u/Interesting_Syrup821

Hi everyone- I have a family member undergoing lobectomy surgery next week and wanted to get ideas for a care package. What did you need on hand after your surgery? Thank you in advance 💕

Hi everyone-

Wanted to know what your recovery looked like post insertion. I’ve had my IUD for about two weeks and still have severe cramps, lots of bleeding, lots of clots.

My OB wants me to wait until my 6 week checkup to determine if it’s out of place. What was your experience like in the weeks after your procedure?

Exhaustion, brain fog, bloat, migraines, the list goes on. I feel like I can hardly function. Constantly cancelling plans because I feel so awful all the time.

Anyone else struggling with this?

Would love to know how many people in your life know about your diagnosis. My immediate family knows, and then I have two close friends who know.

I was diagnosed as a teen and have always felt so uncomfortable bringing it up to people. Most of my medical providers had not even heard of the diagnosis before, so I think this had an impact too.

Wondering if you are all feeling supported in this or feel quite lonely.

Anyone else have other chronic conditions? I've always felt my GI issues and migraines were connected to POI in some way, but have never had a provider confirm any overlap.

It was not something I was familiar with, and I’m so appreciative to all of you who have shared your experiences. Made it much less terrifying when it happened to me this morning. THANK YOU!

For clients who talk about wanting to be in therapy forever, how do you respond to this sentiment?

I wholeheartedly believe in long-term therapy, but also don’t want to create a dynamic of dependency.

Curious how others approach this!

I’m so tired of all the appointments, medications, regimes. All the horrible symptoms, side effects. Lack of information, lack of research, lack of understanding.

I so badly just want to have another body.

I’ve always had such a hard time thinking about dating. Between the myriad of symptoms, painful sex, brain fog- it just seems so unattainable.

Anyone else feel this way?

Does anyone else experience deep shame with this diagnosis?

I was diagnosed as a teen and have always felt so self-conscious, so shameful, so let down by my body. I've worked hard over the years to gain more acceptance, but the shame feels so hard to let go of.

Hi all-

My body has not been responding well to the progesterone pill so my endo recommended I look into the hormonal IUD.

I've heard so many horror stories about insertion pain, complications, etc- wanted to know if anyone else has gone this route. Thank you!

Saw some people comment on other threads that they were also diagnosed with POI as a teenager. I had never met someone else who was diagnosed so young, and would love to connect.

I was diagnosed at 16, currently in my 30's- had challenges getting adequate care for most of my life. If you want to chat, DM me!! 🩷