u/GGGJabs

▲ 11 r/UARSnew

Just got my DISE report, are soft tissue surgeries ever worth it?

I have just got my report back from the DISE I had last week. Here are some excerpts.

I have multilevel obstruction of grade III Croft Pringle classification, significant collapse of the oropharynx with the tonsils almost meeting in the mid-line and palatal vibration was seen too. My tongue base was pushing the epiglottis back towards the larynx. Jaw thrust did have some improvement but this was rather difficult to sustain.

My Dr wants to do a tonsillectomy and radiofrequency ablation of the uvula, tongue base, soft palate and potentially turbinates.

My preferred treatment would be jaw surgery and/or expansion but I need some immediate relief now, NHS jaw/expansion options could take over 18 months. Has anyone had success with soft tissue surgery in the view of getting jaw/expansion treatment later?

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u/GGGJabs — 4 days ago

Unfortunately the sublingual immunotherapy hasn't worked for me. Has anyone had success with the injections? This is for a dust mite allergy.

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u/GGGJabs — 20 days ago

I have a dust mite allergy and mixed rhinitis, any kind of artificial airflow really affects my sinuses. Is there such a product?

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u/GGGJabs — 23 days ago

The title might sound sarcastic but I'm 100% serious.

I can't use CPAP or BiPap because I have mixed rhinitis and any kind of created airflow makes my sinuses shut down for weeks.

MAD is not helping.

Immunotherapy isn't helping after 8 months.

I see people post about expansion and jaw surgery a lot but are there any options if you don't have the funds to go privately/to the U.S?

Getting a DISE on the 9th of May but if there are limited treatment options here I feel like giving up. I'm just so tired.

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u/GGGJabs — 27 days ago