u/Ill_Introduction7057

Post surgery - had my distal pancreatectomy and splenectomy at Royal North Shore Hospital on the 5th of August . (Still here) Well, today was the day My Surgeon ProfessorJas Samra came to see me this morning. He said that they found 8 or 9 Adenocarcinoma spots in my pancreas and the only reason he didn't take the whole pancreas (they took some colon , stomache and lower lymph nodes also) at the time is because my heart won't handle it. So I have to have my open heart surgery for mitral valve prolapse and severe regurgitation in 8 weeks time and then following that surgery ( not sure how long after ) I have to now have a 3rd surgery to remove what remains of my pancreas as there is cancer in there also. I'm so overwhelmed. It's been a lot already, and now a 3rd operation. I spent the whole day in my hospital bed curled up behind the curtain, crying and sleeping. I'm 61 and have 3 beautiful grandkids under 6 . I want to see them grow up.

Day 9 Sydney Royal North Shore Hospital after distal pancreatectomy and splenectomy.

Well, after being told last night not to eat and too fast, the Surgeon comes into my room at 7.30 am and says, "Are you eating?" And I said last night I was told to fast and he says oh no you have to eat you need nutrition and to start getting the creon and food etc.......all working for you. So yay, breakfast is back on . Then about 8 am I realised everyone but I had breakfast so I said to the nurse I didn't get breakfast and she said no, you're fasting . I'm like, WTF is going on . She says the Doctor said no breakfast because they want bloods and samples from all 3 drain bags . But you can have lunch. OMG....... Which I did get thank god, and I also took 2 creon and all was followed promptly by pain and wind . I'm still burping and have been for 2 days . The nurse says that's also part of the Creon settling in period. What an adventure. Was too full for dinner tonight.

Day 6 after surgery Day 6 after Distal pancreatectomy and splenectomy Sydney Royal North Shore Hospital-looking better every day. The surgeon told me the tumour was attached to my stomach and colon, so they have removed those bits and also my lower lymph nodes . Awaiting pathology results . 🙏🏿 Had my catheter, neck main line, and NG out yesterday, 10th August . Had to get a 3rd drain put in as the other 2 weren't reaching the last collection. Had a shower and washed my hair on my own. Went to the toilet.......finally . I'm still on free fluids, and I'm starving ....Hahaha, I started Creon .

Surgery tomorrow at Sydney Royal North Shore Hospital ....distal pancreatectomy and splenectomy. To say I am anxious is an understatement. Have to be there at 7am so leaving here at 5am to drive to Sydney. It's just hitting me now . Hope they get all the cancer . They seem to think it's contained in the Pancreas. 🙏🏿

Surgery on Wednesday 5th august . Pre-admission tomorrow at 1pm at Sydney Royal North Shore Hospital for my distal pancreatectomy and splenectomy. Also having a CT scan and an echocardiogram ( I need open heart surgery as I have mitral valve prolapse and severe regurgitation) the open heart surgery is next. To say I am anxious is an understatement. Been waiting 3 months for this as they had to get my heart sorted. I hope it hasn't spread . They say it looks contained in the pancreas but that was last scan 5 months ago. (Hence the CT tomorrow) . Who knows what they will find . I have decided that if the cancer has spread and they can't get it all out ......there is probably no use in me having the open heart surgery.

Today my Pancreas doctor's secretary rang and said they want me in hospital for a few days to do some tests etc........I'm confused I've already had a CT and and MRI and an ENDOSCOPIC ULTRASOUND. She said hospital will ring for a date .

Poor Frank, he's such an amicable bloke, and Teal is so Moody. Telling Frank to use his words like he is a child. Fancy being stuck with her .

MY hair was falling out, and it was hormonal. I started taking spironolactone and using minoxidil, and it grew back..... then 18 months later, it started falling out again, so I had blood tests, and I had low ferratin and haemoglobin. I started taking iron biscalate, vitamin c, and senior vitamins, and it started growing back. Now, 6 months later, it's falling out again. I found out recently I have to have a distal pancreatectomy and splenectomy soon because I have abnormal cells in my pancreas. I'm not sure if I have the big C or if its pre cancerous yet and won't know until they take it out . Is this why my hair is falling out again? I am also having open heart surgery to repair mitral valve prolapse and severe regurgitation very soon, too. I'm not sure which operation is first . The Surgeons are discussing which is first. What can I do?

Having meningococcal and pheunmacoccal vaccines today In preparation for my open heart surgery. Since I have to also have a distal pancreatectomy and splenectomy due to abnormal cells in my pancreas.....my Gastroentoligist has advised I will need these vaccinations because I will be having a splenectomy. Not sure which surgery is first though yet . Doctors to discuss and decide which one first .

Having meningococcal and pheunmacoccal vaccines today In preparation for my open heart surgery. Since I have to also have a distal pancreatectomy and splenectomy due to abnormal cells in my pancreas.....my Gastroentoligist has advised I will need these vaccinations because I will be having a splenectomy. Not sure which surgery is first though yet . Doctors to discuss and decide which one first .

Having meningococcal and pheunmacoccal vaccines today In preparation for my open heart surgery. Since I have to also have a distal pancreatectomy and splenectomy due to abnormal cells in my pancreas.....my Gastroentoligist has advised I will need these vaccinations because I will be having a splenectomy. Not sure which surgery is first though yet . Doctors to discuss and decide which one first .