u/Elegant_Lake_569

My doctor finally had me re-test (3 months later) and my test is negative! Here's my treatment experience if you want to read about it.

Here's what has improved for me:

- I no longer have daily diarrhea. I've had this daily for nearly 10 years. After treatment, it's only been like 3 times.

- I don't have heartburn anymore. I've started drinking lemonade, eating tomatoes, ketchup, and no heartburn.

- I've had a significant improvement in my anxiety. I almost never feel anxious anymore. Stressed, yes. Overstimulated, yes. But not anxious anymore.

I'm also back to normal (mostly). Still having some ligh headedness and dizziness, but not as bad as during treatment. Hopefully this gives hope to anyone starting their treatment ☺️

Tbh. I don't know if Premature Atrial Contractions (PACs) are considered a legit heart problem, but I have a lot of them. I have them 14% of my daily heartbeats.

Yesterday, I had SCARY strong, fast palpitations. Idk how long they lasted, I think it was no more than 30 seconds. I have an implantable loop recorder, so I reported the event within a couple minutes.

Anyways. I've had PCOS/PMOS basically forever. It was never really bad until after pregnancy. I've developed a lot of health issues with no real answers yet. I'm wondering if they could all be tied to my PCOS/PMOS. Btw I am diagnosed -- I have polycystic ovaries, high testosterone, and very irregular periods.

Basically, I have consistently high inflammation markers for the last several years, regular presyncope, autonomic nervous system sensitivity, hypothyroidism, increasing hair loss, mild anemia most of the year, arms and legs randomly going numb, and most recently PACs. I have a cardio, hematologist, GI, and a neurologist who have not been able to find what's causing all of this.

I know PMOS can cause chronic low grade inflammation.. I've been going down more rabbit holes and have learned that inflammation can indirectly cause presyncope, hair loss, and PACs. I have my next follow up with my doctor's next month, so I haven't discussed this with them yet. I haven't had my hormones tested in a while, but I also read that imbalanced hormones can also contribute to these symptoms.

But I'm wondering, has anyone here have similar symptoms as mine? Has a doctor successfully link PCOS to other issues? Have you received treatment that works?

I was reading that tirzepatide has been successful in women with PMOS, but I'm hesitant bc I already don't eat a lot as it is (but I'm overweight). I have dysphagia since December last year and have lost 20 pounds, but still in the overweight category. So I'm concerned that I will eat even less, but I'm also so desperate for relief from the presyncope and the PACs. Idk. Sorry for my long rant, thank you so much for reading 💕

Tbh. I don't know if Premature Atrial Contractions (PACs) are considered a legit heart problem, but I have a lot of them. I have them 14% of my daily heartbeats.

Today I had SCARY strong, fast palpitations. Idk how long they lasted, I think it was no more than 30 seconds. I have an implantable loop recorder, so I reported the event within a couple minutes.

Anyways. I've had PCOS/PMOS basically forever. It was never really bad until after pregnancy. I've developed a lot of health issues with no real answers yet. I'm wondering if they could all be tied to my PMOS. Btw I am diagnosed -- I have polycystic ovaries, high testosterone, and very irregular periods.

Basically, I have consistently high inflammation markers for the last several years, regular presyncope, autonomic nervous system sensitivity, hypothyroidism, increasing hair loss, mild anemia most of the year, arms and legs randomly going numb, and most recently PACs. I have a cardio, hematologist, GI, and a neurologist who have not been able to find what's causing all of this.

I know PMOS can cause chronic low grade inflammation.. I've been going down more rabbit holes and have learned that inflammation can indirectly cause presyncope, hair loss, and PACs. I have my next follow up with my doctor's next month, so I haven't discussed this with them yet. I haven't had my hormones tested in a while, but I also read that imbalanced hormones can also contribute to these symptoms.

But I'm wondering, has anyone here have similar symptoms as mine? Has a doctor successfully link PCOS to other issues? Have you received treatment that works?

I was reading that tirzepatide has been successful in women with PMOS, but I'm hesitant bc I already don't eat a lot as it is (but I'm overweight). I have dysphagia since December last year and have lost 20 pounds, but still in the overweight category. So I'm concerned that I will eat even less, but I'm also so desperate for relief from the presyncope and the PACs. Idk. Sorry for my long rant, thank you so much for reading 💕

Hi everyone,

TW - negative experience

I really just need somewhere to share this, preferably with people who understand what I'm going through... This seems like the appropriate place.

I had my manometry today and it went absolutely terrible. We started by having me inhale the lidocaine through my left nostril. When the nurse squirted the lidocaine in my nostril with the syringe, I immediately took a big breath in with my nose and the lidocaine went nowhere. It was just stuck in my nasal cavity for a while... She waited about 5 minutes and finally I tasted the lidocaine going down my throat. She (the nurse) then proceeded to do another half syringe of lidocaine and same thing. It was just stuck in my nose for a while.

Finally, after all the lidocaine stuff it came time to put the catheter in. I still feel pain. So we stopped and put more lidocaine. Resume. I felt a bunch of pressure in my nose and then the software stopped working and she had to take it out and troubleshoot her software. What sucks is that she initially said that she took it out because I was too nervous. But later she revealed that she was not seeing what she needed to see on the screen.

Anyways, she adds more lidocaine, whatever is left, there's not too much at this point... And we proceed. The second time around was absolutely excruciating. I was crying and just had tears running down my face and I was trying to keep steady breathing and trying to focus on anything other than the pain.

We finally got it through it and it would not go past my LES... In the past, I've had ER tell me that I have a hiatal hernia. I had an endoscopy follow-up to that which did not show a hiatal hernia. Now the nurse is saying that I might have a hiatal hernia because there was resistance and she couldn't get the catheter to go further. The doctor was saying that it's not possible because endoscopy did not show a hiatal hernia.

Anyways. We went on to the swallows. Each swallow hurt my uvula. But she said that my swallows look normal. She said that she couldn't tell me anything about the pressure because those needed to be interpreted by the doctor.

Her and the doctor were in agreement that I should see ENT. They are going to let my primary care doctor know to provide a referral for me. So, there's that.

This is not too scare anyone off. I just really needed somewhere to put this into words. She told me that I was one of her hardest patients. She says that most people don't have an issue with this test. She also said that I had much more resistant than her average patient. I live in a midsize city, so she's seeing a decent amount of people on a weekly basis.

Anyways. All of this testing has felt like a roller coaster. For me, it's not symptoms in my chest... It's that I feel like I can't initiate a swallow. I feel like I'm choking before the swallow even happens. I feel like I have forgotten how to properly chew and how to form a bolus and how to initiate a swallow.

I'm sitting at the hospital right now on a break because I was too nervous when she was halfway through inserting the catheter.

I cried for a bit and now I'm waiting for the nurse a bit. This is so difficult. It felt like there was a lot of pressure on my skull when it was going down my nose. I didn't bleed or anything after she took it out.

I'm also so hungry and frustrated. She said that I'll need to reschedule for endoscopy if I can't sit through this. She said they'd put me to sleep, insert the catheter, recover me, then do the test. It feels so extra for a procedure that most people can get through.

Hi all.

I had a modified barium swallow done today. They had me drink barium, then eat a barium coated cracker, then swallow a barium pill, then eat pureed barium.

I feel like food gets stuck in my oropharynx, but SLP said it clears fine. Her only note was that the pureed barium was slow to clear down the esophagus. I asked if slow is normal and she said "yeah" as she shrugged and did a slight head tilt.

I don't feel when pureed foods are going down slow tbh. I eat pureed soups and applesauce frequently, so I was kind of shocked when she said the puree went down slow.

I'm eating breakfast now and still feel like food is getting stuck in my oropharynx even though now I know it's not. I have a manometry scheduled in two weeks. So I guess I'll get more answers then.

If anyone else here had similar experience where puree was the only concern, please share you're experience, I'd love to hear it ☺️

I want to preface this with everyone’s level of dysphasia is different. What works for me, may not work for you. My dysphasia is more towards struggling to initiate a swallow and feeling like there’s still food lingering in my oropharynx.

I’ve really struggled with nutrition and have gone days starving because I was so distressed that I couldn’t figure out what to eat. So I just want to share what has worked for me in case any one out there is just as lost as I was when this developed.

Some of you gave me really good ideas a few weeks ago and I started incorporating that into my diet. After I stopped starving, I was able to focus enough and identify safe foods for me. If you’re good with textures like broccoli cheddar soup, soft veggies from soups, and oatmeal — then these snacks miiiiggghhht also be worth a try if you’re up for it.

- Chobani flip yogurt

- Trufruit frozen fruit (raspberry, cherry, and strawberry)

- Clio bars

- Chia pudding

- carrot potato cheddar soup

- turkey bacon (not crispy)

- franks (boiled in water and cut into small pieces)

- chicken soup (I remove the chicken and have the broth and veggies)

- Apples with very light almond butter

- Peach cups

- Mango cups

Hoping this helps someone 🙂