Needed nTOS advice :(
Hi everyone,
I’m 23F and I got “kinda” diagnosed with nTOS. We are still in the process of confirming it, but both of my last doctors told me they are 99% sure. I wanted to come on here and ask for advice. It has been about a year and a half since I’ve been dealing with this pain, it came out of nowhere… I wasn’t active at the time, I wasn’t playing sports, I was just in school studying hard. One day I woke up with a bad pain on the top of my shoulder going down my arm to my hand.
In the time this started, I have gone to 6 different orthopedic doctors since a lot pushed me off because my scans were normal. I’ve been to 3 ERs with no answers or relief (the drugs don’t work on me… the only drug that helped at the beginning was prednisone and they won’t give it to me again). I had x-rays and MRIs of both my spine and shoulder that came back normal. EMG perfectly fine. Now after waiting 2 months for an appointment I’m finally trying injections on Monday. Lido in pec minor and an SSNB. What’s after this? Not sure.
I did physical therapy for about 2 months and I know that’s not insanely long but that was my plan. My PT told me my mobility is back to normal and that’s the best they can do, that the pain won’t stop just from PT.
So now I’m stuck. I want something sustainable that’s actually going to fix whatever is going on. I don’t know how long the relief from either injection will last and I’m going to try PT again, but I really need a solution. I see on here that surgery for this isn’t the best idea and now it’s affecting me mentally. I am in unbearable pain. I cry at work multiple times a day, it’s hard for me to even be a good worker because a lot of the time I have to ask my coworkers for help because of my pain level. Nothing helps it. And it’s constant. I go to sleep with it, I wake up with it. This month has been an all time low for me, pain level 9/10-10/10 almost every single day.
I should also mention, last Thursday I had symptoms I’ve never experienced before my right hand got really pale and cold. I asked everyone to compare and they said the same thing. I don’t know if I’m just going crazy and overly freaking out from the pain, I’m just scared my problem is getting worse and, again, I don’t know where to go from here. Anything will help. Thank you :/