u/Dapper_Business

Hi all, I have an appointment with a vascular specialist who is familiar with POTS to do an ultrasound on my legs but I’m wondering if it’s worth it to go. If anyone has experience or insight I’d appreciate it!

On one hand, I have POTS and blood pooling issues in my legs, my feet and often lower calves tingle constantly, my legs always feel heavy and make it hard to stand still without needing to sit right away. I have some spider veins but nothing bulging out, and I’m wondering if they find issues in the veins deeper in my legs bad enough to need ablation/closing, would that actually help? I would think it could help shorter term but since POTS is an autonomic issue causing the vein constriction issue, wouldn’t the blood pool elsewhere and just strain the other veins and the issue would return? I’m not sure if that makes sense but I’d hate to waste the time and money just to be told to put on compression stockings (which I already do)

I take Ivabradine for POTS and have been on it for several years now and have an ekg once a year that has always been normal until a year ago. I had left my cardio apt and saw there were two new diagnoses on my aftercare sheet: Left Bundle-Branch Block, unspecified, and nonspecific Intraventricular Block. This isn’t something Ivabradine can cause and seems to be benign if nothing is structurally wrong with your heart (just what I was told I am not a doctor!). Has anyone had conduction abnormalities come up with your POTS or dysautonomia? I guess your heart can do strange things sometimes to try to keep equilibrium, and that EKG may have just happened to catch it during that time, at least according to my new cardiologist, which I found interesting.

Obviously it would be different if conduction abnormalities were happening too frequently, and I’ve also been really short of breath with exertion (which isn’t new lol) so he is having me repeat an echo and 7 day heart monitor to make sure everything is still good! The shortness of breath is greatly worsened in higher elevation though, has anyone experienced this? It would make sense i guess but it seems like I’m so sensitive to the change even if it’s not a ton.

I’m on a lot of meds and am getting taken off my dad’s insurance in about 6 months and am so nervous about affording Ivabradine and also specialists. My symptoms are still there but manageable enough to do my job, but I’m basically bed bound without ivabradine. I’m not eligible for health insurance from my current job and am looking for advice on anyone who has been through something similar! Where can I find some resources to find insurance that covers a chronically ill girly without going broke, if that even exists nowadays lol. Not sure if this question is allowed, but delete if so and I appreciate any help:)

I’ve been trying to summon my last two parrot guys for what seems like forever and decided to try and use 100% wind and 100% uncommon essences, but will that just always get me the Blush Pinewing? I’ve done it like fifteen times and that’s all I get!