u/FroyoApprehensive999

CH sufferer since I was 12. Only diagnosed 5 years ago. I’m 33 years old now and Pregnancy changed my frequency and I’m now experiencing triptan overuse symptoms. Neurologist is attempting to get me oxygen at home but I’ve had a bad run from February and it’s still going. I used to suffer between October- December. Now I don’t know when it’s going to end and I’m anxious and in pain just all the time. I’m tired!

We were at a friend’s house for a late lunch and when we got there I thought to myself that our friends have an acquired taste for alcohol. They had an entire wall with all kinds of alcohol. Expensive and for a “gentlemen” type like kind of collection.
I could see my Q feeling left out and as the male friend we had and the other friend that was there kept sipping on their drinks it’s was clear how isolated he felt even though myself and my girlfriend were not drinking.
We decided to head home as our daughter was getting tired and the moment we get home my Q offered to take the dog for a walk. When he came home he had a supermarket bag with ice cream and some dog bags. As he put the bag down on the floor I could see a can, I asked my husband what else he got and he just said dog bags and the ice cream. I then said “and an energy drink?” To which he admitted that it was an alcoholic drink.

I didn’t loose it, I didn’t react only because i put myself in his shoes and understood how hard that would have been.
Still not great.
I then said that I don’t care if he is going to drink just don’t hide it from me or pretend it’s not a problem. That he can drink if he can control himself and also continue to see a therapist and get the help he needs. I’m not his parole officer I’m his wife.
Anyway from that conversation he opened up more than I excepted. I never told him to stop drinking cold turkey to begin with, that was his decision so I think him not feeling shame around me might be the solution to make him want this more? I don’t know I’m all over the place to be honest I just need a break from all the stress and the lies. It’s draining!

I used to get CHs like clockwork from age 12 till 30. I knew when they were coming and could mentally prepare. Then I fell pregnant and they escalated.i used to get them through October till December and now it’s February till July.
I’m sleep deprived, I’m anxious about another bout starting. My triptans work 50% of the time. My dr refuses to give me oxygen at home and I’m so defeated. I’m waiting for a clinical trial to start but there’s a possibility I could get the placebo. Why can’t there be a solution for this already. I’m so frustrated I want to scream.
I had one of my worst ones last night and I’m just so exhausted from it all.