▲ 2 r/lupus

How to sleep comfortably?

howdy! i've been managing lupus rather well these last couple of years since my diagnosis, but one thing has consistently stumped me. sleeping on my back or laying down at all can sometimes cause piercing chest and shoulder pains! usually I have to sleep sitting up, and i've only recently been able to sleep in a bed properly again. for awhile now, i've been stuck to my couch with additional pillow supports. however, i'm starting to feel as if the couch is starting to negatively affect my other joints (namely my back and knees) so i'd like to hopefully switch back to sleeping in a bed. which... requires a new mattress and likely some advice.

does anyone else experience issues sleeping? waking up with stiff/locked joints, painfully sore joints, or sharp shoulder and chest pain after sleeping? if so, what helps aside from just more pain medication? and what type of mattresses would likely help, or has helped for you? at the moment, i'm looking at memory foam and pocket coil mattresses. considering how expensive quality mattresses are though, and how new i am to navigating lupus (less than 10 years), i'm really looking for advice. thank you for reading, and double thanks if you have any input to share :)

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u/Ashamed_Way_3110 — 10 days ago

finding inscryption fan fics/writing?

howdy howdy. posting because i've been havin a rough time of it lately and that's turned me back to finding comfort from one of my favourite medias, Inscryption! figured maybe some fellow Inscryption fans would be able to help as well :)

does anyone in this sub know of any good leshy fics? seems everytime i try and find them myself i'm flooded with po3 fics instead or sometimes even the cult of the lamb character instead. i wasn't even going to bother asking here but i figured what's the harm. hopefully finding and reading some leshy-themed comfort will keep me occupied while i try tackling Skull Storm again OTL ^^"

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u/Ashamed_Way_3110 — 3 months ago

[A4A] LF a friend for fandom-based rp

A small blurb about myself before I get to the actual info 'n all. I'm afab NB & 23 years old (and would prefer others that reach out to me to be *at least 20*), dealing with chronic pain/illness, a bit of an introvert and furry/dragonkin. I'm rather lax and laid back when it comes to roleplaying, but i'd consider myself semi-literate? I usually try and match the response length of my partners but aside from that my responses are usually 2\~4 paragraphs and I primarily write in the 3rd person. I've been roleplaying kinda inconsistently since I was about 12~13 on google docs, chat forums, and discord!

I'm looking for a partner that matches my variety of roleplay genre's and tropes. I dabble in Light/Modern Fantasy, Sci-Fi, Fandom/Game based, and more! I don't list Romance as a genre as I tend to not really enjoy forcing romance. I like *weaving* romances into the plot/story, and I love watching the characters develop. I really only ever rp with OC's as well, but if I know the base material well then I shouldn't mind all too much if you prefer playing as CC. I'm also looking for someone who is comfortable with long periods of off-rp downtime, I tend to heavily rp when I can handle due to chronic pain flare ups but I'm usually available to yap about developments, plot, or even creation/worldbuilding.

As for the types of actual media, it's a long list but here's what i'm interested in and take inspo from! Please dm me if you're interested in any of these ideas and think we'd vibe well! :)

i'd absolutely prefer something about Overwatch right now, please please please reach out if you'd like to yap about and build on OVW lore with me

* Games: Night in the Woods, Cult of the Lamb, Final Fantasy 7 & 10 & 14, Monster Hunter, Look Outside, Inscryption, Undertale, Minecraft, Fallout 4, Hollow Knight/Silksong, Legend of Zelda, and probably way more that i'm forgetting

* Books: Lunar Chronicles, Warrior Cats, Percy Jackson/Heroes of Olympus, the Inheritance Cycle, Waterfire Saga, and the Life of Pi

* Movies/Shows: Supernatural, Fullmetal Alchemist: Brotherhood, How to Train Your Dragon, Blue Exorcist, Stranger Things, GOAT, Fairy Tail, Marvel Cinematic Universe (up until Endgame and a little after), The Apothecary Diaries, Demon Slayer, Beastars, Brand New Animal, Gravity Falls, Avatar:The Last Airbender, Zootopia and *maybe* My Hero Acadamia

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u/Ashamed_Way_3110 — 3 months ago

[23NB|CAN]༄꠶ 𓆝 ˖ 𓆟 Looking for Close & Long Term Friends 𓆟・𓆝 ༄。°

Howdy and hello! A small introduction about myself first, so hopefully I can get my vibes across. I'm 23 AFAB Nonbinary and a bit of an introvert in some aspects. I've been dealing with chronic pain/illness for quite some time as well, and tend to be kind of sporadic in my activity. I'm a tad bit hesitant to get to know other people as i'm a bit shy and slow to open up to people, but I very much would like new and close friends. I usually make friends through shared media and worldbuilding/ocs since I do love yapping about my fixations so much oml. I miss nerding out about stuff we both understand and like lmao. I also don't really have much social media as I really only use/check Tumblr, Toyhouse ig, and Reddit, and I only really chat via Discord. More about myself I'm a dragonkin/therian ig, unsure about the labelling, but at the basis i'd confidently say I'm at least a furry. I have 2 fursonas atm and I love getting art or making art of them when I can. I grew up in the Deep South of the USA and am immigrating to Canada, and tend to be rather liberal ig? Idk, I just care a lot about a lot of issues/problems. I'm also married, been happily together for 5 years now and married for 3, so i'm not looking for any romantic connections at all. I'd also say i'm rather a bit of a Nostalgic Nerd. I grew up on Wattpad, various Animes, Animal Jam, and Character Building Trauma TM. I'm a bit... like a weird shelter dog with friendships/energies that I bond with, as I'm a bit of a vibrant mess of a person, so I hope this info was a helpful glimpse at my vibes.

As of what I usually love, here's just a little bit of media, fandoms, or topics I adore and tend to cycle through.

  • Favourite Things - Moss, Teriyaki Chicken Donburi, the colours #64825a and #f7d2dd, plush/soft/velvet textures, Stuffed animals, floral flavours, Iced/Hot Lavender London Fog lattes, Goodra and Slowpoke, 3DS/Switch consoles, being kinda cringe and doing what I like to be happy
  • Topics - Speculative Biology, Gender Theory ig???, Animal Husbandry/Rearing, Foraging/Gardening/Cottagecore/Nature themed stuff, Culinary/Cultural Worldbuilding, Religious Pantheons, Alterhumanity, and uhhh Experimental Baking ig?
  • Games - Flight Rising, Pokemon, The Legend of Zelda (OoT, MM, BotW/TotK, AoI, SS, TP), Night in the Woods, Cult of the Lamb, Final Fantasy 7 & 10 & 14, Monster Hunter (Rise, Worlds, Wilds, Stories 3), Look Outside, Inscryption, Undertale, Minecraft, Fallout 4, Hollow Knight/Silksong, Creatures of Sonaria, Okami, Overwatch, and most recently Classic WoW. Lowkey, also any games with cute/cool Cooking or Fishing mechanics. I'm a big lover of fishing and cooking in like... any and every game-
  • Shows/Movies/Anime - Hand-drawn Disney Renaissance Era movies, GOAT, Supernatural, Fullmetal Alchemist: Brotherhood, Bee and Puppycat, How to Train Your Dragon, Blue Exorcist, My Little Pony, A Whisker Away, Stranger Things, Fairy Tail, Marvel Cinematic Universe (up until Endgame and a little after), The Apothecary Diaries, Demon Slayer, Beastars, Brand New Animal, Gravity Falls, Avatar: The Last Airbender, Zootopia, My Hero Acadamia, Bluey, Over The Garden Wall, and any Nature Documentary narrated by David Attenborough lmao
  • Content Creators - Markiplier, StephenPlays, Serpadesign, Slimecicle, Viva La Dirt League, Pointcrow, Smallant, Binging with Babish, Supertf, Seanie Dew, MunchingOrange, Townsends, Snake Discovery, Legends of Avantris, Black Forager, DancingBacons, tanksfornuthin, and mummy joe
  • Books - Wings of Fire, Warrior Cats, Percy Jackson/Heroes of Olympus, The Inheritance Cycle, The Life of Pi, Waterfire Saga, The Lunar Chronicles
  • Music/Songs - 90s R&B, Indie/Alternative, Dream Pop, Shoegaze??, Game OSTs, 2000s Pop/EDM, 80s Pop/Rock, Lofi, Kali Uchis, Tyler the Creator, Doja Cat, Hozier, Men I Trust, Glass Animals, and more. I have like 200 playlists, i listen to everything from like thquib/pogo to Avenged Sevenfold/Korn, to SWV/Mary J Blige to The Marias/Joji, to Adrienne Lenker/Billie Holiday. Idk how to describe my music lmao.

DNI if: (genuinely don't have the energy or mental space for thi

  • you support trump, no thank you goodbye
  • you're anti-LGBTQIA2S+, i'm labelled NB and have weird thoughts about gender, I don't want to try and discuss cool gender theory and be met with hatred and closed mindedness lmao
  • you're under the age of 18, i'm 23 and would prefer to have close friends around my age
  • you're overly sensitive and chronically online ig? idk, i'm just not one for constant internet drama or fighting or callouts and constant negativity
  • you're impatient or have intense friendship decay, I often have flares of chronic pain or cycles of mental illness, sometimes I will have to recover by ignoring damn near everything other than myself. I'm a very chatty person and tend to communicate my needs and boundaries well, but I don't want to constantly have to "babysit" ig lol

Anyways. Yeah hi, that's me. Please lmk if you think you'd wanna be friends? Would love to maybe yap and see if there's anyone else out there that would mesh well with my kind of vibes. It's been a rather lonely winter and I'd love to find some new friends to share my life experiences, my complicated thoughts, and cool vibes. Pog ig. Yay ^w^

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u/Ashamed_Way_3110 — 4 months ago

[23NB|CAN]༄꠶ 𓆝 ˖ 𓆟 Looking for Close & Long Term Friends 𓆟・𓆝 ༄。°

Howdy and hello! A small introduction about myself first, so hopefully I can get my vibes across. I'm 23 AFAB Nonbinary and a bit of an introvert in some aspects. I've been dealing with chronic pain/illness for quite some time as well, and tend to be kind of sporadic in my activity. I'm a tad bit hesitant to get to know other people as i'm a bit shy and slow to open up to people, but I very much would like new and close friends. I usually make friends through shared media and worldbuilding/ocs since I do love yapping about my fixations so much oml. I miss nerding out about stuff we both understand and like lmao. I also don't really have much social media as I really only use/check Tumblr, Toyhouse ig, and Reddit, and I only really chat via Discord. More about myself I'm a dragonkin/therian ig, unsure about the labelling, but at the basis i'd confidently say I'm at least a furry. I have 2 fursonas atm and I love getting art or making art of them when I can. I grew up in the Deep South of the USA and am immigrating to Canada, and tend to be rather liberal ig? Idk, I just care a lot about a lot of issues/problems. I'm also married, been happily together for 5 years now and married for 3, so i'm not looking for any romantic connections at all. I'd also say i'm rather a bit of a Nostalgic Nerd. I grew up on Wattpad, various Animes, Animal Jam, and Character Building Trauma TM. I'm a bit... like a weird shelter dog with friendships/energies that I bond with, as I'm a bit of a vibrant mess of a person, so I hope this info was a helpful glimpse at my vibes.

As of what I usually love, here's just a little bit of media, fandoms, or topics I adore and tend to cycle through.

  • Favourite Things - Moss, Teriyaki Chicken Donburi, the colours #64825a and #f7d2dd, plush/soft/velvet textures, Stuffed animals, floral flavours, Iced/Hot Lavender London Fog lattes, Goodra and Slowpoke, 3DS/Switch consoles, being kinda cringe and doing what I like to be happy
  • Topics - Speculative Biology, Gender Theory ig???, Animal Husbandry/Rearing, Foraging/Gardening/Cottagecore/Nature themed stuff, Culinary/Cultural Worldbuilding, Religious Pantheons, Alterhumanity, and uhhh Experimental Baking ig?
  • Games - Flight Rising, Pokemon, The Legend of Zelda (OoT, MM, BotW/TotK, AoI, SS, TP), Night in the Woods, Cult of the Lamb, Final Fantasy 7 & 10 & 14, Monster Hunter (Rise, Worlds, Wilds, Stories 3), Look Outside, Inscryption, Undertale, Minecraft, Fallout 4, Hollow Knight/Silksong, Creatures of Sonaria, Okami, Overwatch, and most recently Classic WoW. Lowkey, also any games with cute/cool Cooking or Fishing mechanics. I'm a big lover of fishing and cooking in like... any and every game-
  • Shows/Movies/Anime - Hand-drawn Disney Renaissance Era movies, GOAT, Supernatural, Fullmetal Alchemist: Brotherhood, Bee and Puppycat, How to Train Your Dragon, Blue Exorcist, My Little Pony, A Whisker Away, Stranger Things, Fairy Tail, Marvel Cinematic Universe (up until Endgame and a little after), The Apothecary Diaries, Demon Slayer, Beastars, Brand New Animal, Gravity Falls, Avatar: The Last Airbender, Zootopia, My Hero Acadamia, Bluey, Over The Garden Wall, and any Nature Documentary narrated by David Attenborough lmao
  • Content Creators - Markiplier, StephenPlays, Serpadesign, Slimecicle, Viva La Dirt League, Pointcrow, Smallant, Binging with Babish, Supertf, Seanie Dew, MunchingOrange, Townsends, Snake Discovery, Legends of Avantris, Black Forager, DancingBacons, tanksfornuthin, and mummy joe
  • Books - Wings of Fire, Warrior Cats, Percy Jackson/Heroes of Olympus, The Inheritance Cycle, The Life of Pi, Waterfire Saga, The Lunar Chronicles
  • Music/Songs - 90s R&B, Indie/Alternative, Dream Pop, Shoegaze??, Game OSTs, 2000s Pop/EDM, 80s Pop/Rock, Lofi, Kali Uchis, Tyler the Creator, Doja Cat, Hozier, Men I Trust, Glass Animals, and more. I have like 200 playlists, i listen to everything from like thquib/pogo to Avenged Sevenfold/Korn, to SWV/Mary J Blige to The Marias/Joji, to Adrienne Lenker/Billie Holiday. Idk how to describe my music lmao.

DNI if: (genuinely don't have the energy or mental space for thi

  • you support trump, no thank you goodbye
  • you're anti-LGBTQIA2S+, i'm labelled NB and have weird thoughts about gender, I don't want to try and discuss cool gender theory and be met with hatred and closed mindedness lmao
  • you're under the age of 18, i'm 23 and would prefer to have close friends around my age
  • you're overly sensitive and chronically online ig? idk, i'm just not one for constant internet drama or fighting or callouts and constant negativity
  • you're impatient or have intense friendship decay, I often have flares of chronic pain or cycles of mental illness, sometimes I will have to recover by ignoring damn near everything other than myself. I'm a very chatty person and tend to communicate my needs and boundaries well, but I don't want to constantly have to "babysit" ig lol

Anyways. Yeah hi, that's me. Please lmk if you think you'd wanna be friends? Would love to maybe yap and see if there's anyone else out there that would mesh well with my kind of vibes. It's been a rather lonely winter and I'd love to find some new friends to share my life experiences, my complicated thoughts, and cool vibes. Pog ig. Yay ^w^

reddit.com
u/Ashamed_Way_3110 — 4 months ago

Looking to join vanilla+ SMP || Looking for 2 mods specifically

Howdy! A friend suggested I should look for some minecraft SMPs to join as I can't seem to find other games to scratch the itch and minecraft seems to be the closest one to what I want. However, I'm a bit picky as i'm really just looking for a few things. Here's what I'm looking for mostly!

  • 18+ server - I'm 23 atm and honestly would rather not share spaces with someone who's like... 12~15.
  • Farmer's Delight + ANY Fishing mod addons - This is a MUST. I'll really only join if there's Farmer's Delight but would LOVE if there's other Delight addons or compatibility mods. As for the fishing, I really love Aquaculture 2 but honestly, anything that just spices up the fishing a bit is welcome.
  • Semi-active community w/no pressure - I often take breaks from Minecraft as I'm chronically ill and sometimes can't be at my PC for days to weeks. I wouldn't want to feel stressed or anxious over not being active either way, whether I'm well enough to be on my PC or not.

Those are really the only things that I really need. Other than that, I'm open to vibe! Discord? Sure! Roleplay/lore? I haven't in ages but I could try! Trading? Awesome, I can trade my meals. Extra modded addons? Why not! I honestly really just want to cook, fish, and farm in a world that doesn't feel lifeless. ^-^

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u/Ashamed_Way_3110 — 5 months ago

Looking for a game with Fishing/Hunting/Gardening & Cooking that doesn't feel lifeless?

Howdy! I have a bit of an odd request as I don't really know any types of games that perfectly scratch this itch, just a few games I've tried that get CLOSE. I'm looking for a game that has fishing or hunting where I can then cook what i caught! Gardening is also included but I'm not super stuck on it also having gardening. I'd like to have a REASON for making meals and gathering/hunting as well, preferably the reason being for other people mayhaps? I hate feeling alone in games or like the world is empty or lifeless :(

Some games that have gotten close to what I'm looking for are

  • Breath of the Wild/Tears of the Kingdom - Feels very alive and I loved hunting deer and boar. Jumping into bodies of water to grab fish was also pretty nice, but I'd rather fish via a rod with like some kind of mechanic. I ADORED the cooking in these games as well, even though it was super small and limited. I loved finding the recipes and collecting stuff to make them, although after I finished the game and replayed it over and over, I found it lost the allure of it. I played the functions I loved to the point I didn't need to do them anymore ig.
  • Minecraft - I love modded minecraft! Especially with Aquaculture 2, farmer's delight, and all the extra Delight compatibility mods and addons. The problem is that it feels very... dead and lonely. I don't have friends to play my modpacks with me, so I end up just making modpacks that serve to scratch the itch perfectly and only play for like an hour or two before abandoning it due to it just feeling so lonely and quiet. The food piles up, the builds go unused, and the hunting/gathering just feels useless when i'm the only one.
  • Stardew Valley - Love the fishing and the farming is pretty okay? I hate the stress and limitations of the energy and time mechanics. I never play for longer than a season or two because it just gets to be too much! Even with mods making the game prettier and easier, I just can't stand how stressful it begins to feel after awhile...
  • Webfishing - LOVE LOVE LOVE the fishing mechanic! I wish the creator had been allowed to make more updates and flesh out the game more. I've caught everything in the game and go back occasionally to see if I can catch all the rarities. I love how people just vibe and chat as well. It feels like a breath of fresh air. Sadly, I can't cook or eat or prep the fish we catch, so it only scratches the itch partially.
  • FFXIV - The fishing is pretty neat, and the cooking is rather nice as well. The problem lies in I can't really afford the consistent subscription and sometimes it's really overwhelming. I just want to kinda mindlessly make cool foods sometimes. Even though I've finished Dawntrail... the leveling, the weather tracking, the gear upgrading, and the constant juggling is very... not a vibe.
  • Pokopia - ADORE the cooking mechanics, and the gardening and harvesting mechanics for the berries and everything else is so awesome!! Sadly, there's no fishing or hunting and I tend to get burnt out on building and clearing out areas rather quickly. Besides gifting, there's not much to do with the food if I'm not eating it either. So close to being exactly what I want though...
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u/Ashamed_Way_3110 — 5 months ago