u/Local_Ranger_811

I think I got better for a month or so, but now suddenly everything is worse.
I still have those episodes when i can’t initiate my swallow, and I’m slurring on certain letters.
But my twitching became more localized. My face ( lips are quevering, chin is twitching when i swallow, entire face, forehead, bridge of nose, but what scares me more now is that if I move my lips or touch them they twitch for couple of seconds very fast and stop. if I open my mouth I twitch next to my nose, If I tap my chin i twitch there, and also mu feet and my thenar muscles both hands. Not the calves or any other muscles. My tongue when I protruding it is so bad exactly like a bag of worms but only when protruded and it stopes after 20 seconds at rest.
What’s happening? I again went online to read and information are contradictory. Some say point away from AlS some say no. Videos on Youtube and one study that i read says that is not good.
Why my twitching got localized to the bulbar area and why is happening when I tap the muscle?
I twitch in all not that usual places, like above the collarbone, under the chin in the throat, and trapezoid muscle, all well recorded to be involved in early ALS. Is not clonus is the actual muscle belly twitching after a tap. Im very worried. I start twitching a year ago first in my eye and then entire body. The issues with bulbar area started in February.
Anyone else like me?

I think I got better for a month or so, but now suddenly everything is worse.
I still have those episodes when i can’t initiate my swallow, and I’m slurring on certain letters.
But my twitching became more localized. My face ( lips are quevering, chin is twitching when i swallow, entire face, forehead, bridge of nose, but what scares me more now is that if I move my lips or touch them they twitch for couple of seconds very fast and stop. if I open my mouth I twitch next to my nose, If I tap my chin i twitch there, and also mu feet and my thenar muscles both hands. Not the calves or any other muscles. My tongue when I protruding it is so bad exactly like a bag of worms but only when protruded and it stopes after 20 seconds at rest.
What’s happening? I again went online to read and information are contradictory. Some say point away from AlS some say no. Videos on Youtube and one study that i read says that is not good.
Why my twitching got localized to the bulbar area and why is happening when I tap the muscle?
I twitch in all not that usual places, like above the collarbone, under the chin in the throat, and trapezoid muscle, all well recorded to be involved in early ALS. Is not clonus is the actual muscle belly twitching after a tap. Im very worried. I start twitching a year ago first in my eye and then entire body. The issues with bulbar area started in February.
Anyone else like me?

I asked similar question before, but not many answers.
My tongue start buzzing like feeling on one side all the time. It’s like internal vibration. All the time. I have pops like twitches in supra-hyoid muscles and massester. I’ve heard that those are not good. Along with neck above the collarbone and lips and chin.
Very scared from bulbar with all the other symptoms.