u/Far_Home2616

My specialist told me to start off with 1 pump of Estrogel in the morning, and 100 mg of Utrogestan at night, cyclical. He said I could up the dose to 2 pumps (either both in the morning, either one in the evening as well) if I see that one isn't enough in terms of symptoms relief. He also prescribed me DHEA 25mg but said it was optional, as I've read mixed things about the benefits and it's expensive I haven't started that one yet.

Got diagnosed with POI at 25 years old last month. I also do have endometriosis, adenomyosis and Hashimoto as well. Got diagnosed after a year of very irregular periods and not having had them in 3 months, along with all the usual symptoms and very low Estradiol and high FSH.

I started HRT 3 days ago, how soon will I know if I need to up the Estrogel dose? Should I sait at least 1 or 3 months ? I am guessing one Estrogel pump a day is really low.

I'll be doing a blood test in the end of September, but I know that that's not as relevant as symptoms tracking.

Thanks !

TW : description de symptômes / trouble hormonal

En réalité c'est plutôt un partage d'expérience qu'une question.

J'ai 25 ans, et d'ici la fin de semaine je vais avoir la confirmation (ou non) d'un diagnostic d'insuffisance ovarienne prématurée. Il y a plein d'autres jolis mots pour décrire ça mais en gros c'est tout à fait similaire à la périmenopause, sauf que c'est bien trop tôt.

J'ai aussi de l'endométriose et adénomyose donc côté maladies gynécologiques je trouvais que c'était déjà bien trop

C'est au détour d'une récente prise de sang qui a révélé que mes taux d'hormones ne correspondaient pas du tout aux normes et encore moins celles de ma tranche d'âge que j'ai réalisé que tous les symptômes que j'avais depuis des mois étaient en fait plus que juste du "stress". Œstrogène au ras des pâquerettes, FSH bien trop haute

En réalité ça fait environ 2 ans que mon cycle est complètement déréglé, imprévisible. Souvent deux fois par mois, parfois pas de menstruations pendant deux mois bref c'est l'anarchie, mais les médecins n'ont jamais voulu chercher plus loin.

Il y a déjà plus de 6 mois, j'ai commencé à avoir des douleurs inexpliquées, une libido qui a disparue, des symptômes qui vont et viennent, un peu comme un PMS constant physiquement et mentalement sans savoir pourquoi, mais j'avais pas fait le lien entre les cycles irréguliers et toute cette longue liste de symptômes jusqu'à la semaine dernière. Et j'étais vraiment pas prête à l'atrophie du clitoris

On dirait pas comme ça mais en fait et on l'apprend pas forcément en SVT, l'œstrogène ça a un impact majeur sur tous les organes presque, pas que sur la santé reproductive.

Après cette fameuse prise de sang, mon gynéco m'a dit qu'il n'y avait rien à faire, que j'étais jeune et que ça servait à rien de s'inquiéter. Pour lui la péri/ménopause se résume de toute façon qu'à quelques bouffées de chaleur rien de plus. Heureusement ma médecin généraliste m'a pris très au sérieux et je vais donc aller prendre un deuxième avis.

En cherchant un autre gynéco, qui s'y connaisse un peu sur ces sujets là, déjà c'était pas facile de trouver mais quand un médecin avait un onglet périmenopause sur son site internet c'était accompagné de photos de femmes de +60 ans... et Google m'a ensuite suggéré plein de produits pour les personnes ayant passé la cinquantaine via l'algorithme les jours suivants, vraiment très plombant.

Au delà de ça l'idée de devoir potentiellement prendre de l'œstrogène, progesterone et testostérone désormais c'est pas une nouvelle très réjouissante, bien que ça va sûrement me changer la vie pour le mieux. J'ai l'impression que mon corps me fait "défaut" puisqu'à priori un truc assez basique ne fonctionne plus comme il faudrait.. Et au delà de ça le corps d'une femme cis a tellement été socialement lié à l'idée et à l'injonction de la maternité (avec ses propres gamètes j'entends) que ça rend l'acceptation de tout ça bien plus complexe.

Bref le jour d'après ces premiers rdvs au réveil j'ai espéré très fort que tout ça ne soit été qu'un rêve..

Cette expérience me rend encore plus en colère contre le système de santé qui est profondément patriarcal, même sans parler du côté clinique mais rien que du côté de la recherche, mais ça malheureusement on le savait déjà. Des médecins qui te prennent pas au sérieux parce que t'es une femme ou que tu es trop jeune je peux plus les compter..et je sais bien que je ne suis pas la seule malheureusement..

Tout ce je dont parle là c'est un trouble très rare mais ça montre l'importance de suivre son cycle, d'en parler à un médecin si quelque chose semble anormal ou si des cycles avant très réguliers deviennent totalement anarchiques.

Sans forcément parler des troubles hormonaux prématurés etc je trouve que de toute façon on parle pas assez de la ménopause, alors que logiquement toutes les personnes avec un cycle menstruel vont passer par là d'une manière ou une autre. On parle que des bouffées de chaleur alors que c'est bien plus que ça, et on parle pas assez des traitements et des prises en charge.

Je précise, surtout pour les plus jeunes d'entre nous, que si tu as un cycle irrégulier ou que tu as des symptômes similaires ça ne veut PAS automatiquement dire qu'on est dans le même cas de figure, loin de là. Avoir une réserve ovarienne diminuée/faible précoce ou autre c'est rare et ça reste un diagnostic d'élimination. À l'adolescence c'est normal que ce soit irrégulier et par la suite il y a plein plein de raisons bien moins préoccupante qui peuvent expliquer ça. Il n'empêche que peu importe l'âge dans le doute il vaut mieux consulter pour ne pas passer à côté d'un problème de thyroïde par exemple (qui se prend très bien en charge) :)

Tout partage d'expérience ou autre est le bienvenu !

J'avoue que je me sens assez seule avec ça, surtout que la plupart des témoignages que je lis sont écrits par des personnes ayant plus de 50 ans, difficile de s'identifier

A bit of a rant really, but I am totally open to any advice.

I am a cis queer woman, my partner of 6 years is a trans woman.

My partner came out to me a year ago. She started HRT in January this year and it's all been going pretty okay. Our dynamic improved for the better after she came out, and I have been trying my best to be supportive in all the ways I could.

Since a few months it has been more difficult as she's been going through severe depression and anxiety and childhood related PTSD (so all this was basically there before but going through this life changing thing that is the transition just made it more obvious), with debilitating symptoms, which means she has been spending time in bed much more and so on. Autism and likely adhd is also playing a huge role in all of that, so it means I am often a caregiver and a lot of the mental load of our shared household ends up on me. I really tried to be there but it hasn't been easy. I have always been a bit like her "favorite person" and its not easy to navigate, tho since her coming out our relationship is much much better (up until recently)

But now this past 2 weeks there's been a life changing situation for me. I am in the misdt of getting diagnosed with early perimenopause (basically it's happening too young since I am 25), and finding out that this is the answer to the many many symptoms I have been experiencing for months. I had been feeling awful since a while now and couldn't really figure out why until now. This condition is really not well known and it is not just about reproductive stuffs, a lack of estrogen to a body that used to be producing it has tremendous negative effects on all organs and many aspects of life and stuffs. Anyway it is a lot. I will be getting treatment hopefully soon, and a range of testing (bone density, heart, eyes..). It's been absolutely a nightmare and I wake up every morning hoping it is not real. It's been months I was tearing up for no reason and now I finally know why but I really really had wished it would have been any other less awful reason (like whatever vitamin deficiency). And on top of that I have always wanted kids, well that's another story.

To make it any better, when it comes to trying to find doctors there are pictures of 60ish years old women everywhere on their website, bc menopause. I obviously have nothing against 60yo women, but I'm 25 so this is all really really scary. And now Google has picked up on my last searches so my algorithm is constantly pushing ads and content about "what it is like to be 55"

And there are also symptoms like brain fog, memory issues and such that can't get fixed or not fully by HRT or treatments, plus I have endometriosis so yeah it's a whole thing.

The thing is and that's why I am posting here, my partner does not seem to understand that my situation is not like hers, she keeps comparing it (since technically HRT is used in both of those cases). She keeps telling me that it's so easy for me because all I need is a few meds, I don't need to go through the difficult process of getting HRT like she had to and I don't need to change my passport etc. Something about how at least for me I will be always accepted no matter which politicians is governing. I mean yeah fair point but it's two completely different situations?

Like basically she has been like : why do you complain since you are not the one having it worse? And coming back always to her saying that either way it's not her fault and she can't help me, that it's nothing really and that then we can even share the estrogen (which is not true, doesn't work the same and dosages are different).

And also, this has made me feel really insecure about my body (here is to some stuffs shrinking at 25 ... ), very overstimulated by the many appointments and new Infos process and as of right now, it has all been making me feel less of a woman (which I know it is subjective and I KNOW being a woman is not about hormones or anything) but still that is just how I feel, and I can't really talk about those feelings with my partner which makes just the distance that is starting to grow between us just feel more intense.

Before me experiencing all of this it was already a lot, so I am not so sure I have the energy to keep up with doing most of the emotional labor, household stuffs and all that relationship related stuffs on top of everything else

(Quick note : if you happen to go through something similar in the future and your partner is trans it does not mean they will react the same as my partner does, just want to highlight that )

Idk. Just needed to talk about it, I am feeling kinda lost bc on one end I rationally can understand why she thinks like that but I find it somehow so unfair that I get so unvalidated, idk

Thanks for reading :)

(reposting after having checked the rules, sorry, hopefully now it's okay 😀)

I have been feeling very lost and overwhelmed about all this and the doctors I have gone to have not been very helpful (tho now with reading the wiki I feel a bit more ready for my next apt)

For context I am 25, no BC, I have endometriosis and adenomyosis with normally very heavy debilitating periods and a bit of a messed up thyroid (stable with meds).

Since about a year (actually maybe more like 2 years) my cycle has been changing. My cycles have become crazy unpredictable (sometimes 10 days sometimes 45), sometimes bleeding for 3 weeks for no obvious reason, sometimes skipping a period, it's really chaotic. And anytime I brought it up it was always just dismissed by the fact that I have endometriosis.

Overall my periods have been getting much lighter and shorter over the last 6 ish months, tho every once in a while super heavy.

Since 3-5 months I am experiencing all of the physical and mental symptoms commonly listed for perimenopause (like every single one of them that are listed on the wiki), I also started to experience symptoms of dry eyes which is very new to me, and insomnia. Oh and the vaginal symptoms/UTIs for no apparent reasons but since I had low iron the doctor thought it was just this, got iron infusions and it's still the same. I am also tearing up at the smallest thing, like really it is becoming a bit ridiculous and tiring 🙃

All other bloodwork are fine, estrogen is consistently decreasing, fsh increasing. .

My gyn was very dismissive. He told me that :

Yes my symptoms are explained by my hormone levels, but that no he can't give me any official diagnosis and can't do anything about it because "with you having endometriosis it would be bad to give you estrogen".

My GP was fortunately very understanding and thinks that everything is pointing towards POF/early peri, but at least where I live a GP can't make a formal diagnosis about this so I will see a new gyn in 2 weeks, hoping to get more answers, bc I am rn really lost. And I have been associating menopause until now with being of an older age than mine, like I really didn't see this coming (although there has been signs since years) and it's really scary.

Apparently since I am so young HRT is not recommended which doesn't make any sense bc how is my body supposed to function well if it is lacking estrogen?

Could I start HRT even if I do kind of have a bit of estrogen and it's likely either way still fluctuating, despite what the doctors say?

Would taking HRT be "okay" with endometriosis ?

Do vaginal/clitoris issues get better with treatment ?

Thanks !

I have been feeling very lost and overwhelmed about all this, but reading thru this sub has been helping me understand what POF is a bit more

For context I am 25, no BC, I have endometriosis and adenomyosis with normally very heavy debilitating periods and a bit of a messed up thyroid (stable with meds). I have been getting blood work done for hormones since about 4 years. My FSH has always been a little high (18) but everything else was normal, regular cycles, so I didn't think much of it.

Since a year tho it's been changing. My cycles have become unpredictable (sometimes 15 days sometimes 40), sometimes bleeding for 3 weeks for no obvious reason, it's really chaotic. Overall my periods have been getting much lighter and shorter.

Since 3-5 months I am experiencing all of the physical and mental symptoms commonly listed for perimenopause but since I had very low iron I thought it was just this, got iron infusions and it's still the same. I am also tearing up at the smallest thing, like really it is becoming a bit ridiculous and tiring 🙃

All other bloodwork are fine.

One year ago my estrogen was about 60-90. In February it was 64. Now this week it is 26.

FSH is 27. Was 22 in February.

LH is 15 (a bit high).

I had a very normal AMH 3 years ago, in February it was 2.04 and it is now 1.89 (which is still normal)

All other hormones have always been fine.

My gyn was very dismissive. He told me that :

Yes my symptoms are explained by my hormone levels, but that no he can't give me any official diagnosis and can't do anything about it because "with you having endometriosis it would be bad to give you estrogen".

My GP was very understanding and thinks that everything is pointing towards POF.

I will see a new gyn in 2 weeks, hoping to get more answers, bc I am rn really lost.

My question is :

Can one start HRT even if I do kind of have a bit of estrogen currently and my FSH is not above a 100 ?

How soon do you usually feel like HRT is helping, does it take long until feeling better ?

Is HRT bad if you have endometriosis like that doctor said (I assume it's wrong) ?

Thanks !