[OH] WFH request for chronic illness
Edit: Thanks for some of the kind feedback. Please understand I don’t think I have a right to demand WFH. I’m just getting to a point where I’m not going to improve and don’t know what HR accommodations look like long term for chronic illnesses. It seems like so far my company has been good and will probably continue to accommodate me as much as possible with continued check ins and paperwork.
I do understand the need to re-cert every so often. I’d also ask you all to just give me some grace considering the mental and emotional toll a long term illness can have on someone. There is a lot of fear around losing my career and independence in addition to the other things I’ve lost.
Hi all. I am in the US. I never know how to handle this situation.
I started a new job in January 2021 and it was fully remote due to COVID. Sept 2021 I suffered a brain abscess and required an emergent craniotomy and then surgery on my lung. I was 31 and it was a stressful time. I mostly recovered but the abscess affected my vision. My sight has returned but I do have chronic fatigue, migraines, and hypersomnia from the surgery. It’s not going to go away. I have a neurologist and sleep doctor. I have a ton of meds to help me. They are great with helping me manage and filling out paperwork. We went hybrid a couple years ago, but this year they went from hybrid to 4 days a week in office. 70% of my team including my manager is in the field and works remote doing the same job. However, I am close enough to HQ to be required to come in. I can do my job remotely and I can come in if I need to, but it’s hard for me. The lights just drain me even with them being dimmed, I can’t take 10-15 min naps when I need to, I often have balance issues and driving or busy spaces are not easy when it flairs makes me nervous. I do have to travel some and can usually push through it/uber if necessary. They have accommodated me which I am grateful for. But I do have to meet every 3 months and it feels like I have to justify my needs over and over. I have so much anxiety that they will change their mind and I can’t imagine doing this same song and dance until I retire in 30 years. I don’t want to quit. I like my team and my job. I don’t want to move either. I understand legally they need to check in with me. I’ve been promoted 4 times in 4 years so I’m clearly doing well and I want to be a good employee. I don’t even know what I’m asking except, is there any world where I have more of a sense of security? I’ve come to terms with living with a chronic illness. But I feel like this is looming over my head. I want to work. But working from home gives me a quality of life I don’t have going into the office. When I’ve tried, I can’t function. Any advice?