Any opinions on how to solve these ENT problems?
I’ll provide the specifics at the end.
I’m 33m and I’ve had issues with chronic throat clearing since early teens. Feel like a lump of phlegm at the back of my throat that won’t move. Sometimes I’m able to cough up phlegm but most of the time it’s too deep to cough up, so I have fits of having to keep clearing my throat constantly, not just because of the annoying sensation but also because the phlegm would often drip onto my vocal cords after a while and make me choke the next time I spoke.
I’ve gone to several ENTs starting around 2008 age around 14 and none of them have helped at all. They’ve said it’s acid reflux, but I never had any improvement with antacids. They said it was an auditory tic and sent me to a speech therapist. They said it was stress and I got meds for that too. None of it worked and I’ve basically concluded that it’s either all in my head and I’m nuts, or it’s abnormality of my throat itself, like excess tissue or even polyps or pockets of skin that get stuck with mucus, 🤷♂️. But no one has been able to see it.
Well last year I was finally diagnosed with severe obstructive sleep apnea, and am currently using a CPAP machine. I knew I had it for a while, because friends and family have told me that I snore louder than they’ve ever heard or thought possible, and sometimes stop breathing for long periods and gasp for air. And I even remember waking up several times gasping, with the sensation that I was about to suffocate. Scary stuff. Well the sleep centers are so small and backed up that you have to wait 6-8 months just to schedule to first visit. As is common with my ADHD, I of course missed the appointment and had to wait another 6 months. But at that time I had a new job with insurance that didn’t cover any local sleep specialists, so things were put on hold for a while. Eventually I get Medicaid and was able to schedule again, I got a sleep study, results were 67 breathing events per hour which is very high. My throat collapses while sleeping and causes ridiculous snoring and periods where my throat is closed completely.
I hate the CPAP, but the specialist told me it would help and to give it a chance. But I toss and turn in my sleep, and I like to cuddle with my dog, and so none of the masks I tried were comfortable at all. I finally found a nasal mask that is acceptable, but still very inconvenient and awkward. Plus, I still snore and my breathing events are still usually above 10.
Its dawned on me that my 20 year chronic throat clearing is related to my Sleep Apnea. But I’ve had the CPAP for 8 months and my throat clearing hasn’t improved. I have another appointment with specialist in a month or 2, but at our last appointment she said that a dental device would be the next try, then possibly the inspire device. Well I’ve been doing some research about the correlation between obstructive sleep apnea and chronic throat clearing, and I kind of doubt either will work. My opinion is that my throat has an abnormality that have been making me miserable for the last 20 years, and has also caused sleep apnea as well. I’ve read that the throat closing up can cause a vacuum effect that can suck stomach acid into the throat and irritate it, which is why I wake up with a throat full of thick phlegm that I spend all day clearing.
I think surgery will be the best option to try to end all of it. I’m wondering if any ENT experts here have heard of this or have any advice as to how to convince the sleep specialist to consider this, and try to get me approved for a surgery? Anyone else here had these two symptoms severely? Thank you for any help. Thank you.
Details: I have Obstructive Sleep Apnea, HBP, and several psychological disorders (not Tourette’s or tic disorder) I had a stutter when I was around 6 or 7 but I grew out of it with speech therapy for a year or two. Meds for HBP, a stimulant ADHD med, an NDRI, an SSRI, a mood stabilizer, an antihistamine for anxiety and sleep, and Multivitamin. Cannabis and Alcohol used regularly, but throat problems started in early teens when I was on Adderall for ADHD, but years before any other meds or recreational substance use.