u/Jaded-Improvement979

▲ 400 r/POTS

My boss refused my request for a virtual meeting accommodation, then asked for the same one himself.

I have POTS, C-PTSD, AuDHD, and anxiety/depression, with a full WFH accommodation. My performance is exemplary, and I am a high contributor. When my boss insisted on an in-person meeting, which I knew would be difficult, I asked to attend virtually to manage my symptoms. He immediately refused — I only got him to agree to a larger room.

On the morning of the meeting, he asked to switch to Teams because he woke up with vertigo-like dizziness, nausea, and didn't feel safe driving. He spent the whole day reclining. Fine the next day, of course.

I accepted without hesitation and empathized. When it was just the two of us, I told him he was experiencing my everyday, and that was a good day for me.

The kicker: he's also head of HR.

I'm not angry, just... still processing. The irony is almost too on the nose to be real. Along with the blatant discrimination and bias. I would be lying if I said I felt he didn't believe me and thought I was using my disability as an excuse, and not that I wanted to be in a more equitable position.

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Art Fair Today

I went to an art fair today and got there right when it started. I went to find one vendor, enjoy the beautiful morning, and get this done ASAP. Once I hit the bulk of the crowd, it was strollers, double-wide strollers, and unmanaged children. And no one yields; they literally just push you out of the way, even if you are walking forward, and they come out of nowhere and cut you off.

This was in a sculpture garden at a contemporary art museum in the city. So, once I broke away from that mess, I was surrounded by running, screaming children on the lawn. Terrorizing a goose and her goslings that were trying to beat it across the pond to the island the sculpture was on as fast as possible. I wish I could have too.

I have a plethora of issues, including AuDHD, C-PTSD, and POTS. I am overstimulated and overwhelmed by life in general. For me, leaving my place to venture out is rare and exhausting AF. I work from home, and do not travel very far from home base. I am a 58-year-old spinster with a small dog who lives in the city and will until I die. #Spinstercore

I don't hate children per se, but they really kill a vibe, fast. And the buzz kill parents seem soulless AF. I heard one woman exclaim, "You're such a nut," to her 6-year-old daughter, who was fucking around with some nonsense and was swinging around in a tight crowd instead of telling her to cut it out and why.

Her tone was flat, lifeless, joyless, and exhausted-sounding. I thought I was dead inside, but I am so glad I held the line and never got taken. I am so fine sitting at home, knitting, and making soups while I watch "my shows" with my small dog always by my side, in peace and quiet.

I found the out-of-the-way area where a group of old women were using their walkers to hold their bounty from the food trucks, far away from the chaos, and nodded in respect as I walked away from it all. Feeling solid that I too will one day be eating egg rolls off the seat of my walker chair, in the back of the sculpture garden, on a beautiful day, with my besties.

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u/Jaded-Improvement979 — 14 days ago
▲ 19 r/POTS

I got my first "mobility scooter"

After 3 years of hell and 7 months post-diagnosis, a seated scooter just gave me my city and life back 🛴

Three years of not knowing what was wrong with me. Then, a diagnosis seven months ago. And somewhere in between, my nice e-bike got stolen — which felt like losing a limb, because walking has become genuinely hard.

I'm in Minneapolis, live car-free by choice, and my whole life is built around being walkable/bikeable to everything. I'm heat-intolerant and faint, so the climate here actually works for me (yes, I chose Minneapolis for the cold, and I grew up here).

The lightheadedness and blurred vision have made me too scared to ride a bike or drive. I'll use the city's car-share program occasionally, but I have to walk to the car and then sit there, waiting for a dizzy spell to pass before I feel safe driving. It's exhausting, and an Uber is about the same cost.

I used to bike my little dog to the lake near me, sit on the shore, knit, and watch the Egrets. Last summer, with no bike and no ability to walk the distance anymore, I lost that completely. I got depressed and sad about how debilitating this is.

Enter: the seated scooter with a basket between the footrests for my dog!

My dog carrier and dog fit right in that basket. We did a loop around the lake yesterday, and she was absolutely living her best life, as was I. More stable than the bike, more secure, and honestly, more fun.

But here's the thing — this isn't just about the lake. I can scooter to work now when I need to go in (I work remotely on an accommodation). I can run errands. I'm heading to the art fair at the Walker Sculpture Garden today. I live literally 200 feet from a protected bike highway that connects to a whole chain of lakes with almost zero car crossings. I've been locked out of all of that for over a year.

Yesterday I got some of my life back. Wanted to share in case anyone else is trying to figure out how to stay mobile in a city. I am not at the point where I would want a wheelchair or a medical mobility aid, and I plan to stay as conditioned as possible. I can get to the destination easily and regain some autonomy. This feels like a really great solution for where I am today. 💙

Best $600 bucks I have spent in forever - https://gyroorboard.com/products/gyroor-c1plus-electric-scooter-650w-with-big-seat-carry-basket-ul2272?utm_source=preciso&utm_medium=cpc

u/Jaded-Improvement979 — 14 days ago