Just a little rant - warning talks of mental health and doctors ignoring
So I have been struggling since I was about 14. I initially just started with ticks and frequently feeling ill (feeling really sick but not being able to put a pinpoint on what it is) which I later learned was one of my symptoms. And this is where things got really hard.
I was already under CAMHs for my ADHD and I was on some medication which really helped my ADHD and I was also finding helped with the tics but research suggests that that particular medication makes tics worse so I was taken off it and put on something else which didn’t help at all, I just got really bad side-effects from and then they put me on a sedative which again didn’t help at all but made me incredibly tired and again really sick so they put me on some short acting ADHD medication and while it was in my system it worked but when it left my system I experienced really bad crash and this massively impacted my mental health and I found my functional symptoms very quickly getting worse to the point where it was affecting the muscles in my eyes leading them to spasm and uncontrollably move when I finally got a new doctor they took me off the medication that was not helping and put me back on the medication which I had always said had helped but I never received any support for what I went through when I was on medication which was the wrong medication and nobody listened to me when I was telling them it was wrong.
Later I got a new psychiatrist and at this time everything had gotten so much worse to the point that I was experiencing severe muscle spasms in my arms and legs as well as paralysis and seizures and we spoke to the psychiatrist about it and my mum suggested maybe getting me a wheelchair so that I could still live a normal life but my psychiatrist said no because it would reinforce my thought that I needed help and that when I experienced these types of flareups people should refrain from helping me because again it would just reinforce my thoughts that I needed help and that I needed to be looked after and that was also her reasoning as to why she wouldn’t do the tests for a diagnosis despite the fact that she said it was most likely FND
All of this has just left me feeling really ignored and like I cannot trust medical professionals because I was telling them that I needed help and that things were wrong and they just wouldn’t listen and it’s something I’ve carried for a very long time and when I tell some people about it, they just tell me that I should get over it because it happened but it’s not happening now, but it’s still really hard