u/Forward-Designer3612

I genuinely don’t know what’s happening to me anymore and I’m desperate to know if anyone has experienced anything similar.

For the past 8 months I’ve been getting daily redness/flushing on my lips, especially after eating. Sometimes they burn, feel irritated or slightly swollen, then calm down again. Over the last month things have become much worse.

Now I also get:
- burning tongue/mouth daily (even though my tongue looks normal) I started take b6 vitamins and it helps a bit
- throat tightness(maybe from my anxiety)
- reactions to perfumes, creams and makeup that make my tongue/mouth burn even more
- swollen eyelids in the morning
-

A few years ago I also suffered from episodes of angioedema on my lips that would randomly swell badly, although those episodes just vanished after I had I diet to loose weight

I’ve already seen 3 allergists but had basically no proper testing done and I feel like nobody is taking me seriously. One specialist told me “you can’t be allergic to everything,” but my symptoms keep progressing.

I also have H. pylori, SIBO, dysbiosis and possible histamine intolerance, so now I’m terrified this could actually be MCAS or some kind of mast cell disorder. The throat sensations especially scare me because I constantly fear anaphylaxis.

I’ve even sought help for anxiety because this whole situation has destroyed my mental health, sleep and relationships, but I was also told my physical symptoms still need proper investigation and shouldn’t automatically be blamed on anxiety.

Has anyone experienced anything similar? Especially the burning mouth/tongue, reactions to smells/products, lip flushing and throat sensations?

I genuinely don’t know what’s happening to me anymore and I’m desperate to know if anyone has experienced anything similar.

For the past 8 months I’ve been getting daily redness/flushing on my lips, especially after eating. Sometimes they burn, feel irritated or slightly swollen, then calm down again. Over the last month things have become much worse.

Now I also get:
- burning tongue/mouth daily (even though my tongue looks normal) I started take b6 vitamins and it helps a bit
- throat tightness(maybe from my anxiety)
- reactions to perfumes, creams and makeup that make my tongue/mouth burn even more
- swollen eyelids in the morning
-

A few years ago I also suffered from episodes of angioedema on my lips that would randomly swell badly, although those episodes just vanished after I had I diet to loose weight

I’ve already seen 3 allergists but had basically no proper testing done and I feel like nobody is taking me seriously. One specialist told me “you can’t be allergic to everything,” but my symptoms keep progressing.

I also have H. pylori, SIBO, dysbiosis and possible histamine intolerance, so now I’m terrified this could actually be MCAS or some kind of mast cell disorder. The throat sensations especially scare me because I constantly fear anaphylaxis.

I’ve even sought help for anxiety because this whole situation has destroyed my mental health, sleep and relationships, but I was also told my physical symptoms still need proper investigation and shouldn’t automatically be blamed on anxiety.

Has anyone experienced anything similar? Especially the burning mouth/tongue, reactions to smells/products, lip flushing and throat sensations?

I genuinely don’t know what’s happening to me anymore and I’m desperate to know if anyone has experienced anything similar.

For the past 8 months I’ve been getting daily redness/flushing on my lips, especially after eating. Sometimes they burn, feel irritated or slightly swollen, then calm down again. Over the last month things have become much worse.

Now I also get:
- burning tongue/mouth daily (even though my tongue looks normal) I started take b6 vitamins and it helps a bit
- throat tightness(maybe from my anxiety)
- reactions to perfumes, creams and makeup that make my tongue/mouth burn even more
- swollen eyelids in the morning
-

A few years ago I also suffered from episodes of angioedema on my lips that would randomly swell badly, although those episodes just vanished after I had I diet to loose weight

I’ve already seen 3 allergists but had basically no proper testing done and I feel like nobody is taking me seriously. One specialist told me “you can’t be allergic to everything,” but my symptoms keep progressing.

I also have H. pylori, SIBO, dysbiosis and possible histamine intolerance, so now I’m terrified this could actually be MCAS or some kind of mast cell disorder. The throat sensations especially scare me because I constantly fear anaphylaxis.

I’ve even sought help for anxiety because this whole situation has destroyed my mental health, sleep and relationships, but I was also told my physical symptoms still need proper investigation and shouldn’t automatically be blamed on anxiety.

Has anyone experienced anything similar? Especially the burning mouth/tongue, reactions to smells/products, lip flushing and throat sensations?