u/Mbruno1983

Hey you guys all no my story by now for those that dont here is a quick run down...Its been 6 months of bilateral constant muscle twitching in my calves and feet.. i also get pop ups and hot spots in my thighs hamstrings biceps triceps forearms shoulders chest back neck and face.. i have face tingling... had a clean emg at 19 days in... emg 90 days in that picked up a couple fasciculations i had another emg 105 days in that picked up lot of fasciculations in my bicep but doctor said normal emg i got another emg 153 days in and that came back normal.... i had L3 L4 L5 S1 lumbar back surgery on August 11th after that I got some weakness in my left calf.. 3 days now my right foot has been pins and needles ..i have been so depressed that i got the dreaded disease i can't stop thinking about it..

Besides my calves twitching 24 /7 from the beginning but they dont really bother me becausethe are faint... this is day 3 of this constant thumper in my triceps.. I getveven get a good night's sleep.. I have tried everything to get it to stop.. what was your longest hotspot?

I have bee to a few neurologist I have had a mri and a few emgs.. they say the twitching is benign fasciculations .. but they dont no what causes it or how it got started l.. and they really dont seem to care that we have to live with these symptoms.. just frustrating.

Its been 6 months of bilateral constant muscle twitching in my calves and feet.. i also get pop ups and hot spots in my thighs hamstrings biceps triceps forearms shoulders chest back neck and face.. i have face tingling... no weakness.. had a clean emg at 19 days in... emg 90 days in that picked up a couple fasciculations i had another emg 105 days in that picked up lot of fasciculations in my bicep but doctor said normal emg i got another emg 153 days in and that came back normal.. so they diagnosed me with most likely bfs... I was just starting to except it when I talked to some one thats husband had als.. his started with twitching in his right hand for a year than he got twitching in his leg and than drop foot.. after that his voice changed and started slurring words.. he was diagnosed with bulbar onset.. he never had weakness in his hand that first started twitching.. anyway now im scared shitless again..

Its been 6 months of bilateral constant muscle twitching in my calves and feet.. i also get pop ups and hot spots in my thighs hamstrings biceps triceps forearms shoulders chest back neck and face.. i have face tingling... no weakness.. had a clean emg at 19 days in... emg 90 days in that picked up a couple fasciculations i had another emg 105 days in that picked up lot of fasciculations in my bicep but doctor said normal emg i got another emg 153 days in and that came back normal..but I still cant get out of this hole... my twitching is definitely worse than when it first started..