u/BigEntertainer5577

WHEREYEWIT?

This is very hard to write. I am in shock. This is apparently a test I wasn’t even supposed to have had because I’ve never had an outbreak at least not to my knowledge. I bought it as an add on on Jason health blood test.

My value for hsv 2 igg ab is 10.80, which is quite high. I spoke to a dr who said if you’ve never had an outbreak you are not advised to take antivirals.

I understand my value is in positive territory and despite unreliability of test it is more likely positive.

I’m a very sexual person. This has me feeling absolutely crushed. The dr I spoke to (from justanswer) essentially said that more clarity is not possible.

I would write more here but I am in a deep state of shock and depression over this and could use someone to talk to whose situation is / was similar. I’m deeply sad because I had started to see someone with a fear of STDs that extends into being irrational because he would still be scared of getting it even though we have not done anything that could spread it (just using hands).

I’m so dejected I truly feel like my life is over.

This is very hard to write. I am in shock. This is apparently a test I wasn’t even supposed to have had because I’ve never had an outbreak at least not to my knowledge. I bought it as an add on on Jason health blood test.

My value is 10.80, which is quite high. I spoke to a dr who said if you’ve never had an outbreak you are not advised to take antivirals.

I understand my value is in positive territory and despite unreliability of test it is more likely positive.

I’m a very sexual person. This has me feeling absolutely crushed. The dr I spoke to (from justanswer) essentially said that more clarity is not possible.

I would write more here but I am in a deep state of shock and depression over this and could use someone to talk to whose situation is / was similar. I’m deeply sad because I had started to see someone with a fear of STDs that extends into being irrational because he would still be scared of getting it even though we have not done anything that could spread it (just using hands).

I’m so dejected I truly feel like my life is over.

The linked article discusses higher than normal CGRP levels in migraine as well as fibro sufferers and exploring CGRP as potential management. Although I have yet to get an official diagnosis of fibro, (working on it, probably will I just moved recently and need a PC) I (33f) experience to the letter fibro symptoms with my migraines and now independently of them, something that’s only become more prominent over the last 10 or so years and I’ve been dealing w migraines for 17 years. I’ve been participating in clinical research for vyepti, a CGRP-inhibitor given through IV infusion every 3 months (for my migraines) but the first infusion seemed to have also reduced my fibro pain. Now that it is wearing off, I’m flaring badly. Thankfully I have the next infusion tomorrow. I will keep track of the impact on my fibro symptoms as well, so I will let folks here know that goes if people are interested. Curious to know if any others here with migraine have noticed any overlap in terms of things that are helpful for both, or just generally have any thoughts on the relationship between the two or how they show up together or separately for you personally. Thanks!

https://www.medcentral.com/meds/utilizing-cgrp-antagonists-non-migraine-indications

Over the last decade or so my migraines have morphed into flares that match the description of fibromyalgia. I’m just curious if there are a good number of other folks here who also deal with this, because nowadays the head pain is the lesser aspect of my migraines and the widespread pain and fog/nausea/weakness/sensory sensitivity and eye pain is the more prominent part.

. Interestingly, I’ve been in a research study for vyepti and I’ve only had dose 1, which is now wearing off. I have the second infusion in a week - and it does seem that it’s been a while, even since before the first infusion I’d say, that I’ve had a flare this bad. So also wondering how others with fibromyalgia symptoms have done with CGRPs whether as abortives or preventives.

And otherwise, wondering what you’ve noticed about the relationship of migraines to flares or if they can even be separate in your case.