u/Firm_Objective5924

I just want to say that the IVF subs are the most positive communities on reddit which is the exact opposite of the cancer sub groups I have joined. Like most of you I have done a ridiculous amount of research on IVF protocols, additional therapies I can add to help my chances. We have all gone down the rabbit hole of these supplements, HBOT therapy, intralipids, probiotics, medicated or modified natural, PGTA, you name it and have asked each other for advice and opinions on everything. EVERYONE on these subs has shared so openly about what worked for them and what didn't. NO ONE has ever mocked a poster for wanting to try this or that. I can't tell you how helpful you all have been and I try to be as helpful right back. We have commiserated together, cheered each other up, eased each other's anxiety. I have learned so much from all of you.

In contrast, NEVER have I seen so much insanely hateful gatekeeping from the moderators in the cancer subs I belong to whenever patients post about alternative therapies that worked for them. Survivors have been kicked out and banned for not towing the line of posting what the moderators want to see. It enrages and saddens me. This is valuable information that is being banned and deleted.

So thank you my IVF sisters for reminding me what a supportive place this is when it comes to sharing personal stories, protocols and suggestions without judgement or bullying. Wishing you all success.

Pancreatic cancer is the most deadly insidious cancer and we have actual survivors who have been kicked out of this sub for spreading what these moderators call "disinformation" and "miracle cures" only because it veers away from or adds onto standard of care protocols from oncology wards. Integrative oncologists who have had great success with pancan patients (some of whom I know personally) who incorporated adjuvant protocols that included keto diets, high does vit c, d, fasting, repurposed drugs, supplements are doing so well because of this. This is a personal choice that all patients have to make after doing their own detailed research and consulting with their medical team. Everyone is different. You can't call a protocol "disinformation" when there are hundreds of published peer reviewed scientific papers from the greatest research oncology institutions in the world including Johns Hopkins, MD Anderson, USC about the effectiveness of these repurposed drugs and therapies in their years long in vivo and in vitro experiments. Johns Hopkins has patented their own version of Mebendazole and are rolling it out in clinical trials with all their advanced cancers including pancan for crying out loud! Just because your oncologist doesn't prescribe it doesn't mean it doesn't work. A lack of large clinical trials doesn't mean it doesn't work. Again, it's a personal choice. Choose the protocol that makes sense for you and learn the science behind it. But no oncologist has ever claimed that this published research conducted by the leading cancer biologists in the world is false, so why are moderators on this thread acting like it is? Who is any moderator to decide an integrative medicine doctor is not worth listening to? Or the top cancer cell biologists, oncology researchers at Johns Hopkins, Boston College and University of Iowa are not worth listening to?

It's dangerous and wrong to be kicking out survivors whose protocols incorporated other things besides toxic chemo drugs. We should be hearing from ALL PAN CAN SURVIVORS who want to share their stories especially since there aren't that many of them, let's be real. And some of those survivors do include people who received only standard of care, absolutely. If one of the "rules" of being part of this subreddit is "NO DISCRIMINATION" then why are survivors and caregivers who incorporated these adjuvant protocols to much success being kicked out and banned? That sounds pretty discriminatory to me.

These moderators claim to only publish "evidence based" standard of care treatment plans, but there is no "evidence based" standard of care treatment plan from any oncology hospital in America that has effectively cured pancreatic cancer for all those dying from it! What clinical trial has cured a large demographic of pan can sufferers in the last 50 years? Maybe it's time to be open to new or differing scientifically backed information, isn't this what reddit is for? Especially with a cancer like this, the more information, the better.

This is life and death after all.