Advice preparing for an appointment/self-advocacy
Hi!
How do you prepare for an appointment when symptoms have significantly worsened? Any advice on quantifying it or describing symptoms? I’ve struggled with self-advocacy but it’s never been a huge issue because I was relatively stable so I’m not sure how to best navigate an appointment (for the worsening symptoms to be believed, signed a woman with anxiety that is apparently to blame for everything!).
I have an appointment with a new NP in my neuro’s office. My neuro isn’t the best at listening to me (appointments are always rushed and she defaults to increasing meds regardless of what I say), but the other NP has been an amazing advocate for me. Given the nature of my symptoms right now, I feel like this appointment is especially important.
I started a monthly injectable 2 months ago and before my second dose, i had one of the worst migraines in recent history. I assumed it was related to withdrawal as my injection day was approaching (oh how I wish it was). Since then I’ve had constant headaches that are between 6-8/10 pain. I’ve had both toradol shots and steroid tapers and neither have helped. Rescue meds and OTC meds haven’t helped. This is unlike my usual migraines because my only symptom is the headache. It has minorly affected daily living only because I am not currently working. But this headache is exhausting and frustrating on its own! I want to be best prepared for this appointment to make sure my treatment plan adjusts accordingly while still hoping this is just a fluke migraine season!