u/More_Dot_1685

▲ 5 r/TNBC

Can you maintain your physical health during treatment?

Most likely within the next month I will be starting treatment. I've heard a lot about having extreme fatigue and weakness and even weight gain with the steroids and chemo and medications.

I manage to get 10k to 13k steps a day and stay active with my toddler. I also just reached my goal weight! I'm so proud because it was a long and hard road to get to my goal. I've heard about weight gain with keytruda and it feels like a slap in the face with all of my hard work to get where I'm at.

For those who are active, how badly did treatment affect your ability to stay active? Should I expect to gain weight even if I do my best to eat healthy?

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u/More_Dot_1685 — 3 days ago

High ki 67 95%

Hi all, I am still waiting to talk to a doctor (tomorrow). I keep thinking about my ki 67 score of 95%, I have TNBC, grade 2.

I felt this lump months ago and I'm worried sick with how high the ki score is. It's been possible rapidly dividing for months (possibly a year when I first felt a lump that I thought went away) ? Is there a high chance this has spread elsewhere?

Also, if it were in lymph nodes, would I notice? My ultrasound and mammogram didn't mention lymph nodes. I'm very worried

reddit.com
u/More_Dot_1685 — 5 days ago

Using Abraxame from the start instead of Taxol?

I have TNBC and have been reading about the treatment. I don't have an oncologist team yet but I want to be prepared before I see them.

I have had a reaction to either z pack or Prednisone many years ago when I had allergies. It made my heart pound in my chest and I had a high heart rate. Ever since then I've told doctors I'm allergic to z pack but I also am not sure if it was the steroid I was put on.

I'm afraid I'll experience a bad reaction to taxol, and apparently you need steroids for the side effects? Can I request Abraxame instead of Taxol?

reddit.com
u/More_Dot_1685 — 7 days ago

Tattoo a day after diagnosis?

Hey all, I just got my diagnosis today and I have a tattoo scheduled tomorrow. I have an MRI scheduled in two weeks.

Should I cancel this appointment? I figured there's no harm in getting it done since I'm not going through treatments but I wanted to ask this community! When I was getting my biopsy last week I mentioned it in conversation and the radiologist didn't say anything about it.

reddit.com
u/More_Dot_1685 — 10 days ago
▲ 5 r/TNBC

Waited a year to get a biopsy

Hi all, I found a lump a year ago but I thought it went away until I felt it again a few months ago. I got my biopsy results today and it's TNBC.

I feel like I've doomed myself by not getting it checked out. I honestly thought it went away so I didn't pay any more attention to it. Is this a death sentence? I'm 33 and feel hopeless. Has anyone else waited a long time to get their lump checked?

reddit.com
u/More_Dot_1685 — 10 days ago

Just found out I have TNBC

I just got my results back and I'm spiraling. I have an autistic 3 year old and he needs me and I'm so scared I'll die in the next 5 years and won't be here to help him

I noticed this lump a year ago and I thought it went away so I didn't get it checked. What are the chances it's spread? I won't see my surgeon until Monday. What treatment should I expect?

reddit.com
u/More_Dot_1685 — 10 days ago

My son will be 3 this month. He's been in ABA two months .

All day every day he's screeching and screaming and I am so miserable. He does it when he's playing with toys, he does it happy, sad, when overwhelmed, etc. I don't know how to redirect him because nothing I offer seems to work.

He doesn't care for chewys, I've tried his spinning chair, indoor swing, YouTube, nothing stops his constant screeching. When we go outside he will sit in his chair with a toy and vocal stim loudly. I can't escape his screams.

Is this something ABA can help? I brought his screeching up once and the BCBA said she probably didn't notice it because she's around kids that do it all day. I want to raise my voice and tell him to stop but I don't know if he understands.

reddit.com
u/More_Dot_1685 — 19 days ago