u/Due_Question_8691

just wanted to share my experience with it. 3.5 months ago they found a cantaloupe melon sized cyst on my left ovary. my bad I didn’t go to the gyn for 4 years. I swore off them at 19 because 5 different gyns wouldn’t help me with my about 300 day long period.

I went into surgery (two actually) one month after the disovery and guess what I was filled to the BRIM with cysts and they diagnosed me with stage 4 endometriosis. never had pain, just extremely heavy periods, back pain and having to pee every 5 mins but I didn’t connect the dots.

two weeks after the surgeries I started myfembree. my gyn said it’s a very safe medication and I didn’t think much of it. a few weeks in I started to think about kms every second of the day. like all the time. my libido went to zero. no sensation, numbness down there. I became completely asexual and also lost feelings for my boyfriend of three years. I struggled with depression in the past so again, I didn’t connect the dots. I started taking methylphenidate again as it helped me through bad times a lot but this time it was different. yeah, I felt more put together and I was actually able to do things again but ending it all is still in the back of my head all the time.

the more I thought about the timeline the more I came the realisation that myfembree must be the culprit. I let that sink in a few days. my next appointment with my gyn is in 2 months. do I wait till then? maybe it’s too early to draw conclusions? and then one night I couldn’t do it anymore. I put the pills in the microwave (don’t recommend though) and it was over. this was two days ago. I don’t feel any changes yet but I know it was the right decision to stop. I hope 6 weeks of myfembree didn’t cause irreversible damage to me.

thanks for reading. I feel the need to share my experience because it may happen to other people, too. if you have any input or ideas what I should do next please let me know!
I’m privileged to not suffer from pain but the surgeries, blood loss and transfusions really took a toll on me and I wouldn’t want to go through this regularly when it grows back. I want to have kids in the future. I want to keep my colon (it’s already infested) and all the other organs. but I don’t want to loose life quality through myfembree either.

I’m currently trying to grow out my hair and I take so good care of it and I’m seeing real results after 1 year. Last week I had a surgery and after that a emergency surgery and blood transfusions (which I didn’t take very well because I had allergic reactions and they had to stop). I’m still very tired, my wounds are still open, I’m slow, though I can walk almost at normal speed again. My body is going through A LOT right now and I’m scared of getting te in a fews weeks. I experienced very light te in the beginning of the year after just having nephritis and fever in december. I’m trying to eat healthy, more than usual and take some protein supplements but I feel like it won’t help much. Is there anything else I can do? I thought about calling my family doctor for iron infusions. Thanks<3