u/CuteAssCryptid

So I'm a sapphic omnisexual. My preference is feminine people, and I'm masc-leaning. Lesbians fucking hate me. I want nothing to do with cishet men, that's not my sexuality, and yet I'm treated like my love for women is not the same as theirs. That I need my own space with other bisexuals and I'm not allowed to be in lesbian spaces or call myself a d*ke because I don't love the same. But I do. When they don't know my sexuality? They treat me like one of them. Because they recognize that my feelings are the same as theirs.

But as soon as they find out I'm bi/omni suddenly I'm a scourge. Look, there ARE no spaces for omni women to meet other women. Wlw spaces should be for anyone wlw, not exclusive to lesbians only. I'm not seeking a man, I'm seeking a woman for christ's sake! And then they wonder why so many bi women end up with men when we're welcome nowhere. Look, I get that my experiences are slightly different. But... I can't be authentic and pass either. I'm queer af. What makes my love for women so fucking different from a lesbian's just because it's also possible for me to love a feminine man?

It pisses me off that when I am specifically looking to meet women who love other women, I'm treated as different and not welcome because of this. If I'm married to my wife for 40 years am I really not allowed to call myself a d*ke? Just because I think gender is a little bit arbitrary? I've been able to cool off and distance myself from most online arguments that make me angry but this one sticks with me. This one I find hard to shake. And I was wondering if anyone else experiences it this often like me and how you manage to let it go.

Hi all,

31f from Ontario Canada. We have one machine in Canada on the other side of the country that can test for CCI, and I can't afford the trip. Wondering if any Canadians here got a diagnosis without the trip? And if so, how? My contact at the arthritis society told me to send ext & flex xrays to a company in the US to have them interpret it but they aren't operating anymore. :/

Hi all,

31f from Ontario Canada. We have one machine in Canada on the other side of the country that can test for CCI, and I can't afford the trip. Wondering if any Canadians here got a diagnosis without the trip? And if so, how? My contact at the arthritis society told me to send ext & flex xrays to a company in the US to have them interpret it but they aren't operating anymore. :/

I am not asking for medical advice. This is a question for those specialized in reading brain MRIs in Canada (Ontario specifically if it makes a difference). My doctor is under the impression that all images and measurements for any condition are taken with a brain MRI regardless of what's mentioned in the request. So even though I was concerned specifically with intracranial hypertension, CSF leak or chiari malformation, which require specific measurements to assess, my doctor didn't include these in the request for a brain MRI. Is he right? If I get results back saying 'normal' even if these specific measurements are not mentioned, have they been looked at? Or do you really need to request them specifically? Thanks!

I'm okay at knowing my limits for physical exertion but how am I supposed to know how much phone time, sunlight or music is too much? Like when I'm already not doing well I can obviously tell I can't tolerate it. But how can I tell if listening to music when I feel well enough to will give me PEM a day or two later...? I've been doing well with managing my mecfs, it's improved from where it was so maybe it doesn't matter. But I don't know how you're supposed to monitor that.

Edit: I love everyone's comments here, genuinely some good advice along with dark humour 💃

I've gone from moderate-severe to mild-moderate over the course of a couple years and I'm a little confused about how to interpret my crashes now vs then.

I used to be in rolling PEM and basically I would be feeling fine then all of a sudden my legs would stop working and I couldn't hold myself up, and it eventually evolved into including migraines and deep malaise as well. I think I experienced it suddenly because it was actually from something I did a couple days prior but I didn't realize it at the time.

Anyway, these really bad paralytic-like episodes would last for minimum 2 days before getting better. But now, if one of these crashes start and I can lie down right away, I'm able to shorten the episode to like 6 hours? That seems really short for PEM so I don't know if it's still PEM or just a 'crash' (I also have POTS) but the starting signs are the same.

Hi everyone,

I don't know if I'm looking for advice as much as I just want to hear other experiences from the community and maybe get some reassurance.

My mecfs was in a really good place, averaging moderate with some mild days. I went on wegovy with the advice of my doctor because he didn't seem to have any concerns, and I've gotten to a point in my weight gain that I'm no longer comfortable with. I went on the lowest dose 0.25mg, and it was hell. Extreme nausea, extremely poor appetite (was only eating about 600cal/day), and major pots flare ups.

I went down to half a dose and am eating a proper amount now and the nausea is much better, but I'm still having issues with crashing more, low grade headaches and also for some reason increased anxiety. This is the most disturbing side effect for me and I don't know if it's being caused by the wegovy or something else.

I used to have severe anxiety and panic disorder and i also have ocd. I've been on medication thats been really helpful for it and havent had much anxiety for a long while. Now i just feel the creepy crawlies under my skin and dread all the time, especially at night like i used to get. I know GLP-1's can mess with your meds a little but i'm only on a half dose? And i'm feeling this more now on a lower dose than when i was at 0.25mg.

I don't know if either the wegovy or the fact that i'm eating less than I was is causing it and I should stop taking the med and go back to gaining weight (I'm already at 212lbs) or if it's something psychological and unrelated. I did (TW: loss) recently lose my great aunt and my grandma so maybe it's a delayed reaction to that? I just don't know.

I really want to be supporting my mecfs because I don't want to go back to being severe. I also am scared of becoming mentally ill again. But I can't just keep gaining weight like this can I? That's also unhealthy both physically and for my self esteem. I don't know. This illness is really hard.

Hello everyone, 31f here. I have had a bad habit for years about resting my head on my hand for long periods of the day, probably due to my hypermobility. As such, my hand is pressing on my left cheek a lot and not on my right, and i also sleep more on my left than my right. It isn't noticeable visibly yet, but my right cheek feels SO much tighter than my left, which feels really loose like I've tenderized it over time. I'm worried as I age I'll get one sided sagging because of it. Considering how many years ive been doing this (like 10+ probably), is there any way for me to even out my face a little or do something preventative here?

I've been really lucky that I've had the opportunity to rest enough to take myself down from severe to moderate. In particular, my pain is a lot better managed now so instead of being in severe pain 24/7, the really bad bouts are only episodic and they don't get as bad as they used to be. But i've noticed it's harder for me to handle them when I do get a bad episode, like how it felt when I first got this illness. At a certain point I got used to the constant pain and nausea and fatigue but now that I'm doing better, all that resilience has gone away and I feel it so much more intensely. Suddenly it feels impossible to get through the moments that I went through daily for so long. I feel grateful but also I wish I had kept some of that resiliency. Has anyone else been through this and have any advice on how to process the pain all over again?