u/Morphiadz

Basically the title. I have frequently been trying to help others for over 10 years as I consider myself partially improved by a few things (not cured, but some things helped me in that time).

I just find the amount of nasty and sarcastic people in these UARS groups (FB, here, others) to make me never want to share a cure if/once I figure it out.

I get it. We sleep bad. So do I. I don't need to be nasty though just because I am fatigued or suffer.

It seems even a kind comment trying to help someone with my experience gets met with sarcasm or nasty replies about "Obviously I did that already" or "you're just saying what my doctor said" or "you think I never tried that?" Or "you're making this about my weight and minimizing my sleep issue like doctors do, what's your issue???" when someone talks about being super obese and I kindly and sensitively share my story of gaining 25 pounds and that screwing up my sleep leading to me being riddled with anxiety and bedbound, in an effort to help them realise that weight can definitely worsen sleep (because many people genuinely do not know or consider it) and might be the key to their issue getting so much worse in the first place.

Because all this time I have just wanted to help myself and everyone else get out of sleep disordered breathing hell.

I just get nasty sarcastic replies so often I actually quit posting here and FB until today, when I came to check something and I shared an experience for the first time in a year and got another nasty reply in minutes.

So honestly...think before you write. I have seen so many people asking for success stories, and I have known a few people who also refused to share their success here. I used to think they were being extreme until I saw how people act towards me. Your attitude and need to get offended or mad over everything could impact your future and your health and life if someone figures out something that works and doesn't come back to tell you about it, because I certainly won't. What if that person you snapped at today, finds a solution that also could've helped you and doesn't come back to ever share it?

Soy extranjera, residente permanente, por lo cual no sé cómo es en México. Tampoco soy de usar tarjeta de crédito.

El problema es esto: tuve un reembolso de Amazon por $3500 y Nu me sigue cobrando. Abrí 3 reportes, cada vez lo cierran. Yo tengo evidencia, mucha evidencia, tengo todo de Amazon, incluyendo una persona de facturación que también confirmó el reembolso. En mi cuenta de Amazon dice que fue reembolsado en mi tarjeta de Nu hace 2 meses.

Sin embargo, Nu me sigue cobrando todas las mensualidades. No me parece justo. Después de los 3 reportes, les hablé por teléfono, y me dijeron que tengo la razón con las evidencias, que sí en teoría se debe hacer y que abrieron un reporte nuevamente. Y de nuevo hoy veo que lo cerraron.

Ahora queda claro que solo están jugando y yendo en círculos. Ya no planeo usar la tarjeta nunca de nuevo.

Sin embargo, me preocupa por el tema de mi historial. Realmente no soy de usar tarjeta de crédito, pero por alguna emergencia o algo sí me gustaría tener una. Pero la mayoría no me dan mucho límite (creo por ser extranjera?), Nu sí me da mucho. Pero como digo, no creo que la usaría después de esto.

Cuánto me va a afectar en mi historial si no pago los $3500? Y es tan importante si realmente no soy de usar crédito?

I just wanted to post a brief success story. I had severe PPPD, I was bedridden it was so severe, I lost weight, could barely do anything, it was horrible.

It got to the point where I was going to the ER and then was hospitalized for the dizziness.

I then decided to stop trying to push through and ignore medication. I know people don't want to take SSRIs. But I am here to say you should.

It only took 25 mg of Zoloft to cure me. In about 6 weeks it was fully gone. It has been 9 months, no PPPD.

When I think about my symptoms I can barely remember them. I look at lists of symptoms I made, floor shifting, floor tilting, off balance, crying from fear of walking even 3 meters and the tilting and dizziness, the list goes on.

I can barely remember any of it.

I am not in perfect health (I have other issues) but this PPPD nightmare is gone.

I lowered to 18 mg now, and so far the PPPD has not returned.

I tried going to 12.5 mg but I felt a slight strange feeling so I am staying at 18 mg for now.

It isn't even a child's dose. So I am here to say try the medication. You may be like me. What if all it takes is barely a crumb of this medication and you are cured? I am not the only one. In this group I met people taking small doses and also having great results.

I would have taken a bit more like 50 mg, just to see if it would be even better, but it gives me bad nightmares, and with 25 mg really I have no complaints.

Of course, the first few weeks are very bad as the SSRI makes it feel so much worse. I think that is why people stop. I felt like I was seriously going to die. I spent those weeks in bed.

But what matters more, a few worse weeks or my whole life like this?

I am cured and I am thankful there is medication like this. So I hope other people don't sit and suffer without giving this a real try first, it might change your life.