Am I just Severely Intolerant?
Warning for tmi discussion about symptoms!
I was tested for coeliac last year but tested negative and was told I was just intolerant. But anytime I tell anyone my symptoms (usually not this tmi but the general overview of it) they seem really concerned and ask if I’m really sure I’m not coeliac.
If I eat gluten or have even the tiniest bit of cross contamination (e.g. using the same tongs to pick up an item) I will get really sick. Instantly bloated an entire size up in clothing, terrible acid reflex for days and then constipated for 1-2 weeks, where it then takes another week to very painfully slowly get it all out of my system often causing tears and bleeding… occasionally even causing haemorrhoids. I also get really intense hives occasionally from it too but not every single time but when I do get them it’s all over my legs and arms.
Is it possible I am just intolerant and just really really sensitive? Like I get all these symptoms every time even from the smallest cross contamination like using the same tongs or similar. Or should I look back into getting retested for coeliac?
Edit: I was tested three in my life. First when I was 12 and eating a gluten diet. Second was last year in my 20s by my gp. I was eating gluten free for a few months by this point. I asked if I had to be on a gluten diet for this and she said no but I was skeptical but the blood tests came back negative. Third was also last year when she referred me onto a gastroenterologist. I told him about the second test and he agreed I should’ve been eating gluten for it. He told me they had a different test they could do where you don’t need to eat gluten for it. That also came back negative, but as he is literally a specialist in coeliac I feel like he should know the most so I just accepted I was just intolerant.