u/Horror-Beaver1979

So sometime in the last year my heel started feeling numb, then in the last couple of months I noticed my toes were going that way too. Walking barefoot is majorly unpleasant, sort of feels like I’m missing the padding in my feet. Now my hands are also going numb.. Sometimes I feel some weird pain but it’s not constant.

My A1Cs are less than 7 and closer to 6 and have always been pretty good. It’s possible that there’s another explanation for the neuropathy but even so the result is the same and there’s no way to know for sure what caused it.

Anyways my question is do you eventually get used to this and it’s not as noticeable anymore or will it always feel bad?

I'm from Ontario, Canada. So my diagnosis consisted of some cortisol testing, AM/PM kind of thing. The results were on the lower end of the range but still in range. The PM part wasn't that late in the day, i.e. 3PM. I normally feel like crap later in the evening. After that I did an ACTH test and was diagnosed with just insufficient aldosterone. I'm on fludrocortisone and I do feel better on it.

I wanted to do an antibody test because it seems most likely that it is something autoimmune because I have type 1 diabetes which makes it 20x more likely. Hyporeninemic hypoaldosteronism isn't likely because my kidney tests are always quite good. My endo said that we don't do antibody testing here. If I wanted that, I'd have to go to the US and pay for it myself. Past experiences with our health care system has lowered my expectations quite a bit but is this really how things are?