I’m struggling hard. My oxygen is 99% but I feel starved for air. I hate this… it’s scary. I don’t know what the hell to do.
Just finished the week of meds. But my head is killing me and I can’t breathe.
Any advice is welcome!
For too long I just did what I wanted. Ate what I wanted. Dealt with consequences. Stayed home.
And after two years of that I see why we can’t just do that and I’m working on coming back from that.
It’s so strange because at first I didn’t even lose weight. I had diarrhea and went on.
What I didn’t realize was that my body was existing solely on my muscles and stuff!
Now that I don’t HAVE that stuff, my body is losing fat. Pretty quickly.
My labs have crashed so I get infusions and supplements when needed.
Insurance won’t cover nutrition shakes.
And I’m starting to want to be ok with the non vegetarian Creon just to survive. To thrive with it. I take it more.
I also eat very little… because over time I became food avoidant. Unless I hit my vape.
I’m weak from lack of muscle. My body doesn’t feel right. And vitamins depleting constantly is not good.
This is just me confessing so you don’t have to put yourself thru it.
I can’t seem to handle any heat at all. And it’s about to be super El Niño. I’m supposed to spend weeks in the woods this summer. I want to have a life…
I can’t handle cold either.
My body isn’t regulating temperature at all.
Is this a problem for others and if so, what do you do to survive heat and cold? Especially heat… because I can’t get naked enough. Seriously.
Last night I decided to try a spinach soufflé. I can’t eat raw greens at all. Or most vegetables. Which is awful because I’m a vegetarian. My diet has become miserable. Sometimes I don’t even care if I shouldn’t have it - pizza sounds good and fuck it, I’ll eat. But vegetables are worse. Along the lines of quinoa and lentils and seeds. Sometimes I don’t care if I have Creon. I’ll eat. I have no discipline.
So today I’ve spent the entire day in the bathroom popping green water. Mostly.
I’m depleted.
I actually thought maybe I could eat spinach that way. All cooked down. I was so wrong. I’m considering a trip in for an IV.
I just had labs done. Low D, B12, B6 and K.
My neurologist ran labs because the brain fog has gotten so bad. I was surprised my metabolic panel was ok. Iron was ok. Folate was ok. Copper was ok. I’ve had like two meals in weeks.
She didn’t test A or E.
Perhaps this explains some of the awfulness lately.
Hygiene for Homeless women