if resubmitting it will work?
I haven't had any problem with the Oxycontin, as long as I take it at night. I hope this night is an exception and I'll go back to being able to sleep. The MD who's covering for my person has suggested methadone but I've heard terrible things about it. Also, I tried it years ago, but no one has said they looked at that MD's notes to tell me why I didn't keep taking it or what the dosage was; I know I was taking it because I still have some.
Things have been so hard and their still not great. I have a lot of rls from 6-10, but even though I could take more short acting, I don't because taking too much gives me migraines. I just don't feel strong enough to go through another transition. And I can't pay for it out of pocket, $200/mth! I have Good RX, bu the problem is the Prior Authorization. I really resent this; decent medicine, another privilege of the very privileged.
Anyway, I also know and have been told that methadone is hell to come off of. The really bitter pill is that I probably would never come off it. Or if something better comes along, I'd be on a very high dose at that point, which makes coming off it even harder. I've also heard its a much more toxic drug. The upside seems to be price and maybe duration, it could last longer.
But the transition! Working out how much to take and coming off the Oxy, I just don't think I'd make it through. I'm completely worn out. I had a precious 5 nights of 6 hours of sleep a night. I don't want to give that up. It really feels like a rock and a hard spot.