What more can we do for my twins? (4 year old / LEVEL 3)
They were both diagnosed at 2.5 years old with level 3 autism. As first-time parents, we didn’t initially recognize many of the signs, especially since they were born prematurely and spent an additional four weeks in the hospital after birth. Because of that, some of their early developmental differences didn’t stand out to us.
When we received the diagnosis, we still didn’t fully understand what “level 3” meant in practical terms. From our perspective, both children were generally happy in daycare and rarely showed significant behavioral concerns, aside from our daughter’s feeding challenges. We were surprised by the diagnosis and initially had a period of confusion, followed by a short grieving process as we began to process what it meant for their future.
After that, we quickly started researching and contacting ABA providers. We were fortunate to find a program that could provide full day ABA services directly at their daycare, five days a week, which was important to us because we wanted them to remain in a typical daycare environment with their peers.
Around age 3, they also began speech therapy twice a week. Their initial evaluations showed our son functioning about one year behind developmental expectations and our daughter about two years behind.
They are now 4 years old and have made steady progress. Both are still nonverbal, our son does have words for requesting, but is not conversational, but they do well with routines, sleep, and transitions, they are harmful to themselves and are able to tolerate community settings like restaurants, stores, and family gatherings.
I often read about other parents describing very difficult day-to-day experiences, and sometimes I wonder if we may not fully recognize the extent of challenges because this is simply the only parenting experience we’ve known. We don’t have a typical developmental comparison point, since this is our first and only experience raising children.
At this stage, we’re mainly looking for guidance on what additional supports or strategies we can continue to add to better help them develop and thrive going forward.