u/Enough-Ad9887

Hi! Does anyone have dystonia and dysautonomia? I started having this weird thing that my abdominals/diaphragm/intercostals (skeletal muscles) cramp up and it can trigger dysautonomic attacks - my gut and stomach feel off, i get a lot of sounds from my stomach, I might feel nauseous, it’s like something moving both in the muscle and inside my digestive organs, I get pain sometimes too. But this comes and goes like a light switch. And when this suddenly spikes I also can get these odd attacks where I get hot/cold flashes, this weird nausea, off feeling, impeding doom.
I rarely have HR spikes, my BP is totally fine. I have something really odd.

Anyone with anything similar?

If you have full body SFN, can you share what do you deal with on a daily basis? I know general descriptions, I am asking for your personal accounts.

Is your tingling or burning a skin sensation, rather shallow? Does anyone here get deeper symptoms that feel like they affect you down to the bone?

I sometimes have the outer skin symptoms and honestly for me it’s a relief that my insides have let up as normally my symptoms feel like they are coming from somewhere deeper. The tingling is deep like my limbs are swelling with electricity. The hot electric deep itch is like my muscles or bones or a layer under my skin are itchy in an electrical way, I also get what feels like a stinging/smarting sensation like alcohol has been pointed on an open wound but sort of deep inside of me on large areas. Electrical shocks feel like it run along my bones and explode deep under my skin with this overwhelming feeling I cannot even name. I also get dystonic muscle cramps as the misfiring nerves irritate motor nerves.