u/Internal-Cap-8885

I'm 22M with Addison's. A few weeks back I had a stomach bug that triggered a crisis, got hospitalized. A week or two after discharge my endo checked my renin, it was 6.98, so he bumped my fludro from 62.5 mcg to 100 mcg. I didn't think much of it and kept going. Within days my BP started spiking, hit 166/99, my face was flushed red, I was having panic attacks and feeling this constant sense of doom, even had suicidal thoughts which is not me at all. I was a mess for a whole week. Tonight I finally put it together: he measured renin way too soon after the crisis while my body was still recovering and probably still depleted, treated a temporary spike like it was my new baseline, and threw a 50% fludro increase on top. The insane salt intake just poured fuel on it. I feel so stupid for not seeing it sooner but also pissed because this was avoidable. I'm switching endos, going to Groningen UMC instead. Don't let them jack up your fludro right after a crisis without rechecking when you're actually stable. Also don't eat like a salt goblin on high fludro unless you want to feel like your head's gonna explode. Anyone else had their renin taken too soon and ended up over-replaced?

Does anyone else notice their tinnitus gets WAY worse during periods of anxiety/stress/panic?

The last couple days I’ve had a lot of anxiety and hormone/stress issues and my tinnitus suddenly became much louder, especially in one ear. The weird thing is it fluctuates a lot. Sometimes it’s almost gone, then later at night it becomes so loud I can barely focus on a YouTube video.

My hearing itself seems normal overall, which is reassuring, but the ringing gets super intrusive when I’m stressed or hyperfocused on it.

Just wondering if other people here experience the same thing where anxiety seems to massively amplify it?

I’m a male, 1.90m and around 95kg. I’m not super active, don’t do intense sports or anything, but I seem to genuinely need around 33–34mg hydrocortisone daily to function normally.
If I go closer to 30mg or below, I become extremely fatigued to the point where getting out of bed feels almost impossible. It’s not just “a bit tired” either, it feels like my body completely shuts down.
What confuses me is that a lot of people online say doses above 25–30mg automatically mean overreplacement
I take 20mg at 07:30, 10mg at 12:00 and 3/4 mg at 15:30 depending on how i feel.

Hey everyone,

I’ve got Addison’s and I’m trying to figure out if what I’m dealing with right now is something others have experienced or if I should be more concerned.

My baseline condition wasn’t great to begin with, but about 6 weeks ago I had a really bad stomach bug that actually put me in the hospital for over a week. Then about 2 weeks ago I got hit with the flu. Ever since all that, it feels like my stamina and overall condition just got completely wiped out.

Right now it’s honestly pretty extreme, even taking a few steps can leave me out of breath, and I feel way weaker than usual. It’s like I got pushed back to my worst baseline (or even worse). I’m still taking close to double my normal hydrocortisone dose as well.

What’s confusing is I went to the ER yesterday and they checked basically everything. Heart and lungs were fine, blood pressure was fine, temperature normal, no signs of infection at all, and all my electrolytes came back normal too.

Has anyone with Addison’s had something like this after back-to-back illnesses? Like your body just doesn’t bounce back and your energy/condition just crashes hard? Is it normal after 2 times getting sick people with addisons have to recover much slower?

How long did it take for you to recover, if you did?

Appreciate any experiences or advice.

I’m 21 and have Addison’s (on hydrocortisone + fludrocortisone).

About 9 days ago I had a mild cold/sore throat, nothing major. A few days ago I felt fine again so I went out and walked around the city for about an hour or two and Ever since then I’ve been completely drained.

I can eat and drink normally, no fever or vomiting, blood pressure seems okay and my resting heart rate isn’t high.

But as soon as I move, even just a few steps, I get really out of breath, start sweating and feel a pressure on my chest. My whole body feels like I just ran a marathon. It’s been like this for about 2 days now.

I already doubled my hydrocortisone dose, so that’s what confuses me. It doesn’t feel like a typical Addisonian crisis, but something is definitely off.

Has anyone with Addison’s or after a virus had a crash like this? Could it just be post-viral + overdoing it, or should I get this checked urgently?