u/Impressive_Bag8840

catheter pain

i’m in the hospital with a really bad issue. they had to catheterize me three times yesterday. twice it was a straight cath just to try and empty my bladder bc it was retaining urine gradually getting up to 397 ccs before the cath. both straight caths basically pulled nothing and when they pulled out the second there was sediment blocking the tube. finally they decided on just putting in a folly catheter and leaving it. the entire time j was screaming and crying bc it felt like they were using a knife on my urethra. even now, i would say the bladder pain is worse than it was without the catheter. i know the retention is a bad thing that has to be fixed no matter what, but i wish it would have eased some of the pain instead of just making it worse. idk what to do and why i was having so much sediment blocking my bladder/urethra. this came on only 10 days ago and to see and feel how bad it’s gotten so quickly is very scary/painful.

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u/Impressive_Bag8840 — 7 days ago

hospital visit

so i’ve (24 f) been admitted to the hospital because of the bladder pain i’ve been having it’s suspected to be ic. the only thing that had helped the pain that i’ve been offered is dilauded and now my urologist appointment is in 2 weeks. i obviously won’t be here for that long and can’t take dilauded home. i don’t know what to do it’s so painful all i can think about it dying. it hurts so badly and it only just started getting this way on monday or tuesday. i need help but i can’t get any idk anymore. idk if this is just a rant or if anyone has any suggestions. i just can’t do this.

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u/Impressive_Bag8840 — 10 days ago

…but it’s manageable!

i’m tired of looking up every new thing i get diagnosed with and seeing “it’s not curable but it’s manageable.” for who?????? so far it isn’t for me in fact it feels like 8 levels of psychological torture just to be awake for 2 hours. i’m hurting, i feel sick, i have neurological problems it’s not curable but boy do they say it’s manageable

reddit.com
u/Impressive_Bag8840 — 13 days ago