u/Jhello05

Edit: why is this downvoted lmao, you should feel ashamed

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Anyone else also significantly shorter compared to your family or was there an atypical growth pattern?

I stopped growing at the age of 14 (male), which was actually almost simultaneously with my first UARS symptoms. I am now about 20cm/8inch+ shorter than my brother, shorter than my sister and the shortest male in my family. Though I’m still 176/5'9.

Ofc it is logical that UARS can interfere with height growth, but this much?

Has anyone here tried a (DIY) reflux band for LPR during sleep? Did it help?

Appreciate it!

Has anyone here tried a (DIY) reflux band for LPR during sleep? Did it help?

Appreciate it!

To anyone here that is dealing with “chronic” fatigue, doesn’t really have post extertional malaise and did a sleep study, with a negative outcome for sleep apnea: there may be a change it is caused by UARS.

So I was chronically fatigued (with all kinds of different symptoms) from about 14 to now, 20. Visited multiple different MD’s, did 2 sleep studies and still no outcome. The neurologist-somnologist had said my sleep was perfectly fine, since I didn’t have any apneas and tried to gaslight me into thinking it was just unexplained chronic fatigue. Turns out my sleep is everything BUT fine and I deal with UARS. Informally diagnosed myself and I’m currently on treatment (BIPAP) and my symptoms are improving already!

I strongly suggest looking into it.

To all people here: I am interested in how your UARS started. This includes:

-Your profile: was there a specific predisposition
or something you suspect played a role (neurodivergence, anatomy, allergies, etc) or was there a trigger (stress, extractions, post viral, trauma etc)
-how quickly the UARS developed and how fast the symptoms progressed
-what symptoms you had when it started and what symptoms you have now/before treatment

So for me it started at around the age of 14-15 (symptom wise) and not acute. I noticed that I was becoming more sensitive to certain stimuli like light and was a bit more sleepy throughout the day. Didn’t think much of it and was told by others, it was likely just my autism. From there, symptoms slowly got worse. It wasn't until about 17 that I realized something was really wrong with me. That's when the brain fog and fatigue really started to get worse and symptoms of depression started to appear, I could also sleep straight for 11-12 hours without feeling any better.

From the age of 19, it really kicked in for me and everything got much worse and I developed new symptoms related to dysautonomia, to the point where i can’t enjoy anything in my life anymore, literally just fkn nothing. Now 20 and began to use BIPAP after failing CPAP.

Regarding the onset of UARS: I do have allergies, a recessed maxilla, neurodivergent, asthma and nasal issues that all probably contributed. But what surprises and confuses me, is that before I had orthodontics done at 13, my mandibula was really recessed and my maxilla was really small and never really had problems with it. During orthodontics I did a few things including a rapid palatal expansion, twin block and normal braces. This must have had a positive effect on my upper airway, but somehow the UARS still developed a year later, so I assume that the anatomy of the upper airway was not the trigger. Now during that time I also got infected with COVID a few times and it hit me pretty hard, but recovered just fine. I still think it may be the trigger for the onset of UARS: there are multiple studies indicating that COVID can lead to neurovasculair damage in the brainstem where the respiratory centre is located as well.

I appreciate your time a lot and would like to hear your story!

For those of you that use an ASV with a flow limitation algorithm: I am curious to know how much your pressure changes in different sleep stages and does this pressure also increase as the night progresses?

Regarding breathing, is expiration easier with nasal pillows compared to a full face mask? And is it easier to trigger ipap (initiate inspiration)?

Is a low tidal volume, while on bipap with a high pressure support, generally more characteristic of lung issues?

Tv ranges mostly between 275-325 thoughout the night, though I’m a 70kg/155lbs male.

As a young aged child (<10 years old), I only experienced asthma attacks on ocassion. After a few years of using inhaled steroids, it got fully under control and never got attacks anymore. Therefore my doc decided I could stop taking it. Years later (late teens), it crept back in very slowly. So symptoms include: a constant shortness of breath, a feeling of the airway swelling in heat, chest tightness, and wheezing when exhaling very hard OR very softly, but never an asthma attack. My stamina is also really poor. Very occasionally, I also experience the classic asthma symptoms, like a subtle wheeze when breathing out normally and then I take my "rescue inhaler" and that helps, but not for the other symptoms. Since this crept in slowly over a period of about 4 years, I never realized it was my asthma. I have now been on inhaled steroids (Fostair Nexthalor 4 puffs/day) for just 16 days: I do notice some difference, though not that much yet. I do notice a better sense of smell in my nose though.

Given my case, is there a high chance that because it was left untreated for so long, it will take much longer for these symptoms to subside?

^ And did anyone experience this as well?