▲ 1 r/EBV

Recurrent reactivated EBV but why? Are these daily symptoms normal? And is a tonsillectomy ok?

Hi, I’ve gotten tonsillitis about 10x in the past year. Urgent care and primary care and ER would check for strep- always negative.

An ENT offered me a tonsillectomy in a few months.

I kept asking for other testing from all these clinics but I was always told no, including when I asked to test for mono, as I had gotten that in 2019 and my tonsillitis flare ups reminded me of that.

I paid for a bunch of testing myself. Early antigen EBV very elevated, mild eosinophilia, and elevated mold toxin panels. Lyme, ANA, ESR, CRP, ACE allergy panels, etc whole bunch of tests I did were all negative or within range.

Finding out on my own that I am having recurrent ebv- should I still go forth with a tonsillectomy? Would that help me at all?

And after every flare up of tonsillitis/ebv I have gotten a new set of daily symptoms. First it was POTS or like that, then daily low grade fever around 99.7F, then narcolepsy or something like it, now severe debilitating pain in my joints and muscles. This has all been going on for a year! These symptoms are a daily and regular part of my life now. My most recent tonsillitis episode was in late May and that is when I acquired the daily pain symptom.

Is that normal to get these new daily symptoms with recurrent reactivated ebv?

And what can trigger this? Medical professionals will not take my mold toxin panel seriously as they could write that off as due to diet. But my home does have confirmed mold.

Can mold trigger this? Or is there something else I haven't checked for?

I seriously stay up at night wondering if I am dying and what the process of dying is like. This is affecting my relationship and my ability to take care of my pets and kids. I would love any advice. If theres any tests I should consider or specialists I should try to see please tell me. Using AI and google has unfortunately sent me on some wild goose chases.

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u/ItsACookbook1 — 7 hours ago

Thanks to this sub I have answers to our unexplainable medical problems. Scared about what comes next.

tldr: new build home with mold all in the structure, builder remediated some of it and dismissed the extent of the damage, whole family has been sick for over a year even after remediation, mold toxins came back elevated on lab test

Hi, my husband and I moved across the country for military orders back in 2024. We thought that buying a new build would save us a lot of headaches.

Turns out that our home was built in the PNW rain and left to sit out uncovered, soaking all of the OSB framing and roof and crawlspace, etc.

We immediately had the home “settling” where it felt like beams in the floor are damaged or rotting out. The walls and ceiling had cracks going down them. The floors are creaky and feel like they won’t support our weight. The builder patched up whatever they could within the first year warranty and dismissed the seriousness of the issue.

In the rainy season, January 2026, I heard water dripping into the attic. We looked up there and found the entire roof/attic made of OSB covered in thick mold allover. It felt like a walk in the Hoh Rainforest and smelled like a biology lab up in there.

The builder sent in their go to mold remediation company and it took several weeks/months of having our master bath and closet sealed up and pressurized with a dehumidifier running non stop. They put in more vents in our roof to help circulate the air as well. We got insulation taken out and replaced. Whole process.

And after that, the damage to our floors and walls seemed to continue. I feel worried that our kids will jump and then fall through the second story or something constantly. We got a air quality meter and it says something like VOC’s are going on. We got a cheap home depot moisture reader and it beeps and says there is high moisture in our floors and walls. We haven’t contact anyone about this yet as my husband has been traveling for work non stop, I have 4 kids at home, I have health problems, and also mental health problems. So much going on.

It’s been about 3 months since the attic remediation and I keep putting off my concerns that I believe the entire structure of the home is compromised.

So about our health problems-

Our dogs both acquired mast cell tumors out of nowhere this year. Our oldest is close to the rainbow bridge so we assumed it was due to his age but our other boy is only 4yo. It cost us thousands to get them both surgery and no explanation from their vet. We believe more have popped up, too, just small right now. This also impacted our dog’s wellbeing as their surgeries were rough and the incisions were large and their recovery was delayed.

Our kids are mostly in school or at playdates and such during the day but when they are home they have appeared irritable. They also repeatedly tell me they have seen things, like full on auditory and visual hallucinations. And this is with air purifiers and dehumidifiers running constantly in our kids rooms and in our master bedroom and changing our ac filters monthly etc as I always have had that set up from growing up in Florida with all of the dust from dirt roads and pollen etc. Luckily, I kept that habit because it’s bad as it is in hindsight! Recently, my 10yo has been telling me he has headaches and asking for tylenol. My 2yo is constantly sniffling and coughing. The np’s and pa’s our kids see have given us referrals to ENT but it‘s months out. So we are coordinating it all but it’s a waiting game.

My medical problems have been horrible and life altering. I definitely feel more emotionally unsteady and got into therapy. The emotional things I get I think are justified but the feeling of my emotions are extreme and affect my ability to make rational decisions or function day to day. I started therapy last year around summer 2025.

At that same time, summer 2025, I got tonsillitis with a high fever and I was unable to swallow and I got on antibiotics and steroids without explanation. Strep was negative and they refused to do a mono test despite me telling them I have had mono before in 2019 and it felt like that. Repeat this over and over and over again. Like 10x now. Three different ENT’s with no answers. This latest ENT the other month scheduled me for a tonsillectomy consult, which will be next month.

Every time I got tonsillitis it felt like I acquired a new daily life long symptom. First it was like POTS and that was not diagnosed but I did a table tilt test and my heart rate would spike to like 110 while sitting up. I use tachymon on my apple watch now to monitor that. Then around December 2025 I began getting daily low grade fevers (its like 99.7f every time) and with that sleep attacks that I assume are narcolepsy? I get them when not tired and had full nights rest too, and it only lasts about 15 minutes and it feels like I go into this state of being awake but in a coma? I don’t know what a coma is like though but that’s what I assume it would be like? After 15 minutes I am back to normal and my body temp is reduced and the redness and sunburn sensation I get on my face and back go away.

On this latest tonsillitis case in May 2026, I developed daily joint and muscle pain that is debilitating!!!! I struggle to walk now and I am scared that I will end up in a wheelchair. I discovered that if I take ibuprofen it wipes all the pain away for like a day or two. Then it eventually starts to accumulate again and in different spots and joints.

That’s the point where I start googling and asking ai what the hell is going on with me. I got a list of labs, like an array of them, and then I started just buying them online through labcorp and getting them done. I took out mini credit card loans to afford them all. My doctors weren’t caring or doing f all about this for a year now and I began feeling like I am going to be disabled or dead the next round of tonsillitis.

Results came back with me looking like a healthy 36yo for the most part except for- elevated over range eosinophils, over range early antigen ebv. But all the regular panels were normal, no lyme, no strep, no allergies at all.

So I learned that my constant swollen neck and lymph nodes and the nodules on my knee and nodules on my lungs and neck lymph node nodules and tiger stripes or whatever this is all called, whatever they had seen on ct scan during my tonsillitis er visits - mono! Recurrent chronic, reactivated mono.

So all of these new daily symptoms are being triggered by mono?? So why am I getting mono over and over?? I am healthy, what is tanking my immune system??? Google told me to check all these various labs like inflammation or the lyme panel (I have had a ring rash in 2025 and was always hiking then when I felt better so it was a possibility but less likely because pnw- I assume it was a bug bite that was infected) and it told me because of my recent mold remediation in the home I should do mold allergy panels or mycotoxin test.

Well I got the mycotoxin test results back yesterday and I guess that would explain all of our immune systems being weakened. Especially our dogs and me since we are home all day, every day.

But now there is so much to do to fix this :(

u/ItsACookbook1 — 4 days ago

Thought it wouldn’t be me, but here I am. I got ghosted by my husband on a layover. Please give me all the girl advice.

Husband is still relatively new to his airline career so I don’t know too much of what to expect. I have gotten some advice here before but it was reasonable advice and I learned to accept the changes and trust the way things are.

For context on how we work- he always texts and calls whenever he can. I am understanding if he can’t respond right away or at all if is having a meal with a captain or napping or exercising. He still usually will check in with a couple texts though, and he doesn’t ever stay out long, anyway. He always FaceTime’s before bed, too. We communicate a lot!

So yesterday he got a long layover at a fancy exotic resort. He initially asked if maybe I wanted to go with him as it’s on the weekend and I said yes but then he told me later on that there were no available seats.

When he got there it really felt as if he was intentionally trying to upset me or start a fight with things he was bringing up over text. I got busy with something and he texted me that he was going out with the captain and he will talk later. Usually he is texting me as he is walking down the hall to the captain, in the taxi, at the brewery, and then on the way back etc, so I thought it was strange that he stopped at that and never even mentioned he would be going out before that?

Anyway, I texted a couple times, then eventually began calling because I was panicking something maybe bad happened (I feel like a pathetic, desperate idiot for that now). No response, like 3.5 hours ghosted.

He then FaceTime’s me and when I answered, he was lying on his hotel bed with a robe on and he is not a robe guy. He never goes shirtless and he never wears robes. It was strange and he doesn’t drink, he never will drink with me either even if I ask him too on special occasions- and he swears he can’t drink because of his medication for cholesterol but he looked drunk? I asked if he drank and he was like yea, “maybe 1… maybe 2… maybe 3…” Then when I told him I was upset and I thought something bad happened to him he began rolling his eyes and then got up and started to get dressed. He told me he was going back out to eat and drink in the city with the captain and he had to go and I was making him late (he FaceTime’d me and it had been like 5 minutes lol).

At this point, I had accepted my L. So I didn’t reach back out. But again, strangely, no texts and no calls from him again. Not while out, not all night. I did eventually get “goodnight,” which was unusual because normally he facetimes or texts a bunch of hearts. I was already asleep then though and he would have known that.

This morning, nothing from him. And I’m not going to humiliate myself again like I did yesterday with all of my calling. He is on his way back home now. I don’t know how to act in person and after crying last night, I’ve been dissociating today.

I need any and all advice, please. Completely understandable if I get backlash or no replies but just typing this out was really therapeutic for me. And thank you if anyone reads all of this.

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u/ItsACookbook1 — 7 days ago
▲ 1 r/MCAS

Random question about dogs and MCAS and toxic environment

Prior context: TLDR I am not diagnosed. I believe I am experiencing MCAS as I fit all the symptoms and I have done my own experimenting where I only have intense symptoms when at home where there is known mold all throughout the entire home and I have also felt relief with trying pepcid and claritin, although not perfect relief. My symptoms are severe and debilitating and I have been looking for answers for about a year now from multiple doctors and referrals. However, I have not done any mold toxicity or MCAS related labs or found a doctor who cares, yet.

While looking into this stuff, it took me a minute (days) as my brain feels like scrambled eggs but both of my dogs have multiple mast cell tumors that we have had to remove and have more surgery dates upcoming for removals. They only started developing the tumors since moving into this home which is full of mold. However, one dog is 12yo and the other is a 4yo golden retriever so both would already be prone to tumors, in general.

I don’t know anything about immunology so I just asked google ai if my dog’s mast cell tumors could be associated with this mold house but it said not really.

Is there anything anybody knows about dogs reacting to severe mold toxicity? I would ask in the mold subs but it’s a little woo-woo science over there.

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u/ItsACookbook1 — 2 months ago

Collier County Board of Commissioners voted unanimously (5-0) to approve a major development project known as Corkscrew Grove East.

The plan was proposed by Fort Myers-based Alico Inc. and it will transform a former citrus grove into a new residential and commercial hub in rural Collier County.

The approved community will span approximately 1,446 acres near the intersection of Corkscrew Road and State Road 82. The development will include up to 4,502 homes.

To build the village, Alico has committed to permanently preserving 4,500 acres of environmentally sensitive land nearby, including the Felda Grove, which serves as primary habitat for the endangered Florida panther. A key feature of the plan is a wildlife underpass already under construction beneath State Road 82 to allow panthers and other large mammals to safely cross the region.

Critics, including the Sierra Club and some local residents, argued that the project constitutes sprawl, which will increase traffic, and poses a fatal risk to panthers despite the underpasses.

Sources:

• sergei_kelley via IG, 04.29.26

• Naples Daily News, “Collier commissioners,” 04.29.26

• WGCU/NPR/PBS, “Collier commissioners,” 04.29.2026

u/ItsACookbook1 — 2 months ago