u/More_Dot_1685

After my last two infusions of taxol and carbo (7th and 8th) I had an intense allergic reaction to carbo and today I asked to omit carbo. My oncologist gave me the option to do extra pre-meds and oral steroids, but I told her I was too scared to continue it. Did anyone else quit carbo before their 12 weeks? Should I try to rechallenge the carbo?

I've had 8 infusions of taxol and carbo. After the 7th I felt hot all over my face, head, ears, neck, and chest, and I was red. I had shaking chills, headache, and was 99.6 degrees. It went away after a few hours, but the same thing happened after my 8th infusion and this time my heart rate was 140. Nothing helped so I went to the ER (which did absolutely nothing for me).

I'm terrified to get carbo this week. I can't continue going to the ER either. Who else experienced this and what helped to avoid a reaction? Can I stop carbo? I have 4 left until AC.

I've had 7 weekly infusions of taxol and carbo so far, with three keytruda.

My port has never looked right. It looks red and bruised on one side but it's always been accessed for chemo until last week because they wanted to give it a break since it's red. I was prescribed antibiotics.

I'm still taking antibiotics but my port doesn't look any different. In fact I can see a little stitch poking out and it itches.

I really want it out! The whole experience of having a port has been bad. When I got it installed, my heart flutter and raced. It rubs against everything and I sleep on it.

Has anyone gone through something similar? Can I get the rest of chemo (AC will start next month) and immunotherapy in my arms?

Yesterday was my 7th infusion of taxol and carbo and I also had lupron and keytruda. I woke up today feeling the absolute worse that I have felt during treatment and my temperature has been about 99.3 to 99.6 all day. I just feel pretty ill. Did anybody else experience this? Anything that helped you feel better? Does it get better?! Thanks!

I have tnbc and have had 4 infusions of taxol and carbo and go weekly for infusions. I've asked a nurse if going to the gym was okay and she said yes.

Did anyone start going to the gym during chemo? I haven't been to the gym in about a year and want to start lifting light weights. I just don't know if it's a good idea right now, especially with a port? I am active during my day but want to start lifting weights. Thanks!

Hello, I'm pretty new to the area and was thinking about going to school to either become an LPN or RN.

For RN, I know Sinclair is best. But what schools around here have good LPN programs? What about a lpn to rn bridge program if I decide to go back to school in the future? Thank you!

I've had two infusions with taxol and carbo so far and noticed right after my infusion my heart rate lowers quite a bit. My cardiologist and oncologist aren't worried if I don't have any other symptoms.

It's been two nights since my infusion and as I was trying to sleep I was woken up three times by feeling my heart "drop".

Has any experienced a lower heart rate and did anything different to prevent it for future infusions? Like switching to abraxane or lowering the pre med doses or something else? Thank you

Just wondering if anyone else has experienced a lower heart rate after taxol/carbo/keytruda?

I had my first infusion Wednesday and I noticed Thursday night my heart rate would go as low as 58 at rest.

I was vaping nicotine until I started chemo, then I slowed way down and figured the lower heart rate could've been from stopping nicotine.

This morning I've seen my heart rate hit 54 just sitting on the couch. I'm close to freaking out, has anyone else experienced this? My heart rate does go up back to the 70s and 80s when I'm moving around and active.

I just got my first infusion yesterday! I was pleasantly surprised during the entire time. No allergic reaction and I ended up doing laps around the floor.

My least favorite part is the steroid because I had a horrible night sleep, and I still feel like I have so much energy.

For those who completed keynote or are farther along than I am, if it started off normal for you, when did it start getting worse? I don't feel like I just had a chemo infusion at all. And I feel like I'm fooling myself.

My 3 year old has been in ABA only 3 months. He was supposed to do 5 days a week but because of staffing issues he only went 4 days a week.

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Recently his RBT moved and the center doesn't have another RBT for him and I was told he'd be on hold for 1 or 2 weeks. It's going on 4 weeks now. I've had to ask for an update and was told other RBTs are in training and shadowing right now.

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Now his BCBA is quitting due to health reasons.

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I feel like the center is trying to get rid of him, but on the other hand I know the turnover rate is high. Other centers are full and the only other option is in home ABA, but I was hoping to continue in center because I'm about to go through chemotherapy.

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What do you think, do you think they're trying to get rid of him or honestly having staffing problems? Should I wait to see if they get him an rbt or go through with in home? Thanks!

I start taxol/carbo/keytruda Next week and I'm not looking forward (to any of it) to the steroid side effects. I was told I was getting 4mg which sounds like a small dose. How have mg did you get and did you experience any steroid side effects? I'm going weekly for infusions.

I had my port placement yesterday and during the procedure the catheter irritated my heart which caused irregular beating and high heart rate. It happened a few times and I asked if I would experience this again and was told no.

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But I'm hyper focused on my heart now. It's like I'm waiting for it to start beating irregularly. I took a nap with my toddler and when I woke up it felt like my heart skipped a beat and anticipating something happening again is all I can think about.

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Also I'm not feeling 100% today, I just feel unwell. Is this normal? Does the anxiety of the port go away?

I start the keynote regime in about a week and I'm curious if anyone has done taxol/carbo, AC, and keytruda and didn't experience any bad side effects, just mild ones? Based on all the reading I've done, it seems bad side effects are inevitable! I'm 33. Thanks!

I'm starting keynote 522 June 24th.

Are there any meds that you can request to take prior to starting or during treatment that aren't initially discussed with the doctor? I hear Claritin (is that to take during carbo/taxol?) which I can just buy myself.

Can you request any kind of anxiety meds? Or is there any other med that might help with anything? Thanks!

I have TNBC and am in the process of getting scans done to see what stage I'm at.

My MRI was yesterday and the results were no lymph node involvement (but that's not true without biopsy confirmation correct?), another mass next to my malignant mass (could this be a hematoma from the biopsy?) and a new mass found in the center of my other breast. "This is suspicious. There was an equivocal area of distortion on the diagnostic evaluation of 4/28/2026. Recommendation is for MRI directed mammogram and ultrasound particularly over this area to identify a correlate for biopsy."

Does this mean I'll need another mammogram and then a biopsy?

Thanks for reading!

Most likely within the next month I will be starting treatment. I've heard a lot about having extreme fatigue and weakness and even weight gain with the steroids and chemo and medications.

I manage to get 10k to 13k steps a day and stay active with my toddler. I also just reached my goal weight! I'm so proud because it was a long and hard road to get to my goal. I've heard about weight gain with keytruda and it feels like a slap in the face with all of my hard work to get where I'm at.

For those who are active, how badly did treatment affect your ability to stay active? Should I expect to gain weight even if I do my best to eat healthy?

Hi all, I am still waiting to talk to a doctor (tomorrow). I keep thinking about my ki 67 score of 95%, I have TNBC, grade 2.

I felt this lump months ago and I'm worried sick with how high the ki score is. It's been possible rapidly dividing for months (possibly a year when I first felt a lump that I thought went away) ? Is there a high chance this has spread elsewhere?

Also, if it were in lymph nodes, would I notice? My ultrasound and mammogram didn't mention lymph nodes. I'm very worried

I have TNBC and have been reading about the treatment. I don't have an oncologist team yet but I want to be prepared before I see them.

I have had a reaction to either z pack or Prednisone many years ago when I had allergies. It made my heart pound in my chest and I had a high heart rate. Ever since then I've told doctors I'm allergic to z pack but I also am not sure if it was the steroid I was put on.

I'm afraid I'll experience a bad reaction to taxol, and apparently you need steroids for the side effects? Can I request Abraxame instead of Taxol?