u/LilMikeyMike

Traded to get closer to complete a couple sets. Great communication, very helpful in pulling the cards I needed, and great packaging. Can’t recommend enough. Thank you!!

I do deal with the shooting headaches sometimes at random. But my main problem is the brain fog and the feeling of floating. What has worked best for the people in this category?

Hey guys, I cannot tell you how happy I am to have come across this group and condition.

From a week prior to Christmas 2025 until the first week of February, I had a very bad prolonged upper respiratory infection. In the middle of January, I started to get these electrical headaches from the back of my head to the front of my eye. It almost felt like the back of head was bleeding. Didn't really think much of it until I started to get jaw and ear pain. Went to my PCP and she referred me to an ENT, thinking it was an issue with my ear. CT Scan came back and I had a swollen lymph node in my neck. More prednisone and a long-lasting steroid injection have helped. I have severe brain fog and sensory issues. After finally loosening up my back and shoulders this last week with massage and physical therapy, which I have been going to three times a week, I noticed more identifiable pain around the base of my skull to the front of my eye, like a rubber band around my head.

I know medical advice is disallowed as it should be but has anyone else experienced this from tight muscles in the back of the head that will not release after months? I don't know if the nerve pain is causing the tight muscles or the tight muscles causing the nerve pain? Or maybe if the swollen lymph node is hitting a nerve or tightening up the muscles in the area. After going down rabbit holes online for the last four months, I finally came across ON and have literally every single symptom. It is refreshing to know I finally might be getting closer to answers.

I see my PCP next week to hopefully get a referral to a neurologist. Is there anything I should let the neurologist know other than symptoms? Also, what treatments could I possibly be looking at and what imaging will they need to run on me?

I would not wish this experience on my worst enemy. I am so tired of this.

Truly much love guys. I just hope I can move on from this sooner than later. I will never take my health for granted again.