My son was just diagnosed with CP.
My child was recently given an official diagnosis of spastic cerebral palsy, and I’m trying to learn everything I can about the resources, benefits, and support that may now be available to our family.
He is currently receiving occupational therapy (OT), physical therapy (PT), speech and language therapy, and feeding therapy. He also recently started taking gabapentin.
I’m looking for as much information as possible regarding available services, financial assistance, early intervention programs, adaptive equipment, insurance benefits, nonprofit organizations, educational resources, and any other programs that could help him reach his fullest potential.
He is currently 14 months old (11 months corrected age). He is very attentive, social, and engaged. His motor skills are delayed, but he continues to make progress. He can roll, move around on his belly, and sit independently for about seven minutes. He has excellent head control, tracks people with his eyes, shows stranger anxiety, and is beginning to experience separation anxiety from his parents.
For those of you who have been on this journey, what resources, programs, grants, therapies, equipment, or organizations have made the biggest difference for your child or family? Is there anything you wish someone
had told you right after your child’s diagnosis?
I’m open to any advice or recommendations. Thank you for taking the time to help.