Recurrent reactivated EBV but why? Are these daily symptoms normal? And is a tonsillectomy ok?
Hi, I’ve gotten tonsillitis about 10x in the past year. Urgent care and primary care and ER would check for strep- always negative.
An ENT offered me a tonsillectomy in a few months.
I kept asking for other testing from all these clinics but I was always told no, including when I asked to test for mono, as I had gotten that in 2019 and my tonsillitis flare ups reminded me of that.
I paid for a bunch of testing myself. Early antigen EBV very elevated, mild eosinophilia, and elevated mold toxin panels. Lyme, ANA, ESR, CRP, ACE allergy panels, etc whole bunch of tests I did were all negative or within range.
Finding out on my own that I am having recurrent ebv- should I still go forth with a tonsillectomy? Would that help me at all?
And after every flare up of tonsillitis/ebv I have gotten a new set of daily symptoms. First it was POTS or like that, then daily low grade fever around 99.7F, then narcolepsy or something like it, now severe debilitating pain in my joints and muscles. This has all been going on for a year! These symptoms are a daily and regular part of my life now. My most recent tonsillitis episode was in late May and that is when I acquired the daily pain symptom.
Is that normal to get these new daily symptoms with recurrent reactivated ebv?
And what can trigger this? Medical professionals will not take my mold toxin panel seriously as they could write that off as due to diet. But my home does have confirmed mold.
Can mold trigger this? Or is there something else I haven't checked for?
I seriously stay up at night wondering if I am dying and what the process of dying is like. This is affecting my relationship and my ability to take care of my pets and kids. I would love any advice. If theres any tests I should consider or specialists I should try to see please tell me. Using AI and google has unfortunately sent me on some wild goose chases.