r/HPylori

Hell after hpylori eradication

So I eradicated hpylori after going on quad therapy. But I’m still have symptoms that make it diffcuelt for me to function daily. For example nausea, bloating, vomiting, irregular bowlmovments, abdominal pain, burning throat sensation, loss of appitie, pain after eating.

I have went to the emergency room lots of times and they send me to my family doctor who is shit. I waited for 4 months to just to get a call from a GI saying they have an opening in DEC (6 months from now.

I had to quit my job and school for a year and i can not do anything till I get better but no one seems to be helping me.

My family called my family doctor and let him know about his negligence and how he’s been poorly handling my situation. After asking multiple times he finay agreed to refer me to an endoscopy to check me out. I still haven’t heard back. Idk what will happen to be I am scared, if this keeps going on. My whole life is getting ruined right before my eyes.

reddit.com
u/Front_Ad_5621 — 3 hours ago

Does it ever end????

My panic attacks started after gallbladder removal and then I tested positive for HP.
I went through the antibiotic treatment (quad 14 days) and 6 weeks later tested negative..
But, the anxiety didn’t leave. I am now 3 months post antibiotics and struggling so much. I’m scared to go to sleep, because I know I’m going to awake in a panic. I don’t sleep well at night and I’m too afraid to nap during the day because I know it will bring on anxiety.
I thought I was doing a bit better, but the last few days have been horrible.
I have begun to gain weight back, as I had lost an incredible amount of weight and can now eat food I couldn’t eat for over a year. My stomach is getting better, still an absolute mess, but somewhat better.
But, the anxiety refuses to budge.
Does it ever get better? Or am I one of the unlucky ones that never get over the anxiety stuff? I’m not a good candidate for SSRI’s, so that’s not an option. Please don’t suggest them.

reddit.com
u/Key_Championship266 — 4 hours ago

I didn’t know what it was

Hi all, I just want to rant/vent a little.

At the end of March, I started getting chest pain which I attributed to my GERD issues. I went to see my primary care doctor and she told me to start on omeprazole again after having been off of it for a couple of months.
First week of April I started noticing I had a loss of appetite and would feel extremely full after taking like 2 bites from my food and when I would finish actually eating I felt complete emptiness in my stomach, but I ignored it thinking I was just tired of my food (I meal prep and rotate the same foods because I’m a very picky eater).
Second week of April I was still having issues when eating, but I started getting pain on my middle back and on my stomach right under my breasts.
Third week of April I felt so exhausted and I was only able to keep down chicken noodle soup and every single smell was making me so nauseas and by the end of that week I just felt defeated. I went to see my primary doctor again and she told me to continue omeprazole and referred me to a GI doctor.
Fourth week of April I was throwing up right after I would eat and my head would hurt so much until I threw up is when I would feel better. I decided to go to the hospital after work the day I started throwing up but they didn’t help, but told me to see a GI doctor.
Fifth week I went to see the GI and he said my symptoms sounded somewhat like H. Pylori, but he also thought it might be celiac disease and set up an appointment the following week for an endoscopy on May 5.
May 7th I got the results from the biopsy that tested positive for H. Pylori and I also have chronic active gastritis. So I was then put on quad therapy. It was brutal, but I pushed through and finished my treatment on May 22.
I’ve been in and out the hospital since then about 4 times due to back and stomach pain, kidney pain, gallbladder pain, other things probably hurt lol

I have my breathe test on Tuesday, but I recently went to the hospital again for the back/stomach pain because it was unbearable and I was just at work crying and that’a when the doctor explained what the pain actually was because I was never given an answer the many times I’ve gone before. It was literally just an acid reflux issue and the gastritis has been making it worse. Anyway, the pain never really left even after being given morphine and the following day it was worse and lasted 7/8 hours from like 3am to 11am. I was just sitting on my bed in agony and crying.

I’ve been struggling a lot.. this has made me depressed and I just want to be in my room crying. I don’t want to do anything or go out anywhere anymore. I haven’t cleaned my room in weeks because I just don’t have the energy. I’m scared of eating because I don’r know if it’s going to cause me pain. I’m just so tired.

I’m still pushing through, because like what else am I going to do? Just hoping it gets better soon.

reddit.com
u/joceleanc — 2 hours ago

H pylori

I’m currently dealing with h pylori with gastritis and taking the treatment antibiotics and ppi . I have no appetite at all. I’m so miserable. When does it get better?

reddit.com
u/IllTemporary5837 — 7 hours ago

Only been prescribed Pylera for 4 days

As the title has suggested, Im on my 3rd load of treatment and have now been prescribed Pylera, but only for 4 days.

Is this normal? Every where I look it seems 10-14 days is the norm and with the whole conversation around antibiotic resistance, I wonder if it’s a mistake.

My last two treatments were also only 7 days which I’m now thinking were short.

Could this be what’s causing it to not go?

reddit.com
u/AskingQuestions50 — 11 hours ago

Silent reflux and Helicobacter pylori

I suffer from silent reflux, but I discovered the bacteria by chance. However, I don't experience any digestive pain at all, only symptoms of silent reflux without a cough, such as a sore throat, difficulty swallowing, frequent swallowing, frequent throat clearing, belching, shortness of breath when symptoms worsen, and chest pain. Do you think the cause is bacteria? Because today is day 7 of treatment for bacteria with pylera and antacids, but the symptoms are still ongoing. Please advise. I had an X-ray of my digestive system. I don't have acid reflux, which means my sphincter muscle is working well, and I don't have a hiatal hernia.I've been suffering for a long time, but the symptoms were mild and manageable. However, over the past four months, the symptoms have worsened. I found a high level of the bacteria in a breath test, but without the classic symptoms. Is this really the cause, and will I get better after finishing treatment? Please reply if you see my message, as I'm no longer able to perform my daily activities and I have difficulty driving due to frequent swallowing.

reddit.com
u/Leather-Cow3013 — 14 hours ago

Eating

Has anyone ate a few saltine crackers with tetra medicine to help with the nausea? Just want to make sure it’s fine. I’m on day 4.

reddit.com
u/RadiantAir8986at — 10 hours ago

Being negative while my partner is positive?

Hi everyone, I have a question regarding H. pylori. My partner has tested positive for it, while my own test came back negative. We’ve been together for over two years and are in very close contact (kissing, sharing utensils, etc.), so I’m wondering how it’s possible that I haven’t been infected. Since finding out about her diagnosis, I’ve started feeling some nausea, but I’m not sure if this could just be stress-related and anxiety rather than an actual infection. I haven’t taken any stomach medications or antibiotics for months, so I assume my test result shouldn’t be a false negative. Do you think I should get retested after she finishes treatment, just to be sure?

reddit.com
u/Academic_Sink_637 — 11 hours ago

Is the HELICOBACTER PYLORI AG, EIA, STOOL accurate?

Hi everyone. Is the HELICOBACTER PYLORI AG, EIA, STOOL test from quest accurate? I have all the symptoms of hpylori but results say negative. Not sure if I believe it or not.

reddit.com
u/BerryRemarkable882 — 13 hours ago

Newly diagnosed, trying to survive/venting 🥲

I’ve been on antibiotics for almost 7 days now. I felt horrible and didn’t think I’d survive (dramatic I know) psyched* myself out a few times and googled way more than I should have. I’m a picky eater already and can’t really stand the smell or taste of meet with no seasonings so you can imagine how tough that’s been lmao. (Laughing because it makes me feel a bit better but not so much)

They’re having me do a colonoscopy in a few days because of this and I’m dreading it. But I know I need to.

Also I feel like I’m peeing excessively (anyone else?) but I’m drinking lots of water to make sure it doesn’t cause damage because that’s what the dr and Google advised. I really want to get better and heal my gut biome once I’m done with this intense regime that’s keeping me up.

Any tips if you’ve healed through this? Or just any tips in general. This shit is really the worst thing ever. I’d rather have a migraine or a sciatic never flare up than this I swearrrrr. 🥲

Update: felt like I was dying last night… until I fell asleep and took a nap. Then I woke up and felt a little better.. until I took my next dose and felt so nauseous until I went to bed again. Didn’t even clean up my home until I woke up this morning. I did everything before having to take my next doses 🥲

This is so damn tough. If you feel like this too just know you aren’t alone. 😭

reddit.com
u/Greedy_Reference5258 — 17 hours ago

Im in severe distress

I think i could have hpylori but my only symptom is chronic (never goes away)bloating and maybe a bit of weight gain. I feel so insecure and have been going to the gym and crying and cant even go to the beach. Did this happen to any of you? Im deeply unwell and will get tested soon.

reddit.com
u/MostFaithlessness913 — 20 hours ago

Does this sound like H. Pylori?

I'm a 20 y/o female and ive been suffering a lot recently with my stomach. My parents both have a history of GERD and gastritis and they have both tested postive for h. pylori and been treated for it. I've never been to a gastroenterologist and I just made an appointment to one but its in a week, but idk what to do about the symptoms, how to relieve them in the mean time. This sucks because I'm on summer break and ive been like this for a month already and i havent enjoyed my break at all. These are my symptoms:

- acid reflux

- stomach cramps

- lightheaded/floaty/dizzy feeling that comes in waves, but they stay for the whole day.

- anxiety/panic/depression

-acne/ scalp dermatitis

- upper stomach discomfort/pain/burning

- nausea

- burping (sometimes liquid comes up)

- Migraines/tension headaches

- fatigue/weak

- borderline low ferritin

- indigestion (undigested food in my stool sometimes)

- ball in my throat feeling

- extra saliva in my mouth

- burning at the bottom of my throat

reddit.com
u/Realistic_Bell_3923 — 1 day ago
▲ 16 r/HPylori

Finally

Three month ordeal but had symptoms for a while before I got treated. This bacteria fucked me up internally. Inflammation in liver, intestines, and anemia. Now just have still a white coating on tongue from antibiotics that doesn’t want to go away with anti fungal. Will give it time. I’m tired of taking meds.

Can someone help me.

Hi so I am new here I was diagnosed with hpylori via breath test. I was given medication but I am 19 so I’m just a bit confused on exactly when to take it how long and how much and I know my gastro doc should when went over it with me but she didn’t she just prescribed it and I wasn’t told like what time or how or for how long. I tried to call just now to speak to her but the front desk lady was kind of rude with her tone and told me to call the pharmacy and talk to them about instructions so I’m stuck. I want to take the medicine to get rid of it so I wanted to see if someone here could helped me, I’ll type down here the medication I received and the instructions that came with them.

Amoxicillin 500mg- take 2 capsules by mouth twice a day.

Metronidazole 500mg- take 1 tablet by mouth twice a day for 14 days

Clarithromycin 500mg- take 1 tablet by mouth twice a day for 14 days

Omeprazole 40mg- take 1 capsule by mouth everyday.

That’s all the medicine and the instructions, I haven’t started taking any of them yet because I’m just a bit confused about when I should take them, how like with food or not, and if it’s safe to take or if anyone can help with a schedule for me. Also online it says i should take 2 omeprazole a day not one because if I take one it will most likely fail since I have to take 5 pills around 8am and 5 around 8pm, that’s the schedule Google gave me. I’m sorry for confusing anyone as well

reddit.com
u/Educational_Cap_794 — 1 day ago

(Vent/update) things CAN get better

Officially a week after I completed treatment now, those first days were rough, like genuinely rough, to be completely honest I thought I saw no end to it, I thought my life was genuinely over and it didn’t help that on like the 5th day my mom lashed out on me, I had terrible thoughts and a terrible mentality, but I managed to push through, days ago I was eating nothing, no water, I took a couple of sips of chicken soup and my brain started to panic, now, I’m not doing ultra great by any means, but I’m actually eating for once

What helped me personally was realizing what the problem was, I was on voquenza during treatment which was pretty strong, it messed up my body and caused an acid rebound, I didn’t know about this, my doctor didn’t say shit, no clue this could happen, so I got extremely worried I was maybe still sick or that I could throw up at any moment (which is what I feared the most) but after finding out about the rebound and how it works, a lot of my anxiety went away, I’m not really scared of eating food anymore like before, yes I still occasionally get those moments of anxiety where I feel kinda faint and my body feels warm, but they pass, I just try to calm myself down, I feel good enough to play video games now so I’ve been doing that today

For the acid reflux, I got rabeprazole in the morning and 20 mg of Pepcid in the evening, they’re not doing a whole lot, but they’re probably doing something idk as long as they’re not hurting me they’re cool, also constantly having something to eat is great, chicken soup is great cuz it goes down fine and I can eat it casually, plus that’s some water going into my system too, besides that, it’s all about perseverance, don’t give up even when you wake up in the morning crying cuz you feel terrible, get the ball rolling, try to eat something so the acid in your stomach can start being absorbed and you can feel a lil bit better, as someone who’s scared of throwing up, I used to think every little thing to do with acid was a sign of me maybe vomiting, but that’s not true, it’s a separate thing

Remember that you also have to put in the effort for your healing, yes I pray to God every day, yes I take my meds every day, but I also pick myself up every morning and force myself to eat, I’m praying that I spend a calm evening today and that I continue to get better, I also pray for everyone else going through the same issues, you’re not alone. Thanks for reading

reddit.com
u/again_c — 1 day ago

Update 1 year 3 months after eradication(traveling update)

Here I am writing a post at 02:39 am, for whatever reason.

I’m going to keep this short.

I tried KFC and I had about the same reaction as to pasta(a little bit of bloating that last 2 hours).

Then I ate a pulled pork sandwich at the airport(which was so salty; idk what they were thinking putting in this much salt, like fr this dish is a crime), and also had the same reaction.

Had a lot of snacking with Aeros chocolate and chips while watching movies at the airport and honestly aside from reflux I don’t notice much symptoms.

These days on holiday I’ve just been eating a lot of rice at my relative’s place in Vietnam so symptoms are meh. Not so much bloating but a lot of watery stools interestingly enough. I never believed in traveller’s syndrome but now I believe, my gut just isn’t built to handle all this unclean stuff compared to back home. Every meal has been a stomach upset despite only eating rice which is honestly stressing me out so goddamn much!!! I have to say acid reflux is the worse/and the nauseous burping when lying down, it makes it very hard to fully enjoy myself.

Anyways that’s my current experience in Vietnam, I hope you have a nice day.

Edited: I should also mention I live in UK, and that I’m currently on holiday for 4 weeks( this is the first week ). Also I had liquid nitrogen smoking ice cream- how cool is that!

reddit.com
u/BeginningGiraffe708 — 1 day ago

Starting my H. Pylori eradication therapy soon (after a 15-day prep). How long did it take you guys to fully heal?

Hey everyone, I've been dealing with intense stomach tightness, burning, and severe anxiety for a while now. A blood test confirmed H. Pylori, and I just finished my endoscopy/biopsy (waiting 5 days for results). This whole ordeal has been a nightmare, causing me intense panic attacks to the point where I've been put on an SSRI medication to manage the severe nervous system distress. To get me ready for the heavy antibiotics (likely Pylera), my GI took a strategic approach and put me on a 15-day preparation protocol using a PPI, a gut antispasmodic, alongside my SSRI to calm my stomach's enteric nervous system. While my stomach lining feels well-protected and prepped for the heavy killers thanks to these two weeks, I wanted to ask those who went through this: how long after finishing the heavy antibiotic course did it take for your stomach and your anxiety/panic attacks to fully resolve? I'm strictly sticking to a bland diet and warm water, but I'd love to hear your success stories and recovery timelines!

reddit.com
u/Anxious-Bat4381 — 1 day ago

Post treatment success

I finished treatment yesterday and i have no symptoms anymore apart from hart palpitations likely from the antibiotics.
I know its not certain but does this mean its likely the treatment has worked

reddit.com

Day 3 of Quad Treatment

Hey there! I am on day 3 of quadruple therapy. Day 1 started okay but by the evening I was down with nausea and the worst headache. I attribute the headache to caffeine withdrawal and the nausea to the meds. Day 2, the fatigue and nausea kicked my butt. Couldn’t keep anything down and had to call in for Zofran. By the end of yesterday I realized it was the Tetracycline that was specifically making me sick. Also, weird body odor and I never smell. Today the headache comes and goes and I’m feeling a little better about my situation. I’m surviving off bone broth and steamed eggs - very little appetite.

I wish I had done a little more preparation before starting - probiotics early, a little less Thai food. I did purposefully put on a little extra weight, because I know I’ll lose it. The meds suck but I think my body is also angry at the crazy shift in my diet.

I have Omni-Biotics AB10 coming and mastic gum. Tonight I’m trying ginger tea before my final dose of tetracycline. Reddit has helped way more than my doctor, who prescribed probiotics that don’t even work with antibiotics. I’ll try to keep this thread updated… next week I have to be able to work on this.

reddit.com
u/Downtown_Love7608 — 1 day ago