▲ 6 r/VestibularMigraines+1 crossposts

Advice preparing for an appointment/self-advocacy

Hi!

How do you prepare for an appointment when symptoms have significantly worsened? Any advice on quantifying it or describing symptoms? I’ve struggled with self-advocacy but it’s never been a huge issue because I was relatively stable so I’m not sure how to best navigate an appointment (for the worsening symptoms to be believed, signed a woman with anxiety that is apparently to blame for everything!).

I have an appointment with a new NP in my neuro’s office. My neuro isn’t the best at listening to me (appointments are always rushed and she defaults to increasing meds regardless of what I say), but the other NP has been an amazing advocate for me. Given the nature of my symptoms right now, I feel like this appointment is especially important.

I started a monthly injectable 2 months ago and before my second dose, i had one of the worst migraines in recent history. I assumed it was related to withdrawal as my injection day was approaching (oh how I wish it was). Since then I’ve had constant headaches that are between 6-8/10 pain. I’ve had both toradol shots and steroid tapers and neither have helped. Rescue meds and OTC meds haven’t helped. This is unlike my usual migraines because my only symptom is the headache. It has minorly affected daily living only because I am not currently working. But this headache is exhausting and frustrating on its own! I want to be best prepared for this appointment to make sure my treatment plan adjusts accordingly while still hoping this is just a fluke migraine season!

reddit.com
u/Feeling-Actuator-907 — 4 days ago

Brighton - Comm Ave between Washington and Warren

Has anyone lived in this area? How did you like it? Pros/cons?

Late 20s professional, don’t like the party scene, but like to grab a drink every once in a while. I work in Newton and like the option to get downtown with the B line right there, but realistically won’t be doing that regularly (which I think is good given how slow the B line is?) Fine with city noise, but don’t want to be kept up by college kids every night. I’m thinking of moving to this area and wondering if it’s a good fit. Thank you!

reddit.com
u/Feeling-Actuator-907 — 13 days ago
▲ 3 r/cgrpMigraine+1 crossposts

Ajovy experience?

I just took my 3rd Ajovy shot. So far just some minimal improvement in symptoms but I understand it has to build up. However, the 10 days before my next shot has been a constant 8-9/10 migraine that doesn’t break. The first month I got a toradol shot and the second month I was put on a steroid taper. My neurologist is adamant that I cannot take it sooner than 28 days.

I have always metabolized medicine quickly and was hesitant to start the monthly injectable because of this. But I’ve failed many preventatives and was basically out of options, which has made me question if the root cause of my symptoms really is migraine. I was hopeful for the relief so many experience, but have yet to see those benefits.

So, for those on Ajovy (or another monthly injection) who experienced a “withdrawal” migraine before your next dose, did that get better the longer you were on it? Wondering if this is worth sticking with

reddit.com
u/Feeling-Actuator-907 — 16 days ago