Besides my calves twitching 24 /7 from the beginning but they dont really bother me becausethe are faint... this is day 3 of this constant thumper in my triceps.. I getveven get a good night's sleep.. I have tried everything to get it to stop.. what was your longest hotspot?
I have bee to a few neurologist I have had a mri and a few emgs.. they say the twitching is benign fasciculations .. but they dont no what causes it or how it got started l.. and they really dont seem to care that we have to live with these symptoms.. just frustrating.
So i got covid twice my first time was in 2021 and my second was in 2023.. the 1st time I felt like I was on my death bed the second was not nearly has bad.. I never got any of the vaccinations.. So starting on Thanksgiving 2025 I get bilateral muscle twitching in both my calves.. after a few days it went body wide thighs, gluten, triceps, forearms,shoulders, biceps, chest , back, neck every where.. been to multiple neurologist had mri's ecg, emgs, all came back clean except for a fw fasciculations in 2 out of the 4 emgs.. my doctor's say most likely benign fasciculation syndrome.. but the have no idea what causes it to start up.. so I started looking into long covid.. and supposedly if you have had covid at time long covid could stay dormant for years with very little symptoms and than come out of know where and start displaying symptoms.. any one else have this happen?
Its been 6 months of bilateral constant muscle twitching in my calves and feet.. i also get pop ups and hot spots in my thighs hamstrings biceps triceps forearms shoulders chest back neck and face.. i have face tingling... no weakness.. had a clean emg at 19 days in... emg 90 days in that picked up a couple fasciculations i had another emg 105 days in that picked up lot of fasciculations in my bicep but doctor said normal emg i got another emg 153 days in and that came back normal.. so they diagnosed me with most likely bfs... I was just starting to except it when I talked to some one thats husband had als.. his started with twitching in his right hand for a year than he got twitching in his leg and than drop foot.. after that his voice changed and started slurring words.. he was diagnosed with bulbar onset.. he never had weakness in his hand that first started twitching.. anyway now im scared shitless again..
Its been 6 months of bilateral constant muscle twitching in my calves and feet.. i also get pop ups and hot spots in my thighs hamstrings biceps triceps forearms shoulders chest back neck and face.. i have face tingling... no weakness.. had a clean emg at 19 days in... emg 90 days in that picked up a couple fasciculations i had another emg 105 days in that picked up lot of fasciculations in my bicep but doctor said normal emg i got another emg 153 days in and that came back normal..but I still cant get out of this hole... my twitching is definitely worse than when it first started..