u/Inside_Possible_4078

since my doctors, (and from reading many of yours too) don’t seem to inform those of us on Diamox of the many many side effects, can we all make a list of the side effects we’ve experienced in this thread?

i apologize in advance if this has been done before. i’ve been on it since march and i feel like i have a new side effect going on every few weeks and i’ll google and i land right back into this reddit page lol. sometimes just reading through the threads people mention side effects that i had no idea about. i saw someone mention that it makes your saliva acidic?? which i guess leads me into my most recent one. i’ve been having such bad acid reflux when i go to bed lately. i take two 250mg pills 3 times a day. my doctor told me i should just take 2 in the morning and 4 at night to make it easier which at first i was happy about. less remembering or missing doses for me, but i guess ill be changing back to spacing it throughout the day.

another thing that keeps happening is i’ll feel like my upper lip is like twitching or heavy or numb. i cant explain the feeling. the first time it happened i honestly thought i was having a stroke or something. after a few instances (it doesn’t happen all that often fortunately) i think its due to low levels of potassium for me. at least i hope lol 😮‍💨

i (28f) started lexapro when i was 19 and went off i think when i was 25ish. at first, it was life changing! i had really bad anxiety and depression, insomnia and oversleeping, occasional panic attacks. i almost failed my senior year of high school just because i didn’t want to get out of bed in the morning. i dropped out my first year of community college because i didn’t want to get up for classes. lexapro changed all of this, i think i owe her my bachelors tbh. but after some time, i felt it wasn’t working as much as it once did and finally after being on the max dose for a while, i asked my doctor to switch.

i then switched to effexor, which i requested because my aunt raved about it. i didn’t like it much and 0/10 recommend due to the insane withdrawal brain zaps. i was on that for about a year. now i’ve been on wellbutrin for about 7-9 months i believe. i’m just so angry and irritable ALL of the time on it. i’m so tired of it and feel bad for my fiancé who gets the brunt of it. i had hoped things would get better but they aren’t. i might get scolded for this, buuut i stopped taking it about a week ago cold turkey because i was so tired of just being so angry all the time. now im still angry and irritable because that’s also a withdrawal side effect lolol.

in hindsight, i don’t really think that the lexapro wasn’t necessarily working for me anymore. i do think that it was, i just wasn’t in the place i was when i first started taking it. young and in college with barely any responsibilities. i think adulthood hit, i work as a social worker burnt out barely making any money and it was more situational things on top of my regular struggles.

i’m worried my doctor wont let me go back on it though. when effexor didn’t work out, i mentioned going back on it and he said that i shouldn’t go back onto something that i was already on and suggested wellbutrin. i know it takes trial and error but its been like 2 years now of me trying two different things and me just feeling so low and depressed. i don’t think i want to continue trying any other new medications. any suggestions on what to say to my doctor or if its a good idea to go back on it?

i (28f) started lexapro when i was 19 and went off i think when i was 25ish. at first, it was life changing! i had really bad anxiety and depression, insomnia and oversleeping, occasional panic attacks. i almost failed my senior year of high school just because i didn’t want to get out of bed in the morning. i dropped out my first year of community college because i didn’t want to get up for classes. lexapro changed all of this, i think i owe her my bachelors tbh. but after some time, i felt it wasn’t working as much as it once did and finally after being on the max dose for a while, i asked my doctor to switch.

i then switched to effexor, which i requested because my aunt raved about it. i didn’t like it much and 0/10 recommend due to the insane withdrawal brain zaps. i was on that for about a year. now i’ve been on wellbutrin for about 7-9 months i believe. i’m just so angry and irritable ALL of the time on it. i’m so tired of it and feel bad for my fiancé who gets the brunt of it. i had hoped things would get better but they aren’t. i might get scolded for this, buuut i stopped taking it about a week ago cold turkey because i was so tired of just being so angry all the time. now im still angry and irritable because that’s also a withdrawal side effect lolol.

in hindsight, i don’t really think that the lexapro wasn’t necessarily working for me anymore. i do think that it was, i just wasn’t in the place i was when i first started taking it. young and in college with barely any responsibilities. i think adulthood hit, i work as a social worker burnt out barely making any money and it was more situational things on top of my regular struggles.

i’m worried my doctor wont let me go back on it though. when effexor didn’t work out, i mentioned going back on it and he said that i shouldn’t go back onto something that i was already on and suggested wellbutrin. i know it takes trial and error but its been like 2 years now of me trying two different things and me just feeling so low and depressed. i don’t think i want to continue trying any other new medications. any suggestions on what to say to my doctor or if its a good idea to go back on it?

short and sweet backstory - had headaches for a while, thought nothing of it. super bad head pain/pressure mid february. left eye went crossed a week later. ERs kept dismissing as migrane but recommended an outpatient neurologist. they said most likely nerve palsy and recommended an ophthalmologist to confirm. they saw my optic nerves were super swollen and bleeding and promptly sent me to the ER with pictures. spent a week there getting every test possible, after a high spinal pressure and my eye going back to normal within a few days on Diamox they came to the conclusion of IIH. all of my other tests were normal.

upon discharge from the hospital (mid march) they highly recommended that i see a neuro ophthalmologist. they are rare in my area so i had to call one that is over an hour away and they didn’t have any appointments until the end of may. i have had a follow up with my neurologist who said i’m doing well. a few tests and follow ups with the regular ophthalmologist since. i just saw her 2 days ago to go over everything. she showed me all of my results and i passed the peripheral vision test and regular vision test very well. my optic nerves are not swollen at all anymore.

i feel like now i am still going to be waiting a month, taking another day off of work after being on unpaid medical leave for two months, driving over an hour to be seen but like with nothing to really show? would it even be worth it at this point. i don’t really feel like there’s much for them to do or see except maybe give me some more explanation of IIH. what would you do in this situation?